Top Tweets for #MedicallyComplex
On a day that I feel like I have been run over by a Mack truck, I am grateful for this truth. #365daysofgratitude💙 #medicallycomplex #exhausted #inchristalonemyhopeisfound
Join Hope for HIE on June 17 @ 12:00 PM ET for our HIE Peer Perspectives Panel where #HIE parents will share personal insights and practical tips on #traveling and #vacationing with a #medicallycomplex child.
Watch on our main social or YouTube channels!
#ADA #AccessibleTravel
This Mother’s Day, we honor the incredible mothers we’ve had the privilege to walk beside—and all the emotions this day may bring.
#MothersDay #Mothers #Moms #MedicallyComplex #NICU #Hospital #Love
David Livingston
District 22
AZ
Trying to CUT Special needs children's care and budget, to pay for privileged children who's parents make over $200k a year!
You gonna learn today
#specialneedsmom #specialneeds #acutecare #medicallycomplex #disabledtiktok #autism #medical #school #schoolvoucher #fyp #dontletthisflop #viral #DavidLivingston #Budget #KatieHobbs #money #foryoupage #greed #Arizona #ArizonaParents #yes #no #call #stayunrulyaf #AZ #Kids #letsroll
602-926-4178
Call Call Call Call Flood Him!
@Livingston4AZ David Livingston
District 22
AZ
Trying to CUT Special needs children's care and budget, to pay for privileged children who's parents make over $200k a year!
You gonna learn today
#specialneedsmom #specialneeds #acutecare #medicallycomplex #disabledtiktok #autism #medical #school #schoolvoucher #fyp #dontletthisflop #viral #DavidLivingston #Budget #KatieHobbs #money #foryoupage #greed #Arizona #ArizonaParents
602-926-4178
Call Call Call Call Flood Him!
Please help support the children with medical complexity impacted by #HurricaneHelene
#complexcare #pedpc #hapc #pediatrics #medicallycomplex #medicallyfragile #NorthCarolina
https://t.co/ZfrfmjpboZ
Hi there, Kingston!
Your grandpa loves you so much!
This is why I fight!
Meet my Bo on his first birthday!
Why we celebrate everything!
#TeamGus #Feral #DifferentNotLess #medicallycomplex #Autism #Rare #praderwillisyndrome #specialneeds #differentlyabled
This is why I fight.
Meet Grandbaby Kingston, y’all ❤️🥺❤️
Electronic health records can be used to identify #medicallycomplex adults w/social barriers to health who could benefit from #communitysupport programs. Study led by @KPDOR @kpnorcal @KPWaResearch @KPColoroado in @MedicalCareLWW funded by @AHRQNews
Story: https://t.co/s149L51vwk
If anyone comes across any legitimate Taylor Swift tickets for Wembley then please let me know. This kid is beyond desperate, bless her. @taylorswift13 @taylornation13 #BrainTumours #Blind #MedicallyComplex #NF1 #AcquiredBrainInjury
I went to a wedding last night and had to step out to talk my sister through replacing my 4 year old’s g-button that popped out during a tantrum. He’s totally fine, but now I’d like to build a “Sebastian care” website. 🤔 #medicallycomplex #momswhocode
Siblings sometimes struggle with how to talk with friends about their #MedicallyComplex brother or sister.
#RareSiblings
#SiblingSupport
#Siblings
Happy Earth Day from DLC! Thank you to #boardmember and #volunteer Ms. Allison for beautifying our front area just in time for #earthday! #specialneeds #medicallycomplex #childcare #DLC #Duval #flowers #beautiful #foryourpage #fyp #spring #godsblessings
#Caregivers of #MedicallyComplex children need their friends to recognize how unpredictable their world is and be patient when plans change.
#MedicallyComplexParenting
#mitochondrialdisease
Children’s literature can offer a gentle and developmentally appropriate way to address complex topics – such as #death and #grief – with children. Join us In The Room on April 11th.
Register: https://t.co/B1hgxHaXri
#Pedpc #RareDisease #Caregiver #MedicallyComplex
Grief is not neat, clean, linear, or fast.
#Grief #LossOfALovedOne #LossOfAChild #Mourning #SpecialChild #MedicallyFragile #MedicallyComplex #MedicallyComplicated #Bereaved #BereavedFather #BereavedMother #BereavedParent #BereavedParents #SpecialNeedsChild #SpecialNeedsLoss
Shared decision making involves a clinician and a patient or a caregiver working together to make a medical decision that is best for the patient.
#SharedDecisionMaking
#PalliativeCare
#MedicallyComplex
All I want for Xmas is a GI doctor who wants to help me + SCIG. It’s crushing that I’ve recovered enough that my most severe medical issues are likely treatable/solveable, but I don’t have access to what I need because I’m #MedicallyComplex. Give me a chance to recover and live?
For caregivers of medically complex children travel during the holidays can be a herculean task. Developed in partnership with @bradesplace, CPN's travel guide is loaded with helpful tips. Also available in Spanish. https://t.co/OiEpPUwWWC
#MedicallyComplex #Holiday #Travel
To the caregivers in the #RareDisease, #MedicallyComplex, and #ChronicIllness spaces - we see you. You are appreciated. Thank you for all that you do.
If you are a caregiver and looking for resources, please let us know if/how we can help.
#NationalFamilyCaregiversMonth
Today, we honor the over 50 million caregivers in the U.S. who work tireless every day. This is especially important for those living with rare diseases, as many rely on caregivers' dedication and selflessness.
#raredisease #AmicusCares
When a child's ability to eat by mouth shifts, parents often find they also need to shift their thinking on what it means to feed their child.
https://t.co/jDjp8zKk9o
@JessieFein #Feeding #FeedingTube #MedicallyComplex
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