Top Tweets for #Muscular_Dystrophy
Satellos Reports Positive Six-Month TRAILHEAD Data for SAT-3247 in Adults living with Duchenne Muscular Dystrophy - For More Information Visit https://t.co/Ndofadagic @SatellosBio #Duchenne #Muscular_Dystrophy #DMD #Rare_Diseases #Orphan_Drugs #Pediatric_diseases
#Facioscapulohumeral #muscular_dystrophy should be conceptualized not as a single entity, but as a spectrum disorder with a complex genetic basis.
A review by Dr. Ava Lin & Leo Wang (@UWNeurology) examines the expanding phenotypic landscape of #FSHD, genotype-phenotype variability, & implications for emerging therapies.
https://t.co/zMSAV0fQrg
#MedEd #NeuroTwitter @AANmember @MDAorg
Precision BioSciences Reports New Preclinical PBGENE-DMD Data Showing Greater Efficacy in Early-Juvenile DMD Models at ASGCT 2026 - For More Information Visit https://t.co/9gvSmyDmkI @PrecisionBioSci #DMD #Duchenne #Muscular_Dystrophy #Rare_Diseases #Orphan_Drugs
Solid Biosciences Doses First Participant in Phase 3 IMPACT DUCHENNE Clinical Trial Evaluating SGT-003 in Duchenne Muscular Dystrophy - For More Information Visit https://t.co/dCjg8Xr9QR @Solid_Bio #Duchenne #DMD #Muscular_Dystrophy #rare_Diseases #Orphan_Drugs
Let alone other circumstances since so long time such as war and its consequences (famine , siege, inexistence of food security generally,the collapse of health and healthcare system,and so on ).
There is nothing here to compare to the western countries at all ,that's impossible
Good morning , my dear sister.
Thank you so much for your kind words.
Unfortunately yes; LGMD is progressive and generally, the environment here can't accommodate such a horrible illness.
Healthcare , infrastructure, accessibility, houseing etc. are literally zero.
Today, survival is all what I am searching for ,and I will continue as much as I can .
#chronicillness
#Disability
#Muscular_Dystrophy
I never thought that I would miss that time one day.
I was full of hope that I would be well again;I didn't know that my fate had an other decision.
Currently I seem dead,in comparison to those days.
It's sad but it's also true.
#chronicillness
#Disability
#Muscular_Dystrophy
Opinion: As Duchenne Muscular Dystrophy (DMD) Innovation Booms, Let’s Ensure it Becomes Real Progress - For More Information Visit https://t.co/4nhCR7poP2 @Sarepta #Duchenne #Muscular_Dystrophy #DMD #Rare_Diseases #Orphan_Drugs #Pediatric_Diseases #FDA
Here I am not complaining more than describing the feelings that chronically ill and/or disabled folks, house-bound or bedridden generally feel ,and trying to manifest by words the life they are struggling so hard to change
#chronicillness
#Disability
#Muscular_Dystrophy
That prison they are confined to becomes like a grave in which nothing inside belongs to the real life .
#chronicillness
#Disability
#Muscular_Dystrophy
Even in gloomy dark time , when uncertainty covers our life and our minds gets blind,we still need to grope for seeds of hope .
#Hassan
#chronicillness
#Disability
#Muscular_Dystrophy
Visit https://t.co/7f01MzlwKt for new #CME content in #neurology—#Alzheimer disease, #Limb_Girdle #Muscular_Dystrophy, and more.
#NeuroTwitter #MedEd @ReachMD
Since you aren't able to take care of or serve yourself,then you are still unsafe.
#chronicillnessl
#Disability
#Muscular_Dystrophy
I feel all I can do is to come here and just talk ,may be to prove myself I am still existed .
On the other hand, I can't do anything that makes feel my existence in reality;I am completely absent,not because I don't want or lazy,I eagerly want but I can't.
#Muscular_Dystrophy
It may take me so long to achieve the goal of improving my life qualities since war and its consequences still haven't come to an end yet but I won't give up on struggling for my life;I don't have any other option .
#chronicillness
#Disability
#Muscular_Dystrophy
So I am in dire need to change my life to be better, but the point is that I need to survive the difficult time first while I am on my way to build my own life again from the scratch.
#chronicillness
#Disability
#Muscular_Dystrophy
Due to Muscular Dystrophy, I lost my ability to live a normal life and what made the situation more worse is that I am living in a war-torn country like Yemen
#chronicillness
#Disability
#Muscular_Dystrophy
For the time being,all I want is to be able to keep going in this difficult time .
It's just a wish and I hope I won't be let down.
#Muscular_Dystrophy
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