Top Tweets for #Mye
@tinybuddha Appears people with ME are underprivileged.
Certainly feels that way, considering how discriminated against we are.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
Young people are everywhere in health conversations.
Are they actually being heard?
Swipe through to meet YES! Health Nigeria and see why we exist.
#YESHealthinaction #YESHealthNigeria #MYE #youthinhealth
Great conversations and connections at Coffee with the Counselors! Thank you to our MYE families for joining us! @MYE_Leopards @MsLeighaB #CounselorsLead #betterstrongertogether #MYE
Sick Of This BS
I’m tired of all of it. I’m tired of being tired and I’m tired of having to use the word tired to describe something so much more profound. Watch for more 🔥🔥🔥💙
I’m never giving up though, I will have freedom!!! 😤💙🫂
———————————————
#mecfs #LongCovid #ChronicIllness #pwME #spoonie
Nobody says it's easy, but if you look for what you can still do rather than can't, life with #ME does get easier.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
Someone hit play... because MYE is about to have its best season yet. HERE WE GO! #MYE #BetterTogether @FortBendISD @CallieDay1 @MrsAFarooq
I know #ME life is shit, but that doesn't mean there aren't great things to enjoy if we can get out.
Views, birds, flowers, etc.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #millionsmissing #LongCovid
#BeAllYouCanBe
Good morning, folks! Happy Monday! Enjoy your new week!
🎉 🎉 🎉
Apparently it’s all a mystery why so many people of all ages are falling sick & disabled to the point that they have no other choice but to claim sickness benefits
I contracted C o V I D in 2022 working on as a NHS MH Specialist. Now severely disabled and unable to work age 35
@TomKindlon Just getting out is an achievement.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
The disease ME/CFS
1) it has one of the worst qualities of life of any chronic disease
2) it also has one of the most severe impacts on the lives of family members (equal or worse even than dementia on average)
3) it is *horrifically* underfunded, given it's huge disease burden
Also a great candidate for AI
@DeryaTR_ @fidjissimo @cstroeckw @amyrochlin
This is why I don’t get out much… even the biggest of cabs in Liverpool are not accessible.
I’m always one speed bump away from a broken neck! 😂
Visiting London was a dream… you guys know how to do a cab!
#AccessibleTransport
People like Vlad, who could contribute so much, are held back by #ME.
Society needs to find an effective treatment or cure.
#pwME cost billions in lost taxes, productivity, and benefits.
#MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #millionsmissing #LongCovid
#BeAllYouCanBe
I am 45 today. I’ve had ME for 23 years and Long Covid for 1.5 years. I planned to spend some time in the wheelchair today, but it turned out to be one of the worst days in months. Party party. So I want to say something general that applies to millions of people across the world: acute chronic illness - like ME or Long Covid - generates uncertainty. How long will this episode last? Will I permanently get worse? Is this something new? What does this mean for my life expectancy? How can I suffer this much and not be dying?
What do you mean, exercise makes you ill?
I'm the doctor and I tell you it'll make you better.
Psychiatrists tell me so.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
There are way too many people who actually, literally believe that medical doctors behave like House when in actuality they take one look at you, refuse to do any tests, and tell you it's all anxiety or that you're too fat.
I am pissed off with people today.
If the main beneficiaries of #ME and endometriosis were men, both would be solved.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFSf #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
@BBCWomansHour What about the ME Delivery Plan? When will it be implemented? ME affects women disproportionately but there are no NHS beds for Severe ME and it’s rare that an NHS Dr even understands or believes in the illness. #ME
„...Eine Mutter sucht verzweifelt nach einem Kinderhospizplatz...“
So lange #VerySevereME Kinder Hospizplätze benötigen, weil wirksame Medikamente verweigert werden, sind POs noch viel zu leise!
@DoroBaer @Karl_Lauterbach
Danke @NichtGenesen für's Laut sein!
This is my personal experience badd. I dated someone so gorgeous my mom couldn’t even talk shit and my friends even found him fine and he wasn’t even their type lmfaoooo. Everyone wanted #mye man. And whenever I’m heartbroken people understand bc I date the baddest.
@TaiSoleilSol Like, someone who might not be the most beautiful in the land, but still gets with the beautiful person. Or, might not be the most hard working, but is still making a lot of money. Or even, may not be rich, but surrounded by luxury.
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