Top Tweets for #NATPARA
@uspto do you intend on revoking the orphan drug patent issued to @TakedaPharma for #Natpara parathyroid hormone since they are choosing to STOP PRODUCTION? leaving over 200k people worldwide without a treatment for #hypoparathyroidism ?? Why should they get to keep the patent?
Malas noticias para los #pacientes de #hipoparatiroidismo
Enfermedad rara y huérfana de tratamiento
Takeda deja de fábrica #NatPar #NatPara
https://t.co/IU7HSphN0g
Important update from Takeda regarding NatPara #hypoparathyroidism #Takeda #NatPara
https://t.co/1LDaw4K1Jt
@TakedaPharma Work on rectifying the mess you’ve made with the Natpara recall. How is it possible to develop a vaccine 3 times faster than solving an issue with the delivery system of an existing medication. #natpara #hypopara
Bring back Natpara: FDA must help hypoparathyroidism sufferers https://t.co/mbPYZR7zvg via @washtimes #hypopara #hypoparathyroidism #natpara #fda
@TakedaPharma I am so disappointed in you Takeda. It's been 1 year since #natpara was recalled from rare disease patients who relied on this life saving life changing treatment. And still nothing. So disappointed.
Takeda says its rare disease drug #natpara won't be available until March 2021 at the earliest. Background on the struggles for those w/hypoparathyroidism: https://t.co/N52IjrONHf
@TakedaPharma @US_FDA @FDArecalls I guess we are just forgotten then. Left to languish on treatments not meant to treat our condition. #natpara #natpararecall
The case of #Natpara & Natpar highlights the difficulties of bringing drugs for rare diseases to market. https://t.co/JI3F4kz19H
The case of #Natpara & Natpar highlights the difficulties of bringing drugs for rare diseases to market. https://t.co/JI3F4kz19H
@lpn4jps @TakedaPharma @TakedaPharma I gave up counting days for the return of #Natpara. Now its injection every 8 hours around the clock with off label med and bloodwork every other day. I'm so tired of babysitting myself to be subpar. and still try to hold my life together.
@TakedaPharma @US_FDA @FDACommissioner the hypopara community really needs this drug https://t.co/ddpupIUq3N there any news as to when we can get it back? #natpara #hypopara #natpararecall
Press release from Bernie Sanders office. #Natpara
Natpara recalled due to possible underdosing. Recall = no dosing for some patients! All should be approved for special use, since no alternative is available! @TakedaPharma @FDArecalls Stop cherry picking patients!! #natpara #takeda #hypopara
#natpara #natpararecall #hypoparathyroidism @TakedaPharma @FDAPatientinfo https://t.co/CuLFaApaou
@TakedaPharma @FDAPatientinfo Can you tell us why patients are being handpicked for the special use program when ALL people who relied on this medication are suffering and should have access to it? What is the deciding factor? Why can’t you help all of your patients? #natpara
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.7M followers
Barack Obama
@barackobama
119M followers
Cristiano Ronaldo
@cristiano
114.4M followers
Donald J. Trump
@realdonaldtrump
111.9M followers
Narendra Modi
@narendramodi
107.2M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.4M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
83.9M followers
Lady Gaga
@ladygaga
75.4M followers
Virat Kohli
@imvkohli
73.4M followers
Kim Kardashian
@kimkardashian
70.9M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.4M followers
Bill Gates
@billgates
65.2M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.3M followers
CNN
@cnn
61.8M followers
X
@x
60.7M followers