Top Tweets for #NEUROFIBROMATOSIS
🎃👻 Did you know that Neurofibromatosis (NF) affects everyone equally, regardless of gender or ethnicity? This Halloween, let’s shed light on NF and break the scary stigma surrounding it!
👉 https://t.co/a4ztFULxXz
#Halloween #Neurofibromatosis #NF #StayInformed #SpookySeason

Had an amazing meeting on #Neurofibromatosis and use of Selumetinib at JSS Medical College, Mysuru.
It’s a great place with emphasis on genetics and translational medicine.
Met some brilliant minds there.
#Rarediseases

Happy #ThrowbackThursday! Today, we are looking back at our Miami Day with the Docs event last year. Are you signed up for this year's event? It's not too late! https://t.co/pAe5VvAGia
#NFNetwork #neurofibromatosis #PickleballFun #CoralGablesEvents

Join this free webinar on the cognitive, behavioral, and emotional side of NF1 with pediatric neuropsychologist Dr. Donald J. Bearden followed by a session on advocating for your child.
https://t.co/78XzBKCVY6
#NF1 #Neurofibromatosis

🔬🔴 CHERRY ANGIOMAS AND NF1: New research in JAMA Dermatology suggests cherry angiomas may represent a previously underrecognized vascular manifestation of neurofibromatosis type 1 (NF1) ➡️ https://t.co/rklKi5fwUy #Dermatology #NF1 #Neurofibromatosis #DermResearch #SkinScience #MedicalResearch

#CherryAngiomas were more common and appeared at younger ages in individuals with #Neurofibromatosis type 1, supporting these lesions as a vascular manifestation of #NF1. https://t.co/YcQ9bdotac

NCI investigators are recruiting kids and teens ages 8–17 with NF1 and plexiform neurofibromas for a study on pain questionnaires.
Contact the NCI study team directly:
Jayla Melvin - [email protected]
Pam Wolters - [email protected]
#NF1 #Neurofibromatosis

📢 Call for Abstracts is open!
The Neurofibromatosis Young Investigators' Forum is seeking original NF research from junior faculty, fellows, postdocs, and PhD students.
🗓 Submit by Sept. 8
📅 Dec. 3–4 | Baltimore, MD
👉 https://t.co/XwFdu498Z3
#Neurofibromatosis #EndNF #RareDisease @ChildrensTumor
Rare Info Series #73 💙
Join us as we explore “Living with Neurofibromatosis: Challenges and Hope.”
🎙️ Dr. Prabhudev Hiremath
🎤 Dr. Aparna U Simha
📅 12 Aug | 🕓 4–5 PM IST
#ORDI #Neurofibromatosis #RareDiseases #RareInfoSeries

Rare Info Series #73 💙
Join us as we explore “Living with Neurofibromatosis: Challenges and Hope.”
🎙️ Dr. Prabhudev Hiremath
🎤 Dr. Aparna U Simha
📅 12 Aug | 🕓 4–5 PM IST
#ORDI #Neurofibromatosis #RareDiseases #RareInfoSeries

#Neurofibromatosis Type 1 (#NF1) is rare, but did you know that it's also one of the most commonly inherited disorders?
While they are often identified in infancy or childhood, the impacts of PN can persist into adulthood.

Join us in raising awareness of neurofibromatosis (NF) and empowering our community for a brighter future!
Together, we can make a real impact! Sign up and help spread the word: https://t.co/a4ztFUL081
#Neurofibromatosis #StayInformed

I'm a 43-year-old man living with Neurofibromatosis type 1. I will be recording a video for YouTube documenting my life with the condition. Is there any questions you would like to ask ? Or any aspects you think I should address? #Neurofibromatosis #Neurofibromatosistype1

Delivered a talk on Neurocutaneous disorders and current advances in managing them in #Karnataka state annual Neurology conference held in BLDE medical college, #Vijayapura.
Largely my talk was centred around #Neurofibromatosis and #TuberousSclerosis with some touch on #Sturgeweber. Also I shared our current experience at Ramaiah Medical College.
Grateful to the august audience who received it very well.
We need to establish an ecosystem around #Neurocutaneous disorders in #India.

Come celebrate, connect, and make a difference together! To register or donate, please visit https://t.co/QnSJJE497S.
#ConnectingNF #Neurofibromatosis #NFConcert #SupportNF #HopeForNF #Fundraising #Awareness #WoodstockGA

Researchers have traced the molecular origins of severe pain in #neurofibromatosis—an inherited condition of tumors in the nervous system—and show that an FDA-approved drug can relieve pain in mice. @CincyChildrens @NamrataGRRaut @JankowskiLab https://t.co/bT1KlYZ0Zz

Who else believes in the power of healing?
#healing #prayer #YouTubeShort
If you feel guide pray for me, for healing of #Neurofibromatosis tumors have to leave, complete healing is my portion and part of the finished work of Jesus ✝️ https://t.co/cVnZnzWxF4
As the @ASCO Annual Meeting ends today, we reflect on an impactful few days. Our data in light chain (AL) #amyloidosis and #neurofibromatosis type 1 (NF1) highlight how scientific innovation can help transform outcomes for people living with these rare diseases.
#ASCO2026

Researchers have traced the molecular origins of severe pain that often affects patients with #neurofibromatosis—an inherited condition of tumors in the nervous system—and show that an FDA-approved drug can relieve pain in mice. @SciSignal https://t.co/nfhJsJU3Ag

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