Top Tweets for #NFXFAD

Zynerba Pharma @ZynerbaPharma

over 7 years ago

Today kicks off the @NFXFoundation’s Advocacy Day! We are very excited about this event, as it truly impacts the lives of #FragileX patients and their families. #NFXFAD

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Zynerba Pharma @ZynerbaPharma

over 7 years ago

Tomorrow the @NFXFoundation and members of the #FragileX community will head to Capitol Hill to advocate for the lives and opportunities of people living with FXS. We can’t wait to see the great tasks accomplished! #NFXFAD

ZynerbaPharma's tweet photo. Tomorrow the @NFXFoundation and members of the #FragileX community will head to Capitol Hill to advocate for the lives and opportunities of people living with FXS. We can’t wait to see the great tasks accomplished! #NFXFAD https://t.co/uzPXViqqJV

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Rabbi Ilana Garber @ilanagarber

over 8 years ago

CT delegation with staffer from Congresswoman Esty. #NFXFAD #FragileX

ilanagarber's tweet photo. CT delegation with staffer from Congresswoman Esty. #NFXFAD #FragileX https://t.co/c4Y5BFChpc

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NFXF @NFXFoundation

over 8 years ago

NFXF Advocates are talking Fragile X today with 74 House members and 56 Senators to raise awareness, fund research, and open doors for the future. #NFXFAD #FragileX

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Kelly RandelsColeman @KellyColeman08

over 8 years ago

What is today?!?! It’s Fragile X advocacy day!! I love my Cody and I am honored to be presenting my family’s Fragile X story to our members of congress. #FragileX #nfxfad @RandelsCody

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Rabbi Ilana Garber @ilanagarber

over 8 years ago

I'm the only rabbi in DC not @AIPAC but that's ok b/c I'm here to advocate for my children, my nephews, my mother, my sisters, my cousins, myself, my friends & maybe you! #FragileX #NFXFAD #PleaseGetTested

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Lara Lovett @4boysandilovett

over 10 years ago

Thank you to @CoryBooker's amazing staffers, including @topperadam who had his own #FragileX story to share! #NFXFAD

4boysandilovett's tweet photo. Thank you to @CoryBooker's amazing staffers, including @topperadam who had his own #FragileX story to share! #NFXFAD https://t.co/9nz1QushbC

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Central IL Fragile X @centralilfx

over 10 years ago

Illinois team with Senator Kirk's office #NFXFAD @FragileXnews

centralilfx's tweet photo. Illinois team with Senator Kirk's office #NFXFAD @FragileXnews https://t.co/ObJf33StKS

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Lara Lovett @4boysandilovett

over 10 years ago

Zac and I can't wait to meet @CoryBooker on 3-2-16 in DC for Fragile X Advocacy Day! #NFXFAD

4boysandilovett's tweet photo. Zac and I can't wait to meet @CoryBooker on 3-2-16 in DC for Fragile X Advocacy Day! #NFXFAD https://t.co/H15227nMAT

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NFXF @NFXFoundation

over 10 years ago

Introducing the STAR Initiative, our new local advocacy program. Get involved today! #FragileX #NFXFAD https://t.co/13mDvhMKfC

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NFXF @NFXFoundation

over 11 years ago

The first thing we ask for at Advocacy Day is funding for Fragile X research and programs. #NFXFAD #FragileX

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Eliot Engel @RepEliotEngel

over 11 years ago

Happy to spend time today in my office with friends from the Fragile X advocacy community! #NFXFAD

RepEliotEngel's tweet photo. Happy to spend time today in my office with friends from the Fragile X advocacy community! #NFXFAD http://t.co/YgPKiFWxsO

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NFXF @NFXFoundation

over 11 years ago

"Our kids drive us here. They are the reason we keep coming back," Michelle O'Dell, Washington #NFXFAD #FragileX

NFXFoundation's tweet photo. "Our kids drive us here. They are the reason we keep coming back," Michelle O'Dell, Washington #NFXFAD #FragileX http://t.co/Tthz7YgEpz

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NFXF @NFXFoundation

over 11 years ago

Today is National Fragile X Advocacy Day! Stay tuned for updates and photos of our time on the Hill. #NFXFAD #FragileX

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NFXF @NFXFoundation

over 11 years ago

Texas gettin it done for Fragile X! #NFXFAD #FragileX

NFXFoundation's tweet photo. Texas gettin it done for Fragile X! #NFXFAD #FragileX http://t.co/lk7Yblf7ur

NFXFoundation's tweet photo. Texas gettin it done for Fragile X! #NFXFAD #FragileX http://t.co/lk7Yblf7ur

NFXFoundation's tweet photo. Texas gettin it done for Fragile X! #NFXFAD #FragileX http://t.co/lk7Yblf7ur

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Eliot Engel @RepEliotEngel

over 11 years ago

it was a pleasure to join @GreggHarper in welcoming our friends in the Fragile X advocacy community to the House floor this morning! #NFXFAD

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Gregg Harper @GreggHarper

over 11 years ago

You make a difference! In past 10 yrs, #NFXFAD advocates have helped secure more than $325M in funding for Fragile X research & programming.

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Gregg Harper @GreggHarper

over 11 years ago

@RepEliotEngel and I welcome all our old and new friends to the Fragile X Advocacy Day! One of the best days of the year! #NFXFAD

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Central IL Fragile X @centralilfx

over 11 years ago

Before and during the #NFXFAD training #advocacy #training #fragilex @FragileXnews

centralilfx's tweet photo. Before and during the #NFXFAD training #advocacy #training #fragilex @FragileXnews http://t.co/BNW7zY2w9z

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Christine Rutherford @ChristineRuthe7

over 11 years ago

Glammaw thanks the community of Fragile X advocates on Capitol Hill #NFXFAD @GreggHarper #fragilex http://t.co/34J9WCUeCL”

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