Top Tweets for #NHSAccess
Great to see new MPs stepping up to support families with children still fighting for NHS access to cannabis-based medicines to treat their seizures! Together, we can make a difference and ensure no one is left behind. ๐ #CannabisForHealth #NHSAccess
On Monday 29 July 24 I had the privilege of making my maiden speech in Parliament. #southribble
So we're thinking about #WorldBookDay in our house. Alfie wants to go as #thesmartestgiantintown. I love that he's still getting into the spirit but why can't we buy outfits for our big kids?! Bit of creative thinking coming my way! ๐ #westandwithyou #medicalcannabis #NHSaccess
The study also showed that appointment rates per person are higher for practices serving #rural areas, and practices serving more #deprived populations had more appointments with other care professionals but not GPs https://t.co/FKIoRoTkHz #NHSaccess
Happy New Year to all who have supported us over the last six years. ๐ Alfieโs campaign has become so much more than just about him. I so wish the law change had actually helped patients and families like mine. I hope to see the day it does. #Westandwithyou #NHSaccess
The #MedicalCannabis experiment in the UK needs some serious oversight.
No other prescribed medication would be handled like this.
#medicalmarijuana #dutyofcare #drugpolicy #nhsaccess #nhs #MedicalStudents #righttogrow
@lFkropotkin "we have no control" over product quality standards or leaving "patients" without adequate medicine ๐โ๏ธ
Life is fun when your not having 200+ seizures per day. Only whole plant medical cannabis has successfully reduced Bens seizures. @BorisJohnson you have the power to @End_Our_Pain and give more than just three #access
#EqualAccess
#MedicalCannabis
#NHSAccess
#HumanRights
We explore the reasons for, and effect of, the reduction in peopleโs access to healthcare due to COVID-19 in our online tool. ๐ฅ
Find out more -> https://t.co/RPBsUJuZrg
#HealthcareAccess #HealthInequalities #NHSAccess #CovidConversations
@BenBoisterous is one of the #children this affects. We need this urgently resolving to prevent any harm to our children and young adults with #intractable #epilepsy. @End_Our_Pain
#BoisterousBen
#WeStandTogether
#nhsaccess
#EndOurPain
#alfieshope
https://t.co/WBjj8JNKnB
Fabulous that Ben can enjoy the park. Lifeโs more fun when itโs not interrupted by seizures! #MedicalCannabis #NHSAccess
Seizure Free Day today. ๐๐ฑ
Happy boy enjoying life and eating toy cars right now. ๐
Still weaning the keppra but slower than the neurologist advised just to be extra safe. Itโs taking forever but best to be super safe. ๐
#EndOurPain
#WeStandTogether
#NHSAccess
We have successfully weaned more AED meds and have #seizure free days again. We are deeply disappointed that the #NHS have not yet funded Bens medication keeping him for the first time in his life seizure free. @MattHancock when will you @End_Our_Pain and sort out #NHSAccess
We are left waiting for answers as always. We are constantly ignored and something needs to change. @End_Our_Pain
#NHSAccess
https://t.co/RuHsLBrHAQ
@Lyn_Cleaver @MattHancock @End_Our_Pain Thank you. We have a private prescription that costs us ยฃ2,115.00 per month. We have a free NHS system that we pay in to. Our sons seizures have reduced bu 95-100% and we have had seizure free days. We are weaning his AEDs. We need #NHSAccess as 2 other children have.
WHAT WOULD YOU DO???
Reality๐#children/#adults with intractable #epilepsy have to pay privately for their #cannabis medication 18 months after the law changed to allow CBD/THC to be prescribed by the #NHS
A national #scandal!!!
@End_Our_Pain @ToniaAntoniazzi #NHSAccess
@MattHancock Where is the deal for our childrenโs cannabis meds you said in 2018 they could have. Now they are too expensive......why list them as a prescribable option then? Bit late saying that over 12 months later. #bedrocan #NHSAccess #MedicinalCannabis https://t.co/El0as3zBki
Our children at @End_Our_Pain are continually let down and promises made by @MattHancock not met. This current situation is not execeptable or sustainable for families. @BorisJohnson @downingstreet must urgently intervene to resolve this now. #NHSAccess #MedicinalCannabis
Seizure Free but denied an #NHS prescription. They would rather put children at risk of having 100+ #seizures a day with a greater risk of death. @MattHancock has not helped sort out the non existent #NHSAccess to @End_Our_Pain. @karenmurraygray @Hanseizuremum @ToniaAntoniazzi
We started to wean away more Keppra 4 days ago. We expect to see increased seizures but Ben had 1 seizure just 5 seconds long today. A few years back he was on 3 AEDs at full dose, keto diet and still having nearly 100 seizures a day, each one minutes long. #NHSAccess #Cannabis
11 years old and enjoying life thanks to the ยฃ30,000+ we have spent on medical cannabis. This should of been available on the #NHS but @MattHancock has given us nothing but empty promises and financial hardship. He could @End_Our_Pain now. #NHSAccess @ToniaAntoniazzi @ronniecowan
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