#NIRDChat - Twitter Hashtag

about 11 years ago · Belfast

@drlfarrell great talk from @speccymcspec re the power and reach of #irishmed #NIRDchat tweet chats influencing NI rare disease plan.

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

Rare disease day 2015 - Enniskillen #Nirdchat #irishmed

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

@Noirin0Neill speaking about her fight against a rare cancer- ten years later #WorldBirthDefectsDay #NIRDchat

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

@helenhamill delivering the Minister for Health's message #WorldBirthDefectsDay #NIRDchat

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Go Folic! @GoFolicUK

over 11 years ago

Top story: @Imonlyslightly: 'GO FOLIC #worldBDDay #NIRDchat @SHINEUKCharity …', see more http://t.co/isfkjBdO3c

GoFolicUK's tweet photo. Top story: @Imonlyslightly: 'GO FOLIC #worldBDDay #NIRDchat @SHINEUKCharity …' http://t.co/DoECv3qusL, see more http://t.co/isfkjBdO3c

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lorna lawther @LornaLawther

over 11 years ago

an inspirational talk from @Noirin0Neill celebrating survival from rare cancer after 10 yrs #WorldBDDay #NIRDchat

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lorna lawther @LornaLawther

over 11 years ago

@speccymcspec: "patient empowerment can't be done to people ...its about values relationship and people" #WorldBDDay #NIRDchat

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

GO FOLIC #worldBDDay #NIRDchat @SHINEUKCharity

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

Great to bump into @speccymcspec #worldBDDay #NIRDchat

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NIRDchat @NIRDchat

over 11 years ago

Why do you do what you do? https://t.co/C3vzVyL1cl #NIRDchat #epatientni #ePatient #SHCR

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NIRDchat @NIRDchat

over 11 years ago

A night out! Food and fun in aid of @NI_RDP Book your seats now http://t.co/30a5uRsQxG #NIRDchat #ePatientNI

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NIRDchat @NIRDchat

over 11 years ago

NIRDP chair @christinezoo is representing NI on the NHS #RareDisease Advisory Group. She talks much sense #NIRDchat

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

There has been a strong collaborative approach to NIRDP NI Rare Disease ImpPlan response- teamwork @NI_RDP @NIRDchat #NIRDchat #ePatientNI

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NIRDchat @NIRDchat

over 11 years ago

MT:@22Q11_Ireland multi-disciplinary clinics, COE's and more e health solutions. 'virtual clinics' using international expertise #nirdchat

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Carol McCullough 🦓 ⚡🐬🗿 @Imonlyslightly

over 11 years ago

Nite everyone, so much to cover in so little time. #nirdchat

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NIRDchat @NIRDchat

over 11 years ago

RT @SeanSaid_: Might that be relevant for comment to doc. More explicit time frame? #NIRDchat

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22Q11 Ireland @22Q11_Ireland

over 11 years ago

Ranging from the requisite definition of an RD fewer than 5 in 10,000 to the one in a million to millions and all in between. #nirdchat

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22Q11 Ireland @22Q11_Ireland

over 11 years ago

There are ultra rare, rare and 'common' rare conditions. Some require orphan drugs and some require treatment and management. #nirdchat

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Xpert Patient @XpertPatient

over 11 years ago

@KylaHollywood @speccymcspec @chickyrock1974 @Imonlyslightly @22Q11_Ireland @LiamsLodge @auntie_sadie Tx for chat & bye bye #NIRDChat

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Leona Knox🎗 @LeonaKnox

over 11 years ago

Collaboration key to everything when it comes to "rare disease" research & clinical trials. Patient advocate groups can push this #NIRDchat

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