Top Tweets for #NiceComms
๐ฅWE USED TO BE SEEN JUST AS WOMEN๐ฅ The fact they know it's for women but chose to state "people" surprised the word women got used at all to be honest. BUT THE MESSAGE IS CLEAR. We are now only seen as body parts
"Person with a female urinary system" ๐ญ#NICEComms
Tweet #UKHSA
Perplexing decision by #NICEComms. Glad that healthcare professionals are getting behind calls for patient access. Massively important breakthrough treatment for SOD-1 meets a gaping pothole! I despair at times whether those trusted to make these decisions are fully informed?
As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc https://t.co/rrJ9mjce8h
@Dr2NisreenAlwan @karamballes It's high time more of #NICEComms guidance is compared with, say, medical approach of France + Germany;
Why does NICE feel it clever to nudge GPs to not test Vitamin A deficiency.. claim it "very rare"?
Vegan trends will see ++vitA deficiency trend.
CFS/ME logically associated.
Beggars belief! How is it ethical for the #immunocompromised to be risking their lives accessing medical treatment!
How many people are wearing a mask in medical settings?
Save lives purchase #Evusheld
#canwedobetter
#nicecomms
@evusheld4theuk
I mean, how many more ways, more qualified people and more official organisations do we need to say it
The clinically vulnerable are still not protected from covid, and frankly not much since lockdown 1 has been done with this aim
Will you just stand by and let them suffer?
@JohnAlterIII #AMRCPH Super meeting with its One Health perspective. Well done to organisers, Royal Danish Embassy in UK, Danish Ministries of Health & Foreign Affairs, Novo Nordisk Foundation. #NICEComms #NHSEngland
#UKHSA
@JoanneMckinlay4 @annahodgekiss Keep up the good work โฆ if only someone at #nicecomms had the bravery to make change happen .. โค๏ธ
A few months back I attended a session on how to complete a NICE evidence search and today a certificate arrived to say that I was a NICE Evidence Research Student Champion. A very nice surprise indeed... #punc20 #NICEComms #NRS502
I really hope this is correct and well se published guidelines very soon. Thank you Janet Sylvester!
#publishthatguideline #nicecomms
Janet Sylvester #MEAction UK said about today's NICE roundtable.
โI felt this was a positive meeting. There were large areas of agreement from all attendees, ..... I'm optimistic for a swift decision from NICE to publish the guideline.
#pwME #PublishThatGuideline
I also got a lot worse due to GET. Let there be guidelines that does not accept harming ME sufferers.
#publishthatguideline #nicecomms
I was harmed five years ago with GET. Before I was working and lived a little bit. After I need help every day.
How many people is getting this terror because NICE delays publication of new guidelines?
#pwME #NiceComms
#PublishThatGuideline #InstitutionalisedDiscrimination #NICEComms Please do the right thing! #pwme are counting on you to stop the harm! #MyalgicEncephalomyelitis
I was harmed five years ago with GET. Before I was working and lived a little bit. After I need help every day.
How many people is getting this terror because NICE delays publication of new guidelines?
#pwME #NiceComms
@NICEComms "Do no harm" and "evidence based" should be the only things to focus on.
#publishthatguideline #nicecomms
Very informative and well made short info film about ME and NICE.
#nicecomms #publishthatguideline
https://t.co/rJSivMhNZ5
Dr Karl Morten, a principal investigator at the University of Oxford releases a statement regarding the paused release of the new #NICEComms (NICE) guidelines for #MECFS https://t.co/VE0qSiL552
@actionforme
@MEAssociation
@TimesONeill
@HLouise55 Although #SpinalCordStimulation is sometimes seen as a 'last resort', if patients fulfil the criteria set by #NICEComms , we will assess them at any time if they are referred to us by their GP, specialist physiotherapist or other medical professional.
#NSUKI_Society
This is a global disease, and action in the UK has global ramifications. Iโm adding my voice as an Australian in Italy. Thank you to the @TheChronicColab for your leadership & advocacy. #NICEcomms #PublishThatGuideline #StoptheHarm #meawarenesshour #pwme #longcovid
Too many of us survived viruses but still lost our lives. Good governance could be helping, but instead is stalling. We must advance the evidence-backed guidelines to #StopTheHarm @NICEComms #PublishThatGuideline
Almost 30 years of my life lost to ME. Lost confidence, social life, ability to exercise, ability to travel, working is beyond difficult, left to cope following CBT and GET, neither helped. #pwme deserve more. #nicecomms #publishthatguideline #protestnice4me #MyalgicE
Trial by Error: Dr. David Tuller sends an updated letter to NICE that is signed by 150+ experts and 100+ UK and international charities. #MECFS @NICEcomms
https://t.co/3sSAI3bpzP
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