Top Tweets for #NotJustTTTS
Thank you to everyone who shared their story, joined our webinar, or supported International TAPS Day. Your involvement means so much! Next year, we’re forming a committee for the theme. Reach out if you’d like to join. Advocacy is a 365-day commitment.#NotJustTTTS
Pregnancy with TTTS and TAPS brings impossible choices. At 24 weeks, we had to let Rosie go to give Poppy a chance. She was born at 27 weeks, tiny but strong, while Rosie was born silent and still.
https://t.co/6lSbBTlHUl
#NotJustTTTS @footprintsbl
Abby’s story: We couldn’t confirm, but our MFM later said the girls likely had TAPS. Diagnosed with sIUGR, inpatient at 26 weeks, delivered at 28+4. 92 days in NICU.. #TAPSTwins #InternationalTAPSDay #TAPSDAY #ITD2025 #NotJustTTTS
Thanks for letting us talk about TAPS and why it’s still misunderstood. But we’re not done. March 3 is International TAPS Day, and this year we’re making one thing clear: TAPS is NOT TTTS.
Follow us & visit https://t.co/3g18V05QBv #NotJustTTTS @tapssupport
Diagnosing TAPS is not as simple as checking fluid levels like TTTS. Dr. Femke Slaghekke explains why MCA-PSV Doppler scans are essential for early detection. If you are expecting monochorionic twins, make sure you are getting the right scans.
#NotJustTTTS
What a day! International TAPS Day is ending, but the work isn’t over. TAPS isn’t just a mild form of TTTS,it’s a different disease with unique risks. Watch this video from @ramen_chmait showing TAPS twins in utero. Learn more: https://t.co/sIpYXwo5TE
#NotJustTTTS
On 3 March, International TAPS Day, we recognise the day this rare disease got a name, and this year, the theme is #NotJustTTTS: The Right Diagnosis Means Better Outcomes.
Today, we join TAPS Support and The Kaiden Paul Foundation to raise awareness of Twin Anemia
1/3
TAPS treatment varies, but no trial has ever compared options to find the best approach. The TAPS Trial is the first international study to do this, aiming to provide clearer guidance for the future.Learn more: https://t.co/SPkLjy3Bil #ITD2025 #NotJustTTTS
🌍Giornata della Sequenza di anemia-policitemia gemellare #TAPS
🩸il sangue non scorre in modo uniforme tra gemelli: uno diventa #anemico l'altro #policitemico
🤰#NotJustTTTS per distinguere la TAPS dalla #TTTS (Sindrome da trasfusione gemello-gemello)
🔎
https://t.co/A60k3NO60H
Thank you to @ProfAsmaKhalil , Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. The recording will be available soon via GEFOG.
For Stephanie Ernst’s talk and resources: https://t.co/Iq06Zcbu4k
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
TAPS Support is proud to support this International TAPS Day webinar on March 3, launching a week of awareness from March 2 to 9. Honored to see our founder and patron Thanks to @ProfAsmaKhalil for making this free.
#NotJustTTTS
Register here : https://t.co/NS9k6E2sW0
TAPS is a rare disease that is often misdiagnosed. Families face challenges due to a lack of awareness. Help raise awareness on March 3rd by contacting [email protected] or visiting https://t.co/hyxrmL5fBN to get involved.
#NotJustTTTS #TAPSDay #ITD2025 #TAPSawareness
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