Top Tweets for #NotRareNotFair
Isabella would have been 14 years old today. My heart aches for her family friends and community who knew and loved her. It’s time to stop thinking of childhood cancer as rare and fund better research.
#childhoodcancer
#fundtheresearch
#notrarenotfair
#forever10
My thoughts go to Isabella &her family. She should be turning 13 today, celebrating her coming teen years with her family & friends. Cancer stole her in the most cruel & unfair way. 💔💛💙🎗️
We have to make this a priority.
#ChildhoodCancer
#NotRareNotFair #BeAVoiceForChange
World Cancer Day - today should make a difference and a cure should be found but the truth is its just not on the cards. Our children deserve more! Strike that, our children deserve SOMETHING!! Nowhere near enough is put to brain cancer research in this country! #NotRareNotFair
#ChildhoodCancer twitter, can you help me share Gavin's story? @HappyQuailPress @JoeBaber1 @AmandaHaddock @mary_lckc @LisaWardspeakup @leezawilllshe @adamcresnick @Ellyn_Miller1 @kidsfirstDRC
#GavinsGuardians #DIPG #BrainChild03 #DefeatDIPG #CARTWarrior #EndDIPG #NotRareNotFair
#DIPG is a brutal, fatal pediatric brain tumor. Kids usually die within 11 mos. of diagnosis. @Seattlechildren has pioneered an immunotherapy that delivers #CARTcells directly into the brain. Gavin, diagnosed 21 mos. ago, rec'd his 32nd CAR-T infusion today! #HOPE #VitanzaLab
Day 25 #ChildhoodCancerAwarenessMonth. Heading back to DC to place shoes for Isabella to honor her life and legacy. We need our elected officials and fellow citizens to see this disease is #NotRareNotFair
Day 12 #ChildhoodCancerAwarenessMonth
Childhood cancer is often detected too late because parents and healthcare providers do not have sufficient awareness of the warning signs. 😔🎗
#NotRareNotFair #worthmorethan4
Day 4 #ChildhoodCancerAwarenessMonth & 4% is all the NIH allocates for research. Why? Because it’s considered ‘rare’ that’s how they justify pushing kids to the back burner. That won’t change until we as a nation stand up for kids fighting cancer. #worthmorethan4 #NotRareNotFair
Finished up for tomorrow’s visit with the grand girls. 💭of the families whose pain of loosing their child or watching their babies fighting for their lives make days like this so damn hard. We see you, we will fight with you to make #ChildhoodCancer a priority! #NotRareNotFair
Think of these families who’ve lost a child every single day. 💔 We MUST do better! #ChildhoodCancer #childloss #NotRareNotFair 💛🎗
“You don’t just lose someone once. You lose them every day. Over & Over again… For the rest of your life.
Please check and see if your Rep is supporting this bill and if not, ask them to. This could mean millions of non taxpayers $ for #ChildhoodCancer research that currently only gets 4% vs 96% for adults. #kidslivesmatter
#Morethan4
#NotRareNotFair
The Gabriella Miller Kids First Act 2.0 could be a huge increase to help develop more effective drugs for #ChildhoodCancer. Does your Congress Representative support the bill? Check here and if they have not yet cosponsored, ask them to get on board: https://t.co/zeRr9m1M2I
It’s called discrimination! And it is being done to the most vulnerable among us! FOR DECADES! Where is the outcry for them? How can this type of discrimination just be accepted?Where are all the adults/celebrities/freedom fighters/equality advocates?#LetsGetLoud #NotRareNotFair
@2StefanMoore It’s blatant discrimination just don’t know why people are not as outraged! #NotRareNotFair
@HappyQuailPress 3 of which were secondary due to aggressive treatments 😔 We must demand better treatments on a national level. They are all our children💛🎗#NotRareNotFair
#Morethan4
#CancelChildhoodCancer
Sad but true in many "rare" pediatric cancers.
#DIPGReality #DIPGawareness #DIPGResearch #DIPGFunding #DIPGFundraising #EndDIPG #DIPGSucks #DefeatDIPG #DIPG #dipgfighter #dipgfighters #DIPGWontWait #dipgangels #dipgwarrior #dipgwarriors #dipgangel #NotRareNotFair
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