Top Tweets for #PCPLD21
Find @PCPLDnetwork or #PCPLD #PCPLD21 for live tweet of today’s conference. It was excellent, so many great initiatives, research and innovation, and passionate speakers. Thank you to all!
A very warm welcome to PCPLD Annual Conference 2021, from Chair of our Network @gemma_allen1 and conference Chairs @TuffreyWijne and Peter Allum!
Don’t forget to tag us in your tweets and post questions in the live chat box. #PCPLD #PCPLD21
Fantastic panel discussion at #PCPLD21 Conference. Learning Disabilities, & talking about wishes, preferences and advance care planning openly. Supportive and individualised. Thank you all!@PCPLDnetwork @TuffreyWijne @BywNawr @talkolderpeople @drkathrynmannix
‘Am I dying, doctor?’
Listening to @drkathrynmannix share her personal experience as a junior doctor and the guilt that she continues to feel 30 years later for not answering this question asked by a dying patient.
#Listen #TenderConversations #PCPLD #PCPLD21
We are absolutely delighted to welcome @drkathrynmannix to #PCPLD21 with a special publication day treat for us all, talking about ‘Listen’ and tender conversations.
Purchase a copy of Listen here: https://t.co/XRiza1kqXI
#Listen #PCPLD
Welcome again to @SueMarsden6
Sue will be sharing findings from a pilot study that explored the perspective of paid carers in residential homes and how they support people with intellectual disabilities.
#PCPLD #PCPLD21
Initial feedback from staff training delivered by the team. People with learning disabilities are supported to evaluate the Dying to Talk Project by MacIntyre staff and we look forward to following the progress of this project.
#PCPLD #PCPLD21 @_sarahswindells
There are six overarching aims of the Dying to Talk Project. The project is supported by external consultants and will help people that MacIntyre support, staff, circles of support and the wider community.
@_sarahswindells #PCPLD #PCPLD21
The postural care assessment can be uploaded to @MyWishesApp within the advance care plan section. In addition to a pdf assessment, videos can be uploaded and included for better guidance.
#digital #mywishes @JamesNorris #PCPLD #PCPLD21
Often postural care information in paper form is lost when a person is admitted to hospital, so how can this information be accessed in a digital and timely manner?
#PCPLD #PCPLD21 @JamesNorris
Next up is @JamesNorris from @MyWishesApp who is sharing with #PCPLD the digital postural care assessment.
#PCPLD21 #PCPLD
In relation to death and dying, The West Of England Learning Disabilities Collaborative have supported the implementation of ReSPECT across the South of England.
@LouiseG137 #PCPLD #PCPLD21
@LouiseG137 explains how the West of England Learning Disabilities Collaborative was established in response to #LeDeR with three initial key priorities. #PCPLD #PCPLD21
It is important to record in advance health passports and emergency health plans and review these regularly.
We must ensure that we provide safe spaces and moments for listening and explore what is important and matters most to each individual.
#PCPLD #PCPLD21 @ElversonJo
‘When health is uncertain, we struggle.’
How can we better support young persons with transition? Who do we involve? When is the best time? What sources of support do adult health teams require?
#PCPLD #PCPLD21 @ElversonJo
‘It’s not about shutting the door on the parent.”
@ElversonJo explains how we recognise the parental role and involvement, particular when the person has complex needs.
#PCPLD #PCPLD21 #transition
@ElversonJo explains that the decisions someone may make in their early teenage years may be completely different to a decision made in early 20’s.
How does this differ for people with learning disabilities?
#PCPLD #PCPLD21
Key point: transition isn’t a quick process, it takes time with stages along the way that requires flexible systems and services. Support must be individual and personalised, with goals discussed and recognised.
@ElversonJo
#PCPLD #PCPLD21
We are delighted to welcome our afternoon plenary speaker @ElversonJo with ‘Hello-Goodbye! Getting the best out of transition to adult health services.
What does transition mean and how do we make sure that the right voices are heard?
@stoswaldsuk #CHIPS #PCPLD #PCPLD21
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