Top Tweets for #PDCD
Our thoughts are with PGA golfer Akshay Bhatia, who dedicated his win to his niece Mia, who passed away from Pyruvate Dehydrogenase Complex Deficiency. Stories like Mia's are why it’s critical the @US_FDA move forward for DCA for the #PDCD community. @hopeforpdcd @Russ_Steinberg
PGA Tour golfer Akshay Bhatia had his late niece, Mia, on his mind when he won his first tour event in two years on Sunday, March 8, at the Arnold Palmer Invitational in Bay Hill, Florida. https://t.co/D9bah5nVWG
Professional golfer and @PGATOUR winner #AkshayBhatia dedicated his win to his late niece, Mia, who passed away from the rare metabolic disorder pyruvate dehydrogenase complex deficiency (#PDCD). Congratulations, Akshay! Thanks for representing rare.
https://t.co/nCcRUfMS7t #golf
While Harlow has time–for now–the Higbees are asking for the FDA to act quickly.
#lawenforcement #news #fda #pdcd #carbohydrates
https://t.co/QLaImp1B74
On #PDCDAwareness Day, it’s important to note there are no FDA-approved treatments for the #mitochondrialdisease, Pyruvate Dehydrogenase Complex Deficiency (#PDCD). Ask Congress to encourage @US_FDA flexibility for #rare disease therapies. #ApproveDCA
Act: https://t.co/oMgWpu3HLS
One of my favorite @SOAPHQ sessions at #SOAPAM2025
SOAP Research Symposium
Kick off with @Ron_George with our 🧠 trust
One of the 1st projects from #SOAPAM2022 now published @Stanford_obanes on #PDCD intraoperative pain during cesarean delivery @PervezSultanMD @Jamesocarroll
Join @MitoAction this Friday, November 1 for an Expert Series on #PDCD with Dr. Jirair Bedoyan. Dr. Bedoyan will present the essentials for understanding pyruvate dehydrogenase complex deficiency and detail current clinical trials and therapeutics research for this disorder at @ChildrensPgh. Register below! https://t.co/CT2sQVdXhg
Exciting announcement! We have joined together with @hopeforpdcd to have both of our registries on the @SanfordCoRDS platform, ease the burden for 25-35% of patients who have both Leigh syndrome and PDCD and get better quality data!
https://t.co/8AO5aeRLiu
#leighsyndrome #pdcd
Our @ColumbiaObAnes study on pain during cesarean delivery #PDCD published in @AccpmJ
🙏🏻 @SusannaStanford
✅ 11.5% reported #PDCD
✅ 15.1% received IV analgesic medication (31% received IV adjuvants)
✅ Not all in pain received IV analgesics …
https://t.co/xRAb6YwvRI
Discover the inspiring tale of Annie and Wyett in our latest blog post, 'Community Spotlight.'
Their journey navigating Pyruvate Dehydrogenase Complex Deficiency (PDCD) is one of courage and determination.
#CommunitySpotlight #PDCD #Genechat 💙✨
https://t.co/rhTq8ZNjV3
En el #cribado #neonatal Los cocientes Ala/Lys ≥3 y Ala/Leu ≥5, así como (Ala + Pro)/(Leu + Lys) ≥2,5 y Ala/Leu ≥5,0, identificaron a #pacientes con déficit de #piruvato dehidrogenasa #PDCD con 100 % de Sensibilidad y ~85 % de especificidad @Aecom_EIM @inbornerrors
Join us in raising awareness for Pyruvate Dehydrogenase Complex Deficiency (PDCD) 🌟
This month, in honor of World Mitochondrial Disease Week, we're focusing on PDCD in our latest #ShareForRare blog.
Together, we can make a difference! 💙 #MitochondriaWeek #PDCD #RareDisease
We want to say a huge THANK YOU to the Cherokee Trail basketball team who raised over $1600 for PDCD research! It means so much to all our families to know that there are so many people willing to give their time and money to support us!! 🏀😊 #WeAreCT #pdcd #pdcdresearchfund❤️
Inspired by @Sawatarix i made my first #alteration placeholder proxy for my old #MTGLegacy deck.
#PDCD #MTG
#Diagnostic_Communautaire_PDCD
Ce Jeudi 29 Décembre 2022, Mme le Maire Khadija Mahécor Diouf et le Comité Technique de Pilotage du #PDCD se sont déployés dans les quartiers de la Zone 3 - Cités (Douane, Atepa, Dalal Diam, Station 10) pour continuer le diagnostic communautaire.
Enrollment Completed for Phase 3 Pyruvate Dehydrogenase Complex Deficiency (PDCD) Clinical Trial https://t.co/jxm1bV0b6X #PyruvateDehydrogenaseComplexDeficiency #PyruvateDehydrogenaseDeficiency #PDCD #RareDisease
🎓Compartimos el enlace para acceder a la primera charla de formación para familias:
📅Martes 13 de diciembre de 2022
⏰️Horario de 17 a 18h de la tarde
🔗Acceso a través de Teams: https://t.co/5sfh1WAvGM
@educacyl #secontic #PDCD @cfievalladolid @CDE_Valladolid #ComDidEdu
Enjoy this #EatButterGiveButter challenge video and help fund PDCD Research.
https://t.co/ybGbhQOjZn
@hopeforpdcd
#pdcd
Ordering holiday cards soon? 🎄🎁
Enjoy 20% off Minted stationery & custom gifts all year long & Minted will donate 15% of each purchase back to Hope for PDCD! Use code FUNDRAISEPDCD @ checkout.
#holidaycard #greetingcard #stationery #minted #pdcd #hopeforpdcd
A friend is trying to save her daughter.
Please share and consider donating.
https://t.co/KBkXBVgox0
#pdcd #hopeforpdcd
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