Top Tweets for #PHWeek21
And that's a wrap! Thank you to everyone who has helped make #PHWeek21 such a success. By sharing your stories, sharing our social media posts, taking on challenges - and so much more - you've played a valuable part in raising awareness of this disease. You're amazing π§‘π
π½οΈ We're rounding off #PHWeek21 with a special film for those newly diagnosed with #PulmonaryHypertension. Whilst filming our awareness videos, we asked PHA UK members what advice they would give, from their own lived experiences: https://t.co/TKcQCl8Cz6
#HearOurVoices
π ββ ππππ - π½ππππ π»ππͺ π
Having a condition like Pulmonary Hypertension makes life very difficult! Here are 4 important points to take with youβ¦
INVISIBLE, INCURABLE, MISUNDERSTOOD & PHIGHTERS - read why at https://t.co/3Y5XWd1DNM @PHA_UK #PHWeek21 #HearOurVoices
Ros Knight lives in Hertfordshire and was diagnosed with chronic thromboembolic pulmonary hypertension (CTEPH) in 2016. After a difficult journey, the 50-year-old is sharing her story to raise awareness and encourage understanding: https://t.co/WHYyTLxdUw
#PHWeek21 #HearOurVoices
We are dedicating this fifth day of #PHWeek21 to all the amazing children in our PH community π§‘
We're kicking things off with this blog from mum Andrea Hampshire, who writes openly and honestly about inspirational Abbie: https://t.co/aqVtmKuT3f
#LittlePHighters #HearOurVoices
π ββ ππππ - π»ππͺ π π
Pulmonary hypertension (PH) is a general βumbrella termβ used to describe high blood pressure in the lungs from any cause. There are 5 different types of PH, learn more here: https://t.co/dQUSju4yVv π« #PHWeek21 #HearOurVoices @PHA_UK
Could this be our youngest #PHWeek21 supporter? π Little Loretta is raising awareness with her mum Danielle, who has #PulmonaryHypertension.
π½οΈ Lou Chadburn has had husband Tony by her side ever since she was diagnosed with Chronic Thromboembolic Pulmonary Hypertension (CTEPH). They spoke to us to share their experiences for #PHWeek21: https://t.co/55UKqE0udY
#HearOurVoices
Last days of #PHWeek21. The team at Hammersmith lead by @HelpMyBreathing,Gulam, Rachael & Francesco have been incredible over the years 4 me. I was blessed in June 21 to be given the gift of life by a donor. To all those that suffer in silence. Never give up!#AlwaysALittleFurther
Please watch the video and retweet to help raise awareness.
#PHWeek21
#PulmonaryHypertensionAwareness
#RareButThere
#HearOurVoices
@LarchwoodPS
Pulmonary hypertension (PH) is rare, serious and misunderstood. It is NOT high blood pressure. Please share to help us spread the word and encourage awareness of this challenging disease.
#PHWeek21 #HearOurVoices #PulmonaryHypertension #PH
Shelley Higham was diagnosed with PH at the end of 2019 and she is still trying to get her head around the complex disease.
Here, the mother-of-two from Lancashire reflects on her diagnosis in support of #PHWeek21: https://t.co/F3a8psmFqm
#HearOurVoices
Pulmonary hypertension (PH) is rare, serious and misunderstood. It is NOT high blood pressure. Please share to help us spread the word and encourage awareness of this challenging disease.
#PHWeek21 #HearOurVoices #PulmonaryHypertension #PH
π ββ ππππ - π»ππͺ π π
The hospital trips, doctors apts, caring at home - sorting meds, etcβ¦ Being a carer to a PHβer can be a full time job, & most are UNPAID! Read Terryβs blog βTogether, we can do this.β https://t.co/JV2qIw5qzD π #PHWeek21 #HearOurVoices @PHA_UK
π½οΈLIVING WITH AN INVISIBLE ILLNESS: Although Kevin McAllister has PH, to look at him, you wouldnβt know there was anything wrong. He shares his experiences of life with a hidden disability β and why he is campaigning for change: https://t.co/zSGV94ErM6
#PHWeek21 #HearOurVoices
Carol Duffus was told she had pulmonary hypertension in 2016, eight years after being diagnosed with a connective tissue disorder.
In this blog for #PHWeek21, she shares her experiences of life with chronic health conditions: https://t.co/wdsnTQNgmq
#HearOurVoices
If you live in the North West, tune into @BBCLancashire at 5.20pm this evening to hear our Chair Iain Armstrong and PHA UK member Shelley talk about #PHWeek21 - and why we need to raise awareness of #PulmonaryHypertension π»
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