Top Tweets for #RareButThere
Listen as I share my story with Ocular Melanoma. 🖤💙
#OcularMelanoma
#OMWarrior
#BlindAndBrave
#RareButThere
🎙️ New Episode Alert: Eye Believe Podcast
Blind Before the Diagnosis: Ashley Morgan’s Extraordinary Journey with Ocular Melanoma
🎧 https://t.co/3QHZzm3A6E
Meet Ashley Morgan — a true rarity in the ocular melanoma community!
Neuroendocrine cervical cancer (NECC) is rare & aggressive, with limited treatment options at recurrence.
Honored to present our work on ipi/nivo in recurrent NECC at @WAGO_org.
Grateful to my mentor @LarissaAMeyerMD & our amazing team! #GynOnc #rarebutthere #Immunotherapy
Appendix cancer might be rare, but it’s real. This little-known cancer often goes unnoticed until it’s advanced, making awareness crucial. Let’s come together to spread knowledge, support those fighting, and encourage early detection.
#AppendixCancerAwareness #RareButThere
My Sister passed away from rare Small Cell Cervical Cancer in June 2014. I love these bracelets. #RareButThere #SCCC #LCCC #OvarianCancer
My daughter is raising money for Colorado Ovarian Cancer Alliance by selling bracelets. 100% of proceeds will go to @COCAorg and with every 5th bracelet sold she will send one to a survivor. $10
https://t.co/ejLRmy9Es2
#RareButThere
I suspect only a handful of clinicians will have encountered one of these!
A shifting ‘lateral shift’ … this is what I mentioned in the MSK clinical skills session @UoNPhysio … here it is for real 😮 👀👇
#Physio #PhysicalTherapy
First time in my career, I am seeing an alternating lateral shift, at patient's will. 30 Y, 8 yrs regular gym workout, 2 months H/O lateral shift. 5 Yr old frequent mild back pain. Saw this pt yesterday. Not interested in surgery. Any thoughts @marklaslett_NZ
A salient example of the importance of physical examination.
Observation 👀
+ Palpation
+ a few simple objective tests
= ID of a significant pathology requiring URGENT referral 🚨✅
#RareButThere #Physiotherapy #PhysicalTherapy #Basics
1) *With consent*, another example of rare but there pathology. HPC; 5/7 twisting mechanism of knee on a lorry, acute pain & ++ ⬇️ function so I r/v’ed urgent F2F. PmHx; hyperlipidaemia & T2DM.
Hx: 20yo 👩🏻 - Began exercising in the gym 3 weeks ago & now presents with pain & oedema in her right arm.
Venogram: Right subclavian compression, compromised venous return & blood refluxing up the neck.
Dx: Venous thoracic outlet syndrome 🧐
#FOAMed
1/2 Treat low back pain and prescribe #exercise or #physicalactivity ??
Consider the WHOLE patient … that includes the #aorta 👀👇
#BackPain and #AorticAneurysm may go hand in hand
#RareButThere #HolisticCare #ClinicalReasoning #VitalSigns
Good thing about us humans is that we have a choice of winning. Today we reflect on how to become winners by staying positive!
#huntingtonsdiseaseinafrica
#knowhd
#rarebutthere
#acureispossible
#mayishdawarenessmonth
We Can’t thank you enough for giving your precious time
to talk about Huntington’s disease to Clinicians at the Physicians conference in March. @DrJuzarHooker
#huntingtonsdiseaseinafrica
#knowhd
#rarebutthere
#acureispossible
#mayishdawarenessmonth
In a day and age where time is a precious commodity, we would like to thank all health care professionals in our community. Your time and expertise are highly appreciated.
#huntingtonsdiseaseinafrica
#hdinthewild
#knowhd
#rarebutthere
#showyourstripes
#mayishdawarenessmonth
As the disease affects different parts of the brain, it impacts movement, behaviour, and cognition. It becomes harder to walk, think, reason, swallow, and talk. There is currently no cure, but treatment can help with symptoms.
#LetsTalkAboutHD #HuntingtonsDisease #rarebutthere
Nice thread on arterial dissection in the cervical spine #VertebralArtery #CarotidArtery #Haemodynamics #RareButThere 👀👇
1) A 🧵 looking at Cervical Artery Dissection (CAD). A vascular pathology which is a differential for cervical pain that requires urgent consideration
Upper limb DVT
#RareButThere
A RIETE registry analysis of patients with upper extremity deep vein thrombosis and thoracic outlet syndrome https://t.co/I6kb39jcoe
Most people have never heard of #PulmonaryHypertension.
Today is #RareDiseaseDay so let's take the opportunity to help people understand more.
👀 Watch this short animation: https://t.co/LbHdTtqEXw
👩💻Read these stories: https://t.co/rkgluNeHhh
📢 RT and help spread the word
To donate, click the link in our bio or simply visit our website https://t.co/agMevrSKeO.
#rarebutthere💙
#shinethelight
#HuntingtonsDisease
Specialized diet changes will ensure that patients receive enough calories through balanced diets and are able to overcome eating limitations.
#LetsTalkAboutHD
#rarebutthere💙
Please watch the video and retweet to help raise awareness.
#PHWeek21
#PulmonaryHypertensionAwareness
#RareButThere
#HearOurVoices
@LarchwoodPS
Pulmonary hypertension (PH) is rare, serious and misunderstood. It is NOT high blood pressure. Please share to help us spread the word and encourage awareness of this challenging disease.
#PHWeek21 #HearOurVoices #PulmonaryHypertension #PH
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