Top Tweets for #PHweekChat
PH awareness. Physicians raising awareness. @teamphhope setting the standard! #TeamPHenomenalHopeUKIreland #PHWeek18 #PHWeekchat
Massive well done to all the riders from #TeamPHenomenalHope who have been cycling to raise awareness of #PulmonaryHypertension during #PHWeek18 #PHWeekchat #LetsTalkPH.
In case you missed it, you can also listen to Dr John Wort talking about PH here: https://t.co/qZAQ36mNgY
"PH can be very difficult to diagnose too, it’s often mistaken for other conditions such as asthma, it often takes a few years for a patient to be diagnosed properly. In my own case it took nearly fifteen years!"
Read this blog as part of #PHWeekchat
"PH can be very difficult to diagnose too, it’s often mistaken for other conditions such as asthma, it often takes a few years for a patient to be diagnosed properly. In my own case it took nearly fifteen years!"
Read this blog as part of #PHWeekchat
Pulmonary Hypertension Awareness Week 2018 my latest blog: https://t.co/pPUzQZaDJc via @KagGraham #PHAUK #PHweek18 #letstalkPH #pulmonaryhypertension #heartanddoublelungtransplant
Massive well done to all the riders from #TeamPHenomenalHope who have been cycling to raise awareness of #PulmonaryHypertension during #PHWeek18 #PHWeekchat #LetsTalkPH.
In case you missed it, you can also listen to Dr John Wort talking about PH here: https://t.co/qZAQ36mNgY
Thank you for hosting such an important chat! It was fun raising awareness through Twitter... Time to take my meds and for a spot of lunch with a view of Trevi Fountain! 🇮🇹 See you all back in the UK next week!! Together we will PHight for a cure!! 💜 #PHWeekChat
Thank your for being part of our special Twitter chat to celebrate #PHWeek18. Thanks to all our experts - both patients & professionals -and to everyone who got involved. We hope you enjoyed it! #PHWeekChat 👋
Thank your for being part of our special Twitter chat to celebrate #PHWeek18. Thanks to all our experts - both patients & professionals -and to everyone who got involved. We hope you enjoyed it! #PHWeekChat 👋
My advice: #pulmonaryhypertension does NOT have to take over your life. You have the support & back up of your PH specialists and the @PHA_UK, but it is up to you how you decide to live your life! Let PH live with you, not the other way round! 💜 #PHWeekChat #NoCureAlwaysHope
Our final question for everyone: If you could give just one piece of advice to someone with #pulmonaryhpertension, what would it be? #PHWeekChat
Advice for people affected by #pulmonaryhypertension from our director of membership support 👇#PHWeekchat
@wginsing @PHA_UK Do not use Dr Google, often the examples that throws up are worst case, out of date and don't describe you! #PHWeekchat
@PHA_UK Get good information so that you can understand your disease (and be able to explain it to others) #PHWeekChat
@wginsing @PHA_UK Do not use Dr Google, often the examples that throws up are worst case, out of date and don't describe you! #PHWeekchat
The majority of us have spent far too much time being messed around with local doctors who don't have a clue what is wrong with us! We need expert help once diagnosed with PH! #PHweekChat
PH is such a specified condition. Us PH'ers need to be looked after by specialists who know what they are talking about & have studied this condition. #PHWeekChat
92% of patients told us they think it’s better to travel to a specialist centre than be under the care of a non-PH specialist at a more local hospital. Why is it so important to protect PH services in the UK? #PHWeekChat
Our final question for everyone: If you could give just one piece of advice to someone with #pulmonaryhpertension, what would it be? #PHWeekChat
@PHA_UK Members are always telling us what a huge positive impact been seen at specialist centre has had on their lives. Knowing that everyone there understands the condition and that travelling for those expertise would never be an issue. #PHWeekchat #PHWeek18
@PHA_UK @ozboyz2010 @ValIrvine1 We are always very grateful to our patients who consent to take part in research - without you we wouldn't have many of the medications we can use today #PHWeekChat
92% of patients told us they think it’s better to travel to a specialist centre than be under the care of a non-PH specialist at a more local hospital. Why is it so important to protect PH services in the UK? #PHWeekChat
@PHA_UK Moderate intensity is the key - it's OK to be a bit out of breath, but not gasping! It's important to find a way of exercising that you enjoy and that you can fit in to your life. #PHweekchat
@PHA_UK Exercise doesn't change your PH, but it can make it easier to live with it. By being a bit fitter or a bit stronger, it could mean you can do more, or the things you do leave you less exhausted #PHweekchat
We've recently produced some videos to help with just this @maritess_mt - with the help of @CarolKeenPhysio. They'll be available soon via our new lifestyle website, launching before the end of the year 👍#PHWeekchat
@PHA_UK @CarolKeenPhysio My husband is very interested in this question. Ever since it was mentioned at the last PHA UK conference he is always making me do a little bit of physical activity, but I get too worried that I'll be too ill from doing any exercise!!
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