Top Tweets for #PKDCONnect
40 days left on the clock. Mark your calendars, folks! #bostonwalkforpkd #endPKD #bostonfamily #bostonweekends #kidney #kidneydisease #PKDConnect #charity

Join the Boston Walk for PKD along with 25 other states! From coast to coast, we’re raising funds for PKD research. Register now at https://t.co/UaE5OR4fxu.
Let's make a difference together on September 21, 2024!
#PKD #endPKD #kidneydiseas #PKDConnect #bostonwalkforPKD #bostonweekends #bostonfamily

#BostonWalkForPKD is 50 days away! Have you registered yet? Don’t miss out on a chance to make a difference. Sign up now at https://t.co/AWERCfcN15 #kidney #EndPKD #PKDAwareness #PKDconnect #kidneydisease #bostonweekend #bostonfamily #Communitysupport

Did you know that managing blood pressure can help slow the progression of #PKD? Stay informed and join us on Sep 21 in the fight against PKD. Register at https://t.co/cH6us4mePI #BostonWalkForPKD #kidneydisease #endPKD #CKD #Bostonfamily #PKDconnect #PKDcommunity #HealthAwareness #CommunitySupport #PKDAwareness

Research is crucial for finding a cure for #PKD. Your donations help fund vital studies. Sign up for #BostonWalkforPKD and/or donate: https://t.co/cH6us4mePI Every step counts! #bostonfamily #bostonweekend #endPKD #PKD #SupportPKDResearch #kidneydisease #kidney #PKDconnect #PKDcommunity #WalkForACure #bostonwalk

Symptoms of #PKD include high blood pressure, back pain, and frequent urinary tract infections. Early diagnosis is key! #EndPKD #kidneydisease #CKD #pkdcommunity #PKDCON #PKDCONnect #bostonwalkforPKD #KidneyCare #kidneyfoundation


The 1st full episode will be available in December!
👇Listen to the #podcast teaser - now available- and follow for future episode alerts!🔔
#PyruvateKinaseDeficiency #PKD #rarediseases #rareanemias #TIFPKdeficiency #haematology #TIFEducation #PKDConnect #PKDCommunity
Introducing Just Listen: Voices of PK Deficiency Podcast! Join us as we share patient and caregiver stories as well as the latest research, developments, and science from leaders in PK deficiency. Tune in: https://t.co/kJZEXO18H7 #PKdeficiency #KnowPKdeficiency

With our Peer Mentor Program, you'll be connected with someone in the PKD community who has been trained to provide support, guidance, and resources that will help you manage living with #PKD. #PKDConnect #endPKD https://t.co/Dffz5gMW0i
Have you checked out PKD Connect? Whether it's calling our HOPE line or being matched with a Peer Mentor, with PKD Connect you don't have to face PKD alone. What are you waiting for, see it for yourself now! https://t.co/H03tMPmeqp #PKDConnect #endPKD
If you're looking for information, resources or just a shoulder to lean on, check out PKD Connect. PKD Connect gives you the support to keep hope within reach. Learn more now! #PKDConnect https://t.co/H03tMPmeqp
#PKD diagnosis? Keep hope within reach by connecting with others who know firsthand what you’re going through. Visit the PKD Connect Center at https://t.co/DteBSOoknk. #PKDConnect #endPKD
Today is #PKDAwarenessDay. PKD is a hereditary disease, gravely affecting the kidney, leading to kidney failure. ✅ out the PKD infographics ⬇️ & visit the @PKDFoundation for more info. #endPKD #PKDConnect #CommunityofCare

For those impacted by PKD, our new #PKDConnect web portal keeps hope within reach. Learn more at https://t.co/DteBSOoknk. #endPKD

Do you have questions about #PKD? We have answers. Call the PKD HOPE line for information, resources or just a listening ear. Learn more about this new tool by clicking the link below! #PKDConnect
https://t.co/yVT2erZePP
Whether you're looking for information, resources or just a shoulder to lean on, #PKDConnect gives you the support to keep hope within reach. Learn more about the new resource center on the blog!
https://t.co/uxiSB6aUWy
#pkdfoundationConference #pkdconnect #pkdconnectconference #endpkd #endarpkd #endarpkdchf https://t.co/SVQcx4cbdf
8 months to go until #PKDConnect 2018! Never been to KC? Check out the fun things to do in the city: https://t.co/h7gsbEf04u @VisitKC

#PKDConnect 2020 host city voting time! We try to balance cost & "cool factor" for the national #PKD conference. Vote by 9/30.
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