Top Tweets for #PTENAwareness
๐ต On this #PTENAwarenessDay, we want to highlight the importance of coordinated care for patients with rare diseases. ๐ค๐ learn more here: https://t.co/PCQKgc3vKs
๐ช๐งฌ #PTENAwareness #RareDiseaseCare #PTENUKI #StrengthInUnity
๐ข Join us on #PTENAwareness Day in a critical mission! ๐
Be a part of our patient registry, helping to advance research and support for PTEN-related syndromes. Your data can make a difference. Together, we're stronger. ๐ช #PatientRegistry @ptenuki https://t.co/tRh1KuQlw2
๐ฌ๐ค @ptenuki are thrilled to announce our groundbreaking collab with the #PTEN Research Foundation! Together, we're on a mission to accelerate #research, drive #awareness, and make strides in the fight against PTEN-related syndromes. ๐ช #PTENAwareness https://t.co/tAx2vYRdZ1
๐ Each year, our #PTEN community eagerly anticipates our annual face-to-face #patient days. It's a time when we bond, share stories, and find strength in unity. It is a chance to come together to offer support for everyone's PTEN related journey. ๐ค โค๏ธ #PTENAwareness @ptenuki
๐ Exciting PTEN Awareness Day news! ๐
We've partnered with #Rareminds for specialised counselling services for #PTEN-affected individuals. ๐คโจ Reach out today for support. We're here to listen and assist. ๐ https://t.co/VnoxqaP3Gp
#PTENAwareness #CounselingSupport
๐ฌ๐ค @PTENUKI offer:
โ Patient Support: Guiding those with PTEN in the UK and Ireland.
โ Healthcare Advocacy: Boosting awareness in medicine and society.
โย Research: Backing PTEN Hamartoma Syndrome studies.
Together for a brighter future! #PTENAwareness #SupportResearch
๐โโ๏ธ๐โโ๏ธ PTEN UKI is forever grateful for the amazing runners who participated in the London Landmarks Half Marathon to raise money for us last month! ๐
๐
Read more here: https://t.co/RuYaj0VXe0 #LLHM #PTENawareness #LondonLandmarksHalfMarathon
The month of May is PTEN awareness month. โColton is one of the strongest little 4 year olds I know and he wakes up everyday with a smile on his face and he loves everyone he meets. I know this silly boy will conquer BIG things ๐๐ปโ - Coltonโs Mom
#ptenawareness #$104p10
To finish #RareDiseaseDay we would like to end on a message from our charity manager Kelly: https://t.co/4zBQOKclLq
To get involved visit our website @ptenuki
#RareDisease #HeredityCancer #RareCancer #PTENAwareness #PTEN #Cowdens #RDD2023
In #RareDisease information is so powerful, We're excited + proud to be supporting the *first ever* UK #PTEN #PatientRegistry, details : https://t.co/iQ1yhrpHGJ Hear more on the benefits of the registry: https://t.co/osqVgApCf5 #Hereditycancer #RareCancer #PTENAwareness @ptenuki
This #RareDiseaseDay we are keen to raise awareness about the conditions which can result from changes in the #PTEN gene.
Hear from our Medical Advisor Dr Katherine Lachlan talk about the conditions
#ptenawareness #PTEN #Cowdens #CareForRare #RareDiseaseDay2023 #RareDiseaseDay
Advocacy can be hard, but when you remember whatโs at stake the mountains seem more like mole hills. PTEN patients are ready for treatments. #ptenawareness #raredisease #hereditarycancer #ptengene #phts #cancergenetics #autism @PTENFoundation
Yesterday was #PTENAwareness Day 2022! What is #PTENSyndrome?
#PTEN #Hamartoma #Tumor syndrome (#PHTS) is a genetic disorder caused by a defect in a gene called PTEN. It is an umbrella term for a number of related syndromes, including #CowdenCyndrome,
@PTENFoundation
Today is National PTEN Awareness Day. Steven Jr was diagnosed with the rare genetic condition when he was a year old. While the condition is not ideal, you would be hard pressed to find a more funnier, happier, and sillier โnot soโ little boy. Love you buddy โค๏ธ #PTENAwareness
Earlier this year, we had a patient day where people from around the country had the opportunity to meet up and learn more about pten. This is something we hope to do regularly so please watch this video to learn more.
https://t.co/ylsalhhjbK
#ptenday #ptenawareness
Some of you may not know but on the 23rd of October, it is PTEN day. This is a great time to raise awareness and with just over three weeks until the date, what would you like to see? What do you think we can do to raise awareness?
#ptenday #ptenawareness
It's so important to share your voice! ๐
Please help this study by answering the questions here: https://t.co/JdGwTJuC53
#raredisease #Hereditycancer #rarecancersyndrome #ptenawareness #PTEN #Cowdens
Did you miss our Patient Day this month? See what we got up to here ... โฌ๏ธโฌ๏ธโฌ๏ธ
https://t.co/Q9lvb0gCa8
#RareDisease #ptenawareness #PTENUKI
We are delighted to announce Dr Katherine Lachlan MBChB FRCP
will be speaking at this year's Patient Day.
Sign up today to secure your place: https://t.co/HzAM2NP8PP
#raredisease #hereitarycancer #rarecancersyndrome #ptenawareness #PTEN #Cowdens
On #RareDiseaseDay2022 we are delighted that our #PTEN day is OPEN for registrations. Visit our website to sign up: https://t.co/HzAM2NP8PP
#raredisease #hereitarycancer #rarecancersyndrome #ptenawareness #PTEN #Cowdens
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