Top Tweets for #PVSAwareness
My 4 year old daughter with pulmonary vein stenosis turned 4 yesterday. This disease was universally fatal 15 years ago. Truly blessed with each day with her. #PVSawareness #CHDawareness @BostonChildrens
@walterfwiggins @BostonChildrens Walter, Best wishes for a speedy recovery for your daughter. Weโve spent quality time at the cardiac ICU at BCH with our youngest daughter. My empathy grew exponentially from our journey; my professional life grew in new ways. #CHD #gratitude #PVSawareness
This is fantastic! What an awesome sight! So impressed with @MontgomerDavid! #PVSawareness #CHDawareness #myhearthero
How do you say thank you when your heart is bursting with love...love u more @MontgomerDavid #bubbalovinit #myhearthero #blessed #littlethingsarebigthings #godsplan #montgomeryandhuntdizzle
Pulmonary vein stenosis is a very rare cardiac disease that was universally fatal 20 years ago. @BostonChildrens has pioneered novel treatments that have saved over 100 kids from this disease, including my daughter. #PVSawareness #chdawareness Help ๐
@NiluferA5 Please share Bellas story, she needs life saving heart surgery in Boston #bellatoboston https://t.co/dAVmPL7LRG
My heart goes out to this little girl in England and her family. Please help if you can. #PVSAwareness @BellaToBoston #BellaToBoston @BostonChildrens
This is the email Bellaโs parents have received today, Bellas only chance of survival is going to cost $300k. Is that the price of a childโs life these days? #bellatoboston
Great question, Scott. Pulmonary vein stenosis a rare pediatric cardiac disease that afflicted my son Ben who perished from it. My beautiful youngest daughter Caroline is 3.5 with PVS. #PVSawareness
@douglakemd What is PVS? That link is protected.
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