Top Tweets for #ParentProject
📺 Da Non Perdere! 📷Sintonizzatevi domani, 31 maggio, dalle 10:40 su Elisir Rai Tre per un'intervista speciale con @ElenaSemenzato e Alice Cadalora che parleranno di #BuySomeTime. Due mamme che hanno lottato con #ParentProject,@UILDMnazionale e @uniamofimronlus per Ataluren.

Exciting update from last week's Parent Project Class at Hybla Valley Elementary School! 🌟 Special thanks to the SROs from West Potomac High School and Sandburg Middle School for sharing valuable insights on school safety. Looking forward to more collaborations! #ParentProject

S našimi🤖prostory #NTK opouštíme jen výjimečně, ale jsou situace, kdy nás moc těší, že je můžeme vzít na výlet. Naši lektoři s nimi navštívili účastníky pobytu pro rodiny v rámci projektu #ParentProject, který se stará o pacienty se svalovou dystrofií. Děkujeme! #robotikaNTK

Con una lettera alla @EuropeanCommiss e a @EMA_News, le associazioni #ParentProject @UILDMnazionale e @uniamofimronlus chiedono di rivedere la decisione relativa al farmaco “Translarna” (Ataluren) per la #Distrofia Muscolare di #Duchenne https://t.co/PcudhqWU5e
for parents who have experience of social work interventions —
what could social work services CHANGE about how they operate which would have the biggest and most POSITIVE impact on families?
#parentproject
Parenting is hard but we can help! Let us help you with the manual the hospital should have given you. #ParentProject #BelieveInBessemer

Tutto pronto per il meeting territoriale di Lamezia terme! La mattinata si aprirà con una panoramica sulla gestione clinica della #Duchenne e #Becker Nel pomeriggio #parentproject e #centroace insieme per presentare il progetto supportato da #EnelCuoreOnlus di @EnelGroupIT


Parent Project! Orientation is next week via Zoom. Classes themselves will be in person at the Obama Learning Center. Wednesdays 6:30-9:00pm. Dinner and Child Care will be provided. #SMMUSD #Samohi #SantaMonicaHighSchool #SMPD #ParentProject

Very glad for this first experience together. Thanks #EACD2022 and #Barcelona for the amazing time
#Congress #PARENTproject
The perfect ending for a great and most of all interesting first real-life conference @EACD2022. It reminded me why we are doing what we are doing. #phdlife #CerebralPalsy #muscles

Kdyz je k tomu onko mimi jeste obdarene progresivni genetickou neurosvalovou chorobou a prichazi o cenne mesice kdy mu jeste funguji dobre svaly a mohli bychom mu pomoci s pohybovym zakladem.. Je to nad moje sily. Fakt. #dmd #hepatoblastom #parentproject
Congratulations to our Parent Project 2022 Graduates. We are so proud of your dedication and hard work. Our parents completed a 12-week course. They had homework, discussions and group activities. #ParentProject

The gene therapy session is starting at #confpp22 #parentproject @Parent_Project with @FilippoBuccella chairing. Too bad it is from a spaceship rather than in person. I have to say the food at home is not as good as the food in Rome (what a surprise!)

#apaperaday Today’s pick is on AAV gene therapy persistence for DMD published by Manini et al in @FrontiersIn Neurology. Selected because today the @Parent_Project #confpp22 #parentproject conference has a session on gene therapy. Doi 10.3389/neur.2021.814174 Yuzu preferred food

#apaperaday Duchenne themed due to #ppconf22 #parentproject @Parent_Project meeting. Got my note book ready so I can update the @TREAT_NMD Duchenne research overview. Today’s pick is on effects long term steroid use on heart and respiratory function doi 10.1002/mus27490

We are excited to engage with the #Duchenne muscular dystrophy community at @Parent_Project aps’ XIX International Conference. #DMD #parentproject.it
Poteva andare peggio?
Sì, poteva essere l'ennesima campagna di raccolta fondi per la ricerca a cui si rivolge uno sguardo veloce e compassionevole.
#Parentproject
https://t.co/O7nHTEPdGZ
Siete malati di mente, ve lo dico con tutto il cuore, state ridicolizzando, usando e manipolando persone disabili, chi ha realizzato questo osceno manifesto, è un psicolabile pericoloso essere ignobile.
#NoGreenPass #novax #speranzadimettiti #Speranza #parentproject


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