Top Tweets for #ParentsofPatients
This makes my heart so happy... my two favorite organizations @stjude @BerylInstitute teaming up to improve #ptexp!
What do you get when you mix a @BerylInstitute #GPFA #CPXP and the expert team at @stjude? A 13 year cancer survivor!!! #tocareishuman #POP #ParentsofPatients
New @BerylInstitute #PtExp Learning Bite - "Managing the Wait" ft. Diane McGarry w/ @StJude View the learning bite library: https://t.co/5P3Lr4GJy0
All my #ptexp peeps/tweeps are in this work for the love of others! My passion began with my #POP #parentsofpatients experience, but I switched careers so other moms wouldn’t go through the struggles I endured... I wanted better for other families #tocareishuman
Remote work is more than a job perk—for people with chronic illness, it’s life changing https://t.co/FcfZYr2jZE #ChronicIllness #Careers #Inclusion #RemoteWork
#POPs #ParentsofPatients are some of the most amazing super humans to walk this earth! I am continuously inspired by the #POPs I know personally and those I hear stories about! @PatronLau you and your family are beautiful and amazing!!! #unconditionallove #ExceptionalKids
He has Cerebral Palsy and wanted to skate board so his mom created this for him so that he could.
MY HEART 😭❤
Mother Of The Year
Just putting it out there!
At one point I was convinced the bad food at pediatric hospitals was a way to keep parents lethargic and unable to effectively advocate for their children. And you better not have any diet restrictions... might as well bring your own feeding tube lol!! #POP #parentsofpatients
I say this all the time!!!! Telling me what you can’t/couldn’t do or survive is NOT a compliment to a #POP #ParentsOfPatients!
I have 2 disabled sons 1 mildly & the other severely. People always say, "I just don't know how you do it." I know they mean well but I'm thinking, "Well, it's not like there's another alternative here. You just do it. What choice do you have?"#DisabledCompliments
Happy Mother’s Day to all the moms who will be spending the day at beside ... whether you are caring for a child or a parent! I hope you are feeling loved ❤️ 🌹 #POP #ParentsofPatients #PtExp #PtEngagement
I need everyone to go read this article that features my fellow #POP #ParentsOfPatients and #GPFAB member! #ptexp
So... I guess the invasiveness of this surgery threw his platelets off and when we did a CBC they were at 17. Yup... 17! Long story short he’s stuck in bed and in pain and I am completely exhausted. #POPchronicles #parentsofpatients #ihatebeinginpatient
When you’re a #POP with a family full of healthcare professionals... You don’t need webmd you just send a text message. #POP #parentsofpatients #ptexp #ptengagement #tribe
@ShereesePubHlth @MMSJennifer People say they would pay or do anything for their kids but when you are put in that situation and you can’t ...that’s a dark place to be as a parent. #hcldr #pop #parentsofpatients
T1. I used to fear that we might lose our daughter or that her childhood would be ruined by her health situation. Now that she’s so much better, my fear focuses more on her long-term scars (physical, psychological, etc.) #hcldr
Like @Nike ... #justdoit already! #ptexp #POP #ParentsOfPatients #pxtogether https://t.co/TA5rvlX9lN
It never seeks to amaze me the number of articles & research studies around communication, empathy, & compassion & their importance in healthcare, don’t we already know this? What does this say about us? And we got it now, please IMPLEMENT it. #health #healthcare #PtExp #PFCC
Having really mixed emotions today as we prepare to leave the hospital with a trach... feeling at a loss for words, distraught, scared, and worried. #POP #PtExp #ParentsOfPatients #caregiverPTSD
There are no words for nights like this... what seems like another failed surgery. There literally is not a word created by man that can articulate this physical or mental state. #POP #CAREGIVERPTSD #ParentsOfPatients #PtExp
Couldn’t agree more! Just shared at a meeting last week that cost transparency doesn’t help me as a #ParentsOfPatients if care is financially crippling and cost are traumatizing! #PtExp #POP #TraumaInformedCare https://t.co/Zm9uGxt5vI
Lee Woodruff mentioned the caregiver “What If Tape”... I hate the what if tape #caregiver #caregiverPTSD #POP #ParentsOfPatients #PX2018
Caregiving is hard and #caregiverPTSD is real! #PtExp #px2018 #POP #ParentsOfPatients https://t.co/qJf00Ex2b0
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