Top Tweets for #Patient18
Oh, for Pete's sake.
How could this possibly be 'news' to anybody? This is why we need mandatory reporting of diagnostic error. MDs "just treat dx'd patients" but are somehow unaware that this patient had being previously misdiagnosed?! 🤦♀️#patient18
.@MichaelsDebra lets us know that @DrugInfoAssn provides complementary memberships to patient organizations. #patient18
.@KB_Schroeder talks about the work she's done with the #Parkinsons community in terms of their Patient Advocates in Research program, being collaborators in research (incl clinical trials), and also helping recruit to clinical trials #patient18
This is a great example that shows powerfully how lived experience and professional experience are so different: living with a disease 24/7 brings unique experiences and insights to #research. #patient18
.@MBoudes says 'it's never too early to engage patients, but you need to make sure it's relevant.' #patient18 @imi_paradigm @eupatientsforum
heard repeatedly today at #patient18: "if you start #patient engagement early, it's not going to slow down your clinical development.' @BrayPatrickLake posits that it might be the contracts piece that is the biggest time sink
.@MBoudes emphasizes that we should stop getting hung up on 'representativeness' - there is no perfect way to get to all or necessarily the 'right' voices. '#Patientengagement is voluntary - we need to work with who we have - it's not perfect.' #patient18
#metrics change the conversation on #patientengagement from 'it's the right thing to do' to 'it's the right thing to do for my business' - @imi_paradigm @MBoudes #patient18
.@PublicHlthLwyr sharing great example of patient impact on #DrugDevelpment thru patient group working w/ @US_FDA to successfully introduce new primary endpoints most important to patients. #patient18 #patientengagement

today I shared about how @CeroniTina works with @clinicaltrialON on our Patient & Public Advisory Group and as a Board Member - bringing her very unique lived experience perspective to new places and people. Thank you for all you do, Tina! #patient18 #TalkClinicalTrials
If #patientengagement is your area of interest, take a look at the conversations taking place @DrugInfoAssn Measuring Impact in Patient-Centered Drug Development Conference Follow #patient18 #engage4health
Attending @DrugInfoAssn’s #Patient18 conference? Join @BrayPatrickLake as she looks at opportunities to better match timing of measurement to demonstrate the impact of #patientengagement across the full R&D lifecycle. #DCRIResearchTogether https://t.co/5f8bTn8rji

A bit of PARADIGM is on stage with @Roslyndoc from @pfizer, @nbrooke from @PFMDwithPatient (and also @TO_dpr) about applying metrics to #patientengagement in the product lifecycle, to improve both health and business outcomes.
@DrugInfoAssn #Patient18

Great point here that it would be great to understand how much #patientengagement done well up front in drug development saves in terms of time & $ later in the process. #patient18
@DrugInfoAssn again today. Will be presenting with @Roslyndoc and @TO_dpr- @PFMDwithPatient on metrics for #patientengagement in medicines development. Happy to recognise faces of people I like and are engaged to share the day with

am tweeting from #Patient18 @DrugInfoAssn again today. Will be presenting with @Roslyndoc and @nbrooke from @PFMDwithPatient on metrics for #patientengagement in medicines development cc @clinicaltrialON
@MichaelsDebra from @DrugInfoAssn opening the conference on Measuring impact in patient centered drug development. Two days to discuss and find solutions, because this will support the cultural change in medicines R&D.
#Patient18

@MichaelsDebra from @DrugInfoAssn opening the conference on Measuring impact in patient centered drug development. Two days to discuss and find solutions, because this will support the cultural change in medicines R&D.
#Patient18

going to share info on measuring #patientengagement activities soon including the fantastic tool that @julia_abelson and her team have built along with those from @PFMDwithPatient with @nbrooke and @Roslyndoc #Patient18
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