Top Tweets for #PatientPowered
Your Health, Your Data, Your Power!
Take ownership of your medical records with blockchain-based EHRs from Health ledger.
https://t.co/PRS824nP0o
#PatientPowered #Healthledger #BlockchainForGood #XodeHealth
World COPD Day Big Baton pass is a global event to raise awareness for #COPD I’m forming a team of patients to record their steps on this day. Do as much as you like. If you’d rather be on a bike than we can combined exercise hours.Who’s In?
#WorldCOPDDayBatonPass #PatientPowered
MiB Agents Ann Graham will be moderating this session on #PatientPowered research! Join us with your questions.
Everyone can do something to #MakeItBetter #Osteosarcoma #CountMeIn
Excited to present on our patient partnered research on osteosarcoma and leiomyosarcoma next month!!
So special to be with this crew evangelizing about #patientpowered #raredisease research and #drugrepurposing!
What an honor it was to talk with these incredible leaders about the extraordinary ways that patients are driving progress against #rarediseases at #SXSW! Huge thx @katiecouric @DavidFajgenbaum @bsw5020 @sabrevaya! #rareasone @_shemedia
The CHI team was lucky to spend time with our fellow grantees at the @CZIScience #RareAsOne meeting over the past two days. We were happy to share & so inspired by the fantastic work these #PatientPowered #RareDisease orgs are doing! Wonderful three years of collaboration!
@LowriSmith88 @ifan_e @RslewisSally @cpishias @DHCWales Well done @LowriSmith88 #PatientPowered #innovation
If you have #LymeDisease, please consider signing up for #MyLymeData #patient #registry - this #PatientLed and #PatientPowered resource run by @Lymenews @lymepolicywonk is providing important #data and #information about this complex disease.
Journey to #PatientActivated Rapid Response. @KettGeneral show pragmatic ways forward @HSJptsafety #PatientPowered
So excited about my first day @live_evergreen - looking forward to meeting new colleagues and focusing on making a difference to health and health outcomes #patientpowered #health
@Miss_AVP @hartsarahe @uhbtrust @mattinadakim And a example of missing out on available resources (relative) in an overstretched system. Family is part of the team #PatientPowered #safety
#MyLymeData is a patient-powered #Lyme disease research project. It was conceived by patients, is run by patients, and addresses the issues that patients care about. Enroll Today: #PatientPowered #Research https://t.co/UDOcQFh7a5
On a train to Cardiff. Presenting our patient passport app at @MWConnects @mediwales conference with @csubbe tomorrow. Come join us 😊 #PatientExperience #patientsafety #patientpowered #TuesdayMotivaton
Are you interested in participating in Lyme disease research? Join the #MyLymeData patient powered study to become part of the solution.
Enroll today: https://t.co/1n2DH2snEG #LymeDisease #BigData #PatientPowered #Research
Are you interested in participating in Lyme disease research? Join the #MyLymeData patient powered study to become part of the solution.
Enroll today: https://t.co/1n2DH2snEG #LymeDisease #BigData #PatientPowered #Research
@idiopathic about to present at @VBHCEurope #VBHCPrize2022 as PKB receives the Inspirational Award! Slides at https://t.co/Ny3OWS49Re
This week our team won in the @waleshack .We are creating a patient passport app to support patients with rare diseases /complex health conditions.If you are an interested patient or clinician please comment or DM. #patientsafety @csubbe @TomHowson7 #MedTwitter @BevanCommission
Really nice to see our #PatientPowered research to inform the public about #LymeDisease treatment. Together, we develop the data necessary to drive healthcare policy change. #StrongerTogether #MyLymeData
https://t.co/kZ3XFwIq5U via @NeighborNews
Happening now! @MRFCureOM annual Science meeting @SocietyMelanoma Huge presentation on the VISION registry - real world data through the application of research methodology visit https://t.co/DCb5g9EAJc help us lead the charge for a cure for #ocularmelanoma #patientpowered
Are you interested in participating in Lyme disease research? Join the #MyLymeData patient powered study to become part of the solution. Enroll today: https://t.co/AyTENxAnYH #LymeDisease #BigData #PatientPowered #Research
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