#Piqray - Twitter Hashtag

LAURA WILSON @looloo1983

over 2 years ago

After nothing but death threats since January. I finally got a friendly scan result yesterday. Breast tumour over 1cm smaller, liver and bone mets smaller or stable. Best Christmas present ever. #piqray #fulvestrant #mbc #fucancer

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Troubled Telomere @TTelomere

over 3 years ago

Auckland university study identifies drug that could increase #lifespan #cancer drug: #Piqray #longevity #health #healthcare #science #research #endcancer https://t.co/r9NK5cDkkq

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Deborah Lakeland (she/her/hers) @DeborahLakeland

almost 4 years ago

locally #advanced or #metastatic #breast #cancers & #tumour testing +ve for PIK3CA #variants under #clinical indication code M3 are eligible for #alpelisib #Piqray #BreastCancerAwarenessMonth @LancsHospitals @BlackpoolHosp @ELHT_NHS @UHMBT @HealthierLSC

NHS Genomic Medicine Service @NHSgms

almost 4 years ago

A new treatment, Alpelisib, that targets a gene mutation that causes a form of secondary breast cancer is now available on the NHS. @CSOsue highlights this as another example of how genomics is helping us target cancer on the genetic level. #BreastCancerAwarenessMonth

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PHARMAHUBNG

@pharmahub_NG

almost 4 years ago

Alpelisib, sold under the brand name #Piqray among others, is a medication used to treat certain types of #breastcancer. It is used together with fulvestrant. It is taken by mouth

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GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks

about 4 years ago

Taylor & Liz have experienced treatment with both medications as part of their care journey. This week's episode focuses on side effects experienced & their opinions on the treatment options https://t.co/SWwrCBT7YV https://t.co/xv8SeaBp67 #sirolimus #alpelisib #piqray #vijoice

GoPI3Ks's tweet photo. Taylor & Liz have experienced treatment with both medications as part of their care journey. This week's episode focuses on side effects experienced & their opinions on the treatment options

https://t.co/SWwrCBT7YV

https://t.co/xv8SeaBp67

#sirolimus #alpelisib #piqray #vijoice https://t.co/ZctFvBU8UZ

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Jo Taylor BEM @abcdiagnosis

about 4 years ago

METUPUK advocate Emma died in May & was key to providing evidence for #Piqray This is her legacy for other patients. Sad she couldn't access it to give her more time with her family. We'd like to point out that there're caveats with the drug that haven't been highlighted

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Abigail Johnston @AMJohnston1315

about 4 years ago

Check out @debsetu pointing to my name on the first poster author recognition for me as a patient advocate @ASCO!! Thankful to @NovartisCancer for the opportunity to help with looking at managing side effects of #piqray. #bcsm #asco22

AMJohnston1315's tweet photo. Check out @debsetu pointing to my name on the first poster author recognition for me as a patient advocate @ASCO!! Thankful to @NovartisCancer for the opportunity to help with looking at managing side effects of #piqray. #bcsm #asco22 https://t.co/AaRIt5qnjM

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Jen @JennySzabo10

over 4 years ago · Kansas

Still waiting on approval for my new med #Piqray . It's been 1 1/2 weeks. The doctor has had to appeal twice to the pharmacy. I've never been in this much pain. Ever!! Check your damn boobies and listen to your body! You don't want this. #breastcancer #bcsm #metastatic

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CDA-AMC @CDA_AMC

over 4 years ago

CADTH has issued a recommendation to not reimburse #alpelisib (#Piqray) for the treatment of advanced or metastatic breast cancer Read the full recommendation: https://t.co/VeAdjyRkPc

CDA_AMC's tweet photo. CADTH has issued a recommendation to not reimburse #alpelisib (#Piqray) for the treatment of advanced or metastatic breast cancer

Read the full recommendation: https://t.co/VeAdjyRkPc https://t.co/JG66PT4nIf

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Patient Worthy @PatientWorthy

over 4 years ago

Piqray Demonstrates Efficacy in HR+/HER2- Metastic Breast Cancer https://t.co/2CgIwrWCaU #piqray #breastcancer #metastaticbreastcancer #medicalresearch #alpelisib @NBCCStopBC

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Ilene Kaminsky @ilenealizah

almost 5 years ago

Today #paracentesis no. 8,431 I lost track. Going on #taxol off #piqray & need 4 outpatient surgery appointments between now & 12/8. Well bright side I can eat more stuff I like & I hold down carbs well. Downside 6 mo of IV chemo. #fuckcancer #metastaticbreastcancer #bcsm

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stacey aaronson @sbaaronson

about 5 years ago · Los Angeles

@silke4senate @ehgsmith @GRASPtweets #Piqray shit drug.

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Ilene Kaminsky @ilenealizah

over 5 years ago

#piqray is working & my oncologist is happy w/ progress. Each treatment for #metastaticbreastcancer is a crap shoot & I’m #grateful for my friends’ support - I never discount them fin living my best possible life - your love means so much to me. ❤️ #mbc #terminalcancer #bcsm

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𝕊𝕦𝕤𝕒𝕟 𝕄𝕖𝕝𝕚𝕒 @SueMel29

over 5 years ago · Wallingford

I would love to hear from anyone and everyone on how they are/were able to take #Piqray #Alpelisib safely and successfully. The PIK3CA (x3) is my nemesis and I would like to find a way to take it safely without a hospital stay.

𝕊𝕦𝕤𝕒𝕟 𝕄𝕖𝕝𝕚𝕒 @SueMel29

over 5 years ago · Wallingford

@ihatebreastcanc Such great news! Are you following a protocol to combat the side effects of this drug? I’m interested to see how people are taking it safely. At what dose and with or without Diabetes drugs and/or antihistamines. May it work for you for a very long time!

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Ilene Kaminsky @ilenealizah

over 5 years ago

#bcsm #metaststicbreastcancer #cancerversary number six - and a lot is at stake this year. I’m still #hopeful and still #grateful #stage4needsmore #terminalcancer #chemotherapy #mbc #piqray #taxol #genetics https://t.co/vRVhNL1yIE

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Ilene Kaminsky @ilenealizah

over 5 years ago

#lymphedma in my legs “spots” on liver, a dead lymph node. Starting #piqray and #fulvestrant again. Need another ascites drain. How my mutation was missed by the #genetics geniuses at Stanford I can’t imagine. #PIK3CA 40% of #lobular #breastcancer #fuckcancer I have to get

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