Top Tweets for #Pledge4RD
You would think 300, 000 people make #raredisease relevant for inclusion in discussions & debate on health re #GE2020 #rareisrelevant #pledge4RD
#Pledge4RD - Signs & symptoms of 70% of rare diseases appear exclusively in childhood. At least 4% of children are diagnosed with a #raredisease by age 17. #rarediseases are chronic, progressive, degenerative and often life-threatening.
I support #Pledge4RD to provide new born screening, accurate diagnosis and holistic care and support for the 300,000 Irish citizens living with a rare disease @RareDiseasesIE #GE2020
I support #Pledge4RD to implement the National Rare Disease Plan for Ireland & provide adequate genetic diagnosis and counselling services for the 300,000 Irish citizens living with a rare disease @RareDiseasesIE #GE2020
I support #Pledge4RD to implement the National Rare Disease Plan for Ireland & provide adequate genetic diagnosis and counselling services for the 300,000 Irish citizens living with a rare disease @RareDiseasesIE #GE2020
#Pledge4RD - Signs & symptoms of 70% of rare diseases appear exclusively in childhood. At least 4% of children are diagnosed with a #raredisease by age 17. #rarediseases are chronic, progressive, degenerative and often life-threatening.
#Pledge4RD show your support for the#raredisease community in Ireland
#GE2020 Candidates - 300,000 people live with a #raredisese in their lifetime in #Ireland that's 6% of population - #rareisrelevant the largest health constituency should not be excluded from debate! @RareDiseasesIE @eurordis @Lesmart11659095 @22Q11_Ireland @AlanFinglas1
I support #pledge4rd to provide new born screening, accurate diagnosis and holistic care & support for the 300,000 Irish citizens living with a rare disease @RareDiseasesIE @Lesmart11659095 #ge2020
72% of 6,000+ rare diseases are genetic in origin. A rare disease has implications for all the family, including grandparents, aunts, uncles, cousins, second cousins. We need investment in our genetic services #Pledge4RD #GE2020 https://t.co/xbHPJonYPQ
Super idea Kellie - our stories are the key to creating awareness and unlocking resources and support #rarediseaseirl #rarediseaseday #Pledge4RD #GE2020
Great to see this ambition and enthusiasm from the director of our national screening lab๐โฅ๏ธ @DonnellyStephen @SimonHarrisTD @johnbradysf our kids deserve the Best in the world! #pledge4rd @RareDiseasesIE
Wicklow (& all national) candidates please show your support for the forgotten rare disease community by pledging to help #pledge4rd #GE2020 @DonnellyStephen @SimonHarrisTD @johnbradysf @PatCaseyTD @ADoyleTD @greenparty_ie @SenDavidNorris @loreillysf @MaryLouMcDonald
Calling on all #GE2020 candidates to #Pledge4RD - support the 300,000 Irish citizens living with a rare disease.
https://t.co/xbHPJonYPQ @rareireland @IrelandSwan @IPPOSI @HRCIreland @LauraLynnHouse @JackandJillCF @EnableIreland
Calling on all #GE2020 candidates to #Pledge4RD - support the 300,000 Irish citizens living with a rare disease.
https://t.co/xbHPJonYPQ @rareireland @IrelandSwan @IPPOSI @HRCIreland @LauraLynnHouse @JackandJillCF @EnableIreland
Delighted to remind #GeneralElection2020 candidates canvassing this evening that there are approx 300,000 #raredisease patients living in Ireland, that's approx 75,000 in each constituency. Know your community 2020 candidates! #IndividuallyRare #CollectivelyCommon #Pledge4RD๐
Thank you to the 60+ MEPs & candidates from 13 countries across Europe who have supported the #Pledge4RD in the lead up to the #EUelections2019! We look forward to working together on improving the lives of the 30 million people living with a #raredisease in Europe!
Thank you to the 60+ MEPs & candidates from 13 countries across Europe who have supported the #Pledge4RD in the lead up to the #EUelections2019! We look forward to working together on improving the lives of the 30 million people living with a #raredisease in Europe!
Thank you @Frederiqueries and well done on your re-election! Looking forward to keep working with you: busy agenda for #rarediseases and your pilot project @rare2030 in coming years #pledge4RD #maladiesrares #rarediseases
Better late than never #pledge4rd entre deux activitรฉs de campagne, je soutiens bien sรปr la recherche pour les #maladiesrares ๐Cโรฉtait le but de mon projet pilote #Rare2030, un succรจs, maintenant bonne chance aux chercheurs !
Better late than never #pledge4rd entre deux activitรฉs de campagne, je soutiens bien sรปr la recherche pour les #maladiesrares ๐Cโรฉtait le but de mon projet pilote #Rare2030, un succรจs, maintenant bonne chance aux chercheurs !
.@Michelle_Muscat: โ14 MEP candidates pledge...โ
Purely co-incidentally Im sure, (a) all are @PL_Malta candidates & (b) @PL_Malta has fielded 14 candidates.
Imagine if NGOs were truly non-governmental & not abused of by politicians for cheap stunts & worse. #Pledge4RD
Thank you @danieleviotti for your #Pledge4RD in support of the 30 million people living with a rare disease in Europe. #EUelections2019
La prima: #Pledge4RD #EUelections2019 @eurordis @uniamofimronlus aderisco all'appello di Eurordis, rare diseases Europe, per garantire che i quasi 30 milioni di persone che vivono in Europa con una malattia rara possano godere di migliori soluzioni per la salute e il benessere.
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