Top Tweets for #ProfoundDisability
“450 adults with intellectual disabilities in Ireland are cared for by parents over 80 .. and cannot access residential support until their parents die.”
#Disability #BeforeWeDie #ProfoundDisability
https://t.co/uGnkVhhgrs
Senplay is a crucial space for children with SEND. They're facing a real threat to their future. Please consider donating to help keep their doors open. Every bit counts. Share this! https://t.co/pS1SgD9Fit #ActuallyAutistic #SEN #SEND #ProfoundDisability
This is important, there’s still a huge need to amplify the concerns and needs of profoundly disabled children and adults, and their carers
Please fill this in if you can
#Disability #ProfoundDisability
📢 Have Your Say!
Our 5-minute survey for families and supporters of adults with intellectual disabilities is LIVE!
Your input shapes our 2026 pre-budget submission & discussions with ministers.
Deadline: June 12th, 12 PM.
Fill it out here: https://t.co/mQL9G2oXQh
“Parents of children like my son often find ourselves having to ‘speak up’, also known as advocating. Our children are often forgotten about as they have no voice of their own, so parents like me have no choice but to be their voice”
#ProfoundDisability
My letter in @irishexaminer today in response to @itsthatgirlsuzi great article last week. #SpeakingUp #Obstreperous #TalkingBack #Advocating #Healthcare
@oconnellbrian @HSELive @CHI_Ireland @roinnslainte @CarrollJennifer @BernardGloster @OCO_ireland
https://t.co/TJ2Zq2GvqN
The annual poverty data for 2024 released by the Central Statistics Office (CSO) finds that Ireland significantly underestimates the poverty levels experienced by disabled households #disability #profounddisability
🚨New CSO & IHREC-ESRI data confirms:
📉1 in 5 disabled people live in consistent poverty
💰Extra costs reach €555/week – but supports fall short
Cost of Disability payment is in the Programme for Government—DFI will be monitoring.
Read our response: https://t.co/whxPFmPqNV
More waste from the state, when so many families with profoundly disabled loved ones are crying out desperately for respite
#disability #profounddisability #respite
With @AddressingLife
When Tracy McGinnis sold her adapted #Wexford home to the HSE following the passing of her son Brendan Bjorn, it was intended to be used for respite for other families with children with profound special needs. A year on though, it remains idle. Story 👇
https://t.co/7ksESuIta0
My thesis is out, people are reading it, and I didn't even know!
If you're curious it is free here: https://t.co/oXiCZQ5byw
#phdlife #phdstudent #InclusiveResearch #belonging #PMLD #PIMD #profounddisability @SouthCoastDTP @CRI_UoS @UoSDocCollege
‘My biggest fear has always been, “what if he dies?” … but these days it’s “what if I die (first)?”’
#ProfoundDisability
My beautiful boy Jack deserves the world. Our young adults with ID/ Autism fall off a cliff at age 18 here in Ireland. It’s so hard but you can only live one day at a time. @AnneRabbitte @OCO_ireland @DonnellyStephen @roinnslainte @welfare_ie @DepEducationIrl @HHumphreysFG
Interesting commentary here in relation to the #CareRef and some of it is especially relevant to families caring for profoundly disabled children and adults #ProfoundDisability
“the report finds that when compared to a household without a disability, the household caring for a child with a profound intellectual disability faces a greater depth of income inadequacy.” Via @CarersIreland #ProfoundDisability
https://t.co/Uk8JlD33zv
A place for Elliot
This podcast by @Saba_Salman explores the experience of Elliot’s family, and their efforts to keep him alive through the winter. #profounddisability #disability #autism
https://t.co/hfN0SnStPD
We hope to have our response to this very important report shortly #UNCRPD #disability #ProfoundDisability
Ireland’s first report to the United Nations Committee on the Rights of Persons with Disabilities has been published. The report describes what Ireland is doing to protect and enhance the rights of people with disabilities.
https://t.co/w2QkjYbnJJ #UNCRPD
#MidlandsHour Can anyone help or refer?
If you care for someone using wheelchair or living with profound disability, please click the link below to join our facebook group. We’d love to work with you!
https://t.co/Pz7iAnPQug
#disability #wheelchair #profounddisability
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