Top Tweets for #ProjectPRIORITY
THIS π¨ -> @jillfeldman4 depression is an issue in the real world. Significant numbers experience suicidal thoughts but it's not often talked about.
#ProjectPriority
#ESMOAmbassadors #ELCC25
Please watch this presentation from #ProjectPRIORITY in real world treatment trajectories of patient with #lungcancer. @EGFRResisters @LUNGevity @IASLC #lcsm
Watch this #WCLC21 Presentation by @ivybelkins on Treatment Patterns in Patients with EGFR Positive #LungCancer: A Real World Patient Report: https://t.co/eIKPrKJQLq #LCSM
Dr Lia Head from @RushCancer: #ProjectPRIORITY real world data led to her study of cancer related distress in patients with newly diagnosed oncogene driven #lungcancer. Notable that shorter PFS/OS appear to be associated with higher depression rates at the time of diagnosis #lcsm
#ProjectPRIORITY shows disparities in all LOT where guideline recommendations are not being prescribed for patients with #EGFR #lungcancer. Critical to get newer gen TKIs to patients because of improved time to progression and toxicity profiles. #WCLC21 #lcsm @OncoAlert @IASLC
So proud to be able to present #ProjectPRIORITY real world data on behalf of the @EGFRResisters & @LUNGevity. As a patient-driven group, we have members across institutions/countries that can report their actual treatment trajectories. #WCLC21 #lcsm #EGFR #lungcancer @OncoAlert
Don't miss the @IASLC #WCLC21 session coming up next at 9:15am CT on "Using Real World and Patient Reported Data to Identify Gaps and Needs." I will be presenting #ProjectPRIORITY data on real world treatment patterns in patients with #EGFR+ #lungcancer! #lcsm @EGFRResisters
Looking forward to speaking about patient advocacy & the @EGFRResisters work on #ProjectPRIORITY at #SONO2021! Join me on August 6-7 & learn how to optimize shared decision-making in the care of patients with cancer. Register now: https://t.co/cR2JEv436y #gotoSONO #gotoper #lcsm
Only βhealthierβ patients are in trials while #ProjectPRIORITY patients can have more comorbidities. Trial patients often under-report side effects to avoid being taken off trials as well. @EGFRResisters #lcsm #WCLC20 @OncoAlert
Anyone else a little blown away by this figure by @GoldmanLisa ? Just goes to show how important it is to hear the patient's voice as they see things very different. #WCLC20
I am honored to present this poster on Perception of Palliative Care & Prognostic Awareness in #EGFR #lungcancer on behalf of @EGFRResisters and @LUNGevity today, using data from #ProjectPRIORITY. #lcsm @OncoAlert @IASLC #WCLC20 @jillfeldman4 @lpetrillz
https://t.co/vNKIhNK9JN
Please watch this video to learn more about our @EGFRResisters & @LUNGevity poster on Perception of Palliative Care & Prognostic Awareness in #EGFR #lungcancer using data from #ProjectPRIORITY. #lcsm @IASLC #WCLC20 @lpetrillz @OncoAlert @jillfeldman4
https://t.co/8hPXiZtECP
Perception of Palliative care & Prognostic Awareness in #EGFR #NSCLC from Project PRIORITY, a collaborative research study between @EGFRResisters & @LUNGevity @ivybelkins @lpetrillz #LCSM #WCLC20 @OncoAlert
Very honored to present more data from #ProjectPRIORITY, our collaborative research study with @LUNGevity on the lived experience of #EGFR #lungcancer dx. How patients view Communication w/physicians & Supportive/Palliative care. #WCLC20 #LCSM @EGFRResisters
@EGFRResisters co-founders @jillfeldman4 & I are honored to have oral, mini-oral & poster presentations at @IASLC #WCLC20. You can register for this virtual conference (Jan 28-31) at https://t.co/xX3s2vQycF. Registration is free for all #lungcancer survivors/caregivers. #lcsm
@ivybelkins talks about @EGFRResisters collaborative study with @LUNGevity on #ProjectPriority to understand the lived experience of EGFR lung cancer.
#NACLC20 #LCSM
@jillfeldman4 of @EGFRResisters: compares #ProjectPRIORITY data on how patients feel their oncs understand them/answer their questions with results of a Twitter poll of oncs on how they believe they do. Differing results clearly show the disconnect. #ASCO20 #lcsm @OncoAlert
The importance of RWD! Look at the diff in AE data from the FLAURA trial vs real-world data from #ProjectPRIORITY. RWD must complement existing research & clinical data to truly understand the lived experience. @LUNGevity @EGFRResisters @FDAOncology #OCEOutcomes20 #LCSM
@FDAOncology #OCEOutcomes20 Real world fatigue on Project Priority ~4x higher than on FLAURA. We need to see #PRO AEs from clinical trials- hence #Projectpatientvoice @JFreemanDaily @livinglife82
Side effects of tx captured in clinical trials may vary greatly from those reported through real world patient data. Look at these differences between FLAURA trial data and #ProjectPRIORITY data! #lcsm @EGFRResisters @LUNGevity #OCEOutcomes20 @FDAOncology #ProjectPatientVoice
@FDAOncology #OCEOutcomes20 Real world fatigue on Project Priority ~4x higher than on FLAURA. We need to see #PRO AEs from clinical trials- hence #Projectpatientvoice @JFreemanDaily @livinglife82
Join us tomorrow night, 12/11 at 8pm ET to learn more about #ProjectPRIORITY Everyone is welcome, please Register below #LCSM @LUNGevity @EGFRResisters @EGFRSummit
We are hosting a community webinar to share our #ProjectPRIORITY data TOMORROW, December 11th at 8pm ET
Please sign up here to participate and learn more about our project with @LUNGevity https://t.co/2YvMuyDlKi #LCSM
Join us tomorrow night, December 11th at 8pm ET to learn more about #ProjectPRIORITY! Everyone is welcome β please sign up below! #lcsm #lungcancer @EGFRResisters @LUNGevity
We are hosting a community webinar to share our #ProjectPRIORITY data TOMORROW, December 11th at 8pm ET
Please sign up here to participate and learn more about our project with @LUNGevity https://t.co/2YvMuyDlKi #LCSM
We are hosting a community webinar to share our #ProjectPRIORITY data TOMORROW, December 11th at 8pm ET
Please sign up here to participate and learn more about our project with @LUNGevity https://t.co/2YvMuyDlKi #LCSM
Please support the @EGFRResisters in fundraising for a novel #EGFR #lungcancer research project w/@LUNGevity to address important patient needs uncovered through #ProjectPRIORITY! We need to raise $200,000 to support a researcher for 2 years! #lcsm
On #GivingTuesday, we raised $8,733 for a new research collaboration w/@LUNGevity! PLEASE continue to support efforts to create a patient-driven, investigator-led #EGFR research project. Our anonymous donor will MATCH ALL DONATIONS THRU END OF 2019! #lcsm https://t.co/EDtBDLbo1M
@EGFRResisters Founders Ivy, Jill & Ildi are thrilled to launch the Inaugural EGFR Research Summit Friday in Chicago! Weβll share #ProjectPRIORITY findings with investigators & learn about exciting advances in EGFR lung cancer. Stay tuned for live interviews from #EGFRSummit19!
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