Top Tweets for #ProjectPearl
A great stand hosted by our mitochondrial team @MitoResearch for mitochondrial awareness week 👏 #projectpearl
Thank you @NI_RDP for the opportunity to raise awareness of #mitochondrialdisease & the importance of #mitoresearch with MLAs at the Northern Ireland APG for Rare Disease 💚To find out more, see below 👇🏻#projectpearl #StrongerTogether
@NI_RDP @CystinosisIrl Thanks to @NI_RDP & all the MLA's who are supporting the #raredisease community💚Please share the infographic below & help us raise awareness of #mitochondrialdisease for the benefit of the whole community #projectpearl
Incredibly grateful to @NI_RDP for the opportunity to raise awareness of #mitochondrialdisease & our #projectpearl campaign with the Northern Ireland APG for #RareDisease. Thank you also to the MLAs who joined us💚@niassembly @MarkHDurkan @RobbieButlerMLA @PolicyNCL
Brilliant talk by Nick Meade at #RareShowcase23 in #London today! Nick covered the future of #raredisease advocacy in UK parliaments & highlighted rare disease champions, including @LizTwistMP who continues to support our community to raise #mitoawareness 💚#projectpearl
A year on from our parliamentary event, we would like to thank @CPJElmore for joining us to find out more about #mitochondrialdisease & help raise the profile of #mitoresearch for the benefit of the whole community💚#projectpearl #RareAPPG #StrongerTogether
A year on from our parliamentary event, we would like to thank @FeryalClark for joining us to find out more about #mitochondrialdisease & help raise the profile of #mitoresearch for the benefit of the whole community💚#projectpearl #RareAPPG #StrongerTogether
A year on from our parliamentary event, we would like to thank @CatherineWest1 for joining us to find out more about #mitochondrialdisease & helping raise the profile of #mitoresearch for the benefit of the whole community💚#projectpearl #MitoAwareness #StrongerTogether #RareAPPG
A year on from our parliamentary event, we would like to thank @MarkTamiMP for joining us to find out more about #mitochondrialdisease & helping raise the profile of #mitoresearch for the benefit of the whole community💚#projectpearl #MitoAwareness #StrongerTogether #RareAPPG
A year on from our parliamentary event, we would like to thank @VirendraSharma for joining us to find out more about #mitochondrialdisease & help raise the profile of #mitoresearch for the benefit of the whole community💚#projectpearl #RareAPPG #StrongerTogether
I support MITO research. Please share & help raise awareness of mitochondrial disease for the whole mito community #projectpearl @ChrisLawSNP @MitoResearch
We received wonderful feedback from our patients & families on the day. It is a privilege to work alongside such a passionate & dedicated community. We are definitely stronger together💪💚#mitoresearch #mitoaware #mitochondrialdisease #mitomatters #raredisease #projectpearl
It was wonderful to have Katie join us for the day to share the amazing support services the @4Lilyfoundation offer to our patients & families from across the UK. Thank you so much for your continued support of the mito community💚#strongertogether #projectpearl
The @mitoresearch Patient Information Day was an excellent opportunity for our Science & Patient Engagement Officer Katie to chat with #mito patients of all ages & their families & share information about the support services The #LilyFoundation offers. https://t.co/qdsNxY9Fbd
Members of the Newcastle Mito Team are looking forward to joining the #raredisease community at the #London #RareShowcase2023 💚#mitoresearch #projectpearl #StrongerTogether
Secure your place at the #London #RareShowcase23!
Come along to network, meet and build relationships with passionate advocates from all sectors of the community.
Your presence and participation are vital to driving positive change.
Find out more: 👉 https://t.co/BJqI0G3H9M
On behalf of the Newcastle Mito Team & our patients & families from across the UK, we would like to offer our sincere thanks to @LizTwistMP, Chair of the APPG for Rare Disease, for attending our Patient Information & Engagement Day 2023💚#RareAPPG #projectpearl #strongertogether
We are incredibly grateful to @LizTwistMP & @GeneticAll_UK for their unwavering support of our #mitoresearch & for raising the profile of mitochondrial & rare disease for the benefit of the whole community 💚#projectpearl #StrongerTogether
Wonderful keynote by @LizTwistMP noting the importance of raising the profile of rare conditions and great to hear that close working between @LizTwistMP @MitoResearch and @GeneticAll_UK through the APPG on Rare, Genetic and undiagnosed conditions is achieving results
Really proud to be part of such an amazing day @UniofNewcastle @NewcastleHosps @NewcastleNMAHPs #projectpearl #mitoaware @MitoResearch
Professor Gorman giving an update on clinical trials for mitochondrial diseases at the @MitoResearch Patient Information Day 2023 💚
#Catalyst @UniofNewcastle #ProjectPearl
Increasing awareness of mitochondrial disease #ProjectPearl #MitoAware by Professor Gráinne Gorman and the team @MitoResearch @UniofNewcastle @NCL_RareDisease
Wellcome Centre for Mitochondrial Research Director Professor Grainne Gorman providing an update on our clinical trials (which are now in double figures) & our awareness-raising activities as part of #projectpearl Thanks to all our patients & families who make this possible 💚
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