Top Tweets for #RETTSYNDROME
We’re looking forward to connecting with the neuroscience community at the 55th @ChildNeuroSoc Annual Meeting where we’ll share the latest data from our #RettSyndrome research. Learn more and register here: https://t.co/i0EXgjuIgH. #CNSAM
How can multidisciplinary care support communication, mobility, and engagement for individuals with #RettSyndrome?
For #RettSyndromeAwarenessMonth, explore these approaches in Session 4 of our #Rett education series and earn 0.5 #CME credit today: https://t.co/TwOLnRul9v
A Canadian registry record for a randomized placebo-controlled CBD oral-solution trial in Rett syndrome now includes a results section. #RettSyndrome #CBDResearch #ClinicalTrials #RareDisease
How can clinicians better anticipate treatment-related AEs by partnering with caregivers in #RettSyndrome care?
For #RettSyndromeAwarenessMonth, explore these strategies in Session 3, Partnering with Caregivers: Anticipating and Managing AEs in Rett Syndrome Treatment.
Earn 0.5 #CME credit today: https://t.co/OZlhehwvc7
#RareDisease #MedEd
We're heading to Montréal for the 55th @ChildNeuroSoc Annual Meeting to engage with the pediatric neurology community and discuss the latest advancements in our TSHA-102 gene therapy program in clinical evaluation for #Rettsyndrome.
If you’re attending #CNSAM and want to speak with a member of the #TayshaTeam, email us at [email protected] to connect onsite!
Learn more about the meeting: https://t.co/PKyqykoKBL
💗 Daha doğru bilgi, daha güçlü farkındalık ve daha kapsayıcı bir yaşam için Rett’i birlikte daha iyi anlayalım.
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#RettSendromu #RettSyndrome #RettFarkındalık #MECP2 #RettSendromuDerneği
October is Rett Syndrome Awareness Month!
Read the full story on Rett Syndrome News: https://t.co/BgslMSMzHv
#RettSyndrome #RettAwarenessMonth #RettSyndromeAwareness #RettSyndromeNews #Bionews
أكتوبر شهر التوعية بمتلازمة ريت 💜
قصة بدأت سنة 1966 مع Dr. Andreas Rett
واتغير فهمنا لها سنة 1999 باكتشاف ارتباطها بـ MECP2
وفي 2023 وصل أول علاج مخصص DAYBUE
Rett syndrome تصيب البنات في الغالب
والبحث مستمر في Gene Therapy
#RettSyndrome #RettAwareness #MECP2 #RareDisease #متلازمة_ريت
Rett, birlikte yürüyeceğinizi düşündüğünüz yolu değiştirebilir.
Ama o yolda birlikte yürüdüğünüz kişiyi değiştirmez. 💗
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#RettSendromu #RettSyndrome #RettFarkındalık #MECP2 #RettSendromuDerneği
@Rettsyndrome In honor of International Rett Syndrome Awareness Month, we encourage families to seek genetic testing so they can get connected with the most accurate information.
Learn more: https://t.co/IDE6x1YfkN
#Rettsyndrome #InternationalRettSyndromeAwareness Month #GeneticConditions
October is Rett Syndrome Awareness Month💜
Rett syndrome is a rare neurological disorder that can affect nearly every aspect of a person’s life.
🔗 Learn more and get involved: https://t.co/voQcyB6uCQ
#KnowRett #KnowTheirStory #RettSyndrome #RettSyndromeAwarenessMonth
25 years ago today, I opened my lab as a Principal Investigator. 🎂Since then, the #Cancer #Epigenetics Group at @CNIOStopCancer @idibell_cat @CarrerasIJC @IRSantPau has explored DNA #methylation, #histone and #RNA modifications and non-coding RNAs in #Oncology, #Rettsyndrome and other diseases. But what I'm proudest of is the many members who built this #science with me and now they are successful on their own. Thank you. 🙏
Can the energy around Gia change everything? 💜
“I Am Gia’s Voice” going national. Stay positive around her — she feeds off it. This cause made the family even closer.
Watch more → https://t.co/o2vC3P2QsO
#MiamiTV #Gia #RettSyndrome
Can the energy around Gia change everything? 💜
“I Am Gia’s Voice” going national. Stay positive around her — she feeds off it. This cause made the family even closer.
Watch more → https://t.co/2T6WhXpR96
#MiamiTV #Gia #RettSyndrome
Can You Have Fun And Benefit Others? Oh Yes! 🎭💗
Jenny is at a Miami masquerade for charity. Have fun, take photos — but the night is about Rett syndrome.
Want more? Check out the link in our Bio!
#MiamiTV #JennyScordamaglia #RettSyndrome #Gia #Charity #MiamiEvents
Can You Have Fun And Benefit Others? Oh Yes! 🎭💗
Jenny is at a Miami masquerade for charity. Have fun, take photos — but the night is about Rett syndrome.
Want more? Check out the link in our Bio!
#MiamiTV #JennyScordamaglia #RettSyndrome #Gia #Charity #MiamiEvents
We're pleased to share that a peer-reviewed article highlighting the Rett syndrome caregiver experience was recently published in Neurology and Therapy by @SpringerNature. The publication explores which improvements matter most to families living with #Rettsyndrome and demonstrates that, despite the heterogeneous nature of the condition, caregivers consistently identified improvements in fine and gross motor function, greater independence and the improved ability to communicate needs as the outcomes with the greatest impact on quality of life. These findings helped shape our TSHA-102 clinical trials, ensuring outcome measures are grounded in the real-world improvements that are meaningful to caregivers and individuals living with Rett syndrome.
Click to read the article: https://t.co/0kTXiXlGZ9
The 2026 IRSF Scientific Meeting is what it looks like to be a catalyst for progress — not only investing in promising research, but creating the connections and opportunities that help turn discovery into treatments and cures. #RettSyndrome #RettResearch #RareDiseaseResearch
Through our partnership with Citizen Health, we’re bringing Rett families a new tool designed to make some of the day-to-day work of Rett care easier.
Learn more about Ari and get started:
https://t.co/S6vAYW6mMj
#RettSyndrome #IRSF #RareDisease #PatientAdvocacy #DigitalHealth
Real-world data suggest approximately two-thirds of children aged 2 to 4 years with #RettSyndrome remained persistent on #Daybue (#trofinetide) during available follow-up.
https://t.co/MwKnjiLa8D
@AcadiaPharma @AANmember @AmEpilepsySoc
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