Top Tweets for #RPGRIP1
Genome sequencing enabled finding of a homozygous RPGRIP1 deletion that is a leading cause of Achromatopsia in Japanese patients https://t.co/kpaA2YFSGD #GIMO #Achromatopsia #RPGRIP1 #GenomeSequencing #StructuralVariant
DM @Birchy2019 if you want to bid on a signed @LeicesterTigers jersey and 2 club tickets. The funds will support @OdyliaTx's RPGRIP1 gene therapy program to save vision in children like Freya and others with mutations in the #RPGRIP1 gene.
#raredisease #genetherapy #nonprofit
update on this signed squad title winning @leicestertigers top 21-22 season, donated by @olliechessum to help raise vital funds for Freyas charity @OdyliaTx ๐๐ป
ยฃ200
โญ๏ธโญ๏ธitโs gets EVEN BETTER, the 2 tickets will be CLUB TICKETS WITH A PRE MATCH MEAL with top!!
Pm me for bids
Checkout the amazing Freya & her Fundraising page! Freya has a progressive vision loss disorder called LCA6 caused by mutations in the RPGRIP1 gene. You can help us bring an RPGRIP1 gene therapy to clinical trials in 2025!
https://t.co/YYX2tlm0eo
#savingfreyasight #rpgrip1
https://t.co/yC6uawow42
Please have a read and help save my daughters sight ๐๐ป
We presented on our RPGRIP1 #GeneTherapy Program at the @ASGCTherapy meeting, #ASGCT23. Follow the link to view our poster on efficacy, tolerability, and manufacturability. https://t.co/FhCPW5eBBJ
#nonprofitbiotech #LCA #RPGRIP1
Replacement #genetherapy, like those Odylia is developing for vision loss caused by mutations in #USH1C & #RPGRIP1, delivers a functional copy of a gene to someone with a mutation in that gene. We're committed to developing safe & effective therapies for rare genetic diseases.
Odylia supports rare disease therapeutic development at all stages. Thru our pipeline, Odylia is currently developing gene therapies for 2 vision loss disorders, #LCA6 & #UsherSyndrome. Learn more about this & our #nonprofitbiotech model: https://t.co/MvfpQAzEzE
#RPGRIP1 #USH1C
This gene therapy utilizes the novel AAV Anc80 capsid to deliver RPGRIP1 to the subretinal space.
#RPGRIP1 #genetherapy #nonprofitbiotech #visionloss #savingsight
To make a tax deductible donation to support these breakthroughs and more, please visit: https://t.co/xp1mcpgenr
#nonprofit #nonprofitbiotech @AndelynBio #RPGRIP1 #GeneTherapy #visionloss
We are excited to announce a partnership withย @AndelynBio to manufacture Odylia's novel #RPGRIP1 gene therapy.
More info coming soon...
To learn more about our organizations visit:
https://t.co/O5BDFJYWGH
https://t.co/Ex3lG6e4ZI
#raredisease #GeneTherapy
#nonprofitbiotech
We are excited to announce a partnership withย @AndelynBio to manufacture Odylia's novel #RPGRIP1 gene therapy.
More info coming soon...
To learn more about our organizations visit:
https://t.co/O5BDFJYWGH
https://t.co/Ex3lG6e4ZI
#raredisease #GeneTherapy
#nonprofitbiotech
"It takes up to three years and can cost up to $50,000 annually to breed, raise, and train a dog for a person who is blind." Treatment for #RPGRIP1 or #USH1C would help alleviate these costs. @GuidingEyes More at https://t.co/JJlavyvYs0
#InternationalGuideDogDay #genetherapy
Odylia has launched a Fundraising and Awareness Resources Page to tell the story of our gene therapy programs and raise funds. Visit the link to download fact sheets, social media posts, and more. https://t.co/tdWNmsEQve #genetherapy #RPGRIP1 #USH1C #raredisease
Today, on #RareDiseaseDay, Odylia joins the world in raising awareness about people living with a #raredisease.Our mission is to accelerate the development of treatments for rare diseases. Stay tuned for the launch of resources to support our vision loss programs. #RPGRIP1 #USH1C
#RareDisease Fact: โChildren with Leber congenital amaurosis can become blind before age one. Thatโs because light-gathering cells in the retina, known as rods and cones, do not work properly. 3 in 100K people affectedโ โ American Academy of Ophthalmology" #LCA6 #RPGRIP1 #USH1C
Find out the latest news about the RPGRIP1 Gene Therapy Program. Attend the webinar this week, Thursday, February 3rd, 12-1 pm EST. #RPGRIP1 #LCA6 #genetherapy #raredisease https://t.co/chmKTZFZwi
Be the first to hear the RPGRIP1 Program Plans for 2022 https://t.co/chmKTZFZwi #RPGRIP1 #LCA6 #genetherapy #raredisease
Thank you to everyone who supported Odylia in 2021! We exceeded our End of Year Campaign goal by almost $20,000! Funds raised will move our #RPGRIP1 Program into the next phase of development. We are excited about 2022 and will have more updates soon! #raredisease #genetherapy
We are OVER halfway to our goal but still need YOU. To begin manufacturing a gene therapy for #RPGRIP1, we need $35,000 more by December 31. Your gift will directly support the development of a treatment. Please donate today. #raredisease #genetherapy https://t.co/EOkwQeHlAx
Did you know Odylia is a NONPROFIT biotech? Donations help further our mission of accelerating gene therapy development for #raredisease and children like Dylan. On this #GivingTuesday, help us reach our goal of raising $95,000 by Dec 31. #RPGRIP1 https://t.co/sFZxcfRrAZ
Odylia Therapeutics announced today that the FDA granted Orphan Drug Designation and Rare Pediatric Disease Designation to OT-004, Odylia's lead program to treat vision loss caused by mutations in the RPGRIP1 gene. #raredisease #RPGRIP1 #LCA6 #genetherapy https://t.co/fiHqQfOHil
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