Top Tweets for #RareAct
BREAKING: The #RAREAct, which clarifies how to award orphan drug exclusivity from the #OrphanDrugAct is included in the end-of-year package from #Congress. Urge your elected officials to vote YES on this landmark law here: https://t.co/1HiF1xoTVs
Children with rare diseases deserve access to safe, effective treatments. We're encouraged to see the #RAREAct and #CreatingHopeReauthorizationAct advance and @HouseCommerce and @EnergyCommerce commit to resolving remaining differences to expand access to #RareDisease therapies.
The #RAREAct is a being voted on in today’s @HouseCommerce Health Subcommittee, which would cement FDA’s long-standing interpretation of how to award orphan drug exclusivity, an incentive established by the Orphan Drug Act. Urge your Rep. to support it: https://t.co/V1YFVtqYEe
The #RAREAct clarifies the original intent of the #OrphanDrugAct and codifies the FDA’s longstanding interpretation of how to award orphan drug exclusivity.
Learn more and check out the 78 patient orgs that support this bill: https://t.co/camLIQC1YT (2/6)
Tomorrow, @HouseCommerce will hold a markup on the #RAREAct, #AcceleratingKidsAccesstoCareAct, #CreatingHopeReauthorizationAct, and #TelehealthModernizationAct.
Tell your Rep. to support the #RareDisease community by supporting these bills, here: https://t.co/eZYJHa79ii 🧵
Happening now Rare Disease Congressional Caucus Co-Chair @DorisMatsui sheds light on the importance of supporting the #BENEFITAct, #RAREAct, #ProtectRareAct @EnergyCommerce @HouseCommerce watch here: https://t.co/GPzjqGmeAH
The #RAREAct is a critical piece of legislation being heard in today's #RareDiseaseDay hearing. It would protect a key drug development incentive established by the life-changing Orphan Drug Act. Tune in to the hearing here! https://t.co/hgnMUYbEDA
The #RAREAct is a critical piece of legislation being heard in today's #RareDiseaseDay hearing. It would protect a key drug development incentive established by the life-changing Orphan Drug Act. Tune in to the hearing here! https://t.co/OnXwyLx02y
This #RareDiseaseWeek, NORD wants to thank @RepGusBilirakis and @DorisMatsui for introducing the #RAREAct, which clarifies the intent of the #OrphanDrugAct and protects orphan drug development for children and other hard-to-study groups. Thank you, Reps. Bilirakis and Matsui!
On #RareDiseaseDay, Congress will hold a hearing on 18 #RareDisease bills, including the RARE Act, which codifies the #FDA’s longstanding interpretation of how to award orphan drug exclusivity. Protect the #ODA. Tell your Rep. to cosponsor the #RAREAct! https://t.co/N971SYWHe3
On #RareDiseaseDay, Congress will hold a hearing on 18 #RareDisease bills, including the RARE Act, which codifies the #FDA’s longstanding interpretation of how to award orphan drug exclusivity. Protect the #ODA. Tell your Rep. to cosponsor the #RAREAct! https://t.co/ZcmQ6gfZ5V
BREAKING NEWS: The #RAREAct (H.R. 7383) was introduced this week by Reps. @RepGusBilirakis and @DorisMatsui to clarify the intent of the #OrphanDrugAct and protect orphan drug development for children and other hard-to-study groups. Thank you Rep. Bilirakis and Rep. Matsui!
Thank you to @SenatorBaldwin and @SenatorBraun for championing the #RAREAct on behalf of patients and families living with rare diseases!
Today, in a decisive victory for the #RareDisease community, the Senate HELP committee passed the #RAREAct, which will ensure drug sponsors continue to study the safety and efficacy of orphan drugs in special populations like children. Read more here: https://t.co/EmIrLhQVq4
Earlier this week, TMS joined NORD (@RareDiseases) and more than 75 other rare disease patient advocacy organizations to call on Congress to pass the #RareAct. Read the letter here: https://t.co/IJVxLiW9hJ #mastcell
#tmsforacure
#mastcelldisease
#careaboutrare
#raredisease
NORD and 77 other patient advocacy groups thank @SenatorBaldwin and @SenatorBraun for championing the #RAREAct and for recognizing that all #RareDisease patients deserve safe and effective treatments!
Read our full letter and view the signatories here: https://t.co/sRcGXpl19L
We urge Congress to pass the #RAREAct, introduced on Friday by @SenatorBaldwin, which would ensure incentives remain in place for pharmaceutical companies to study the safety and efficacy of orphan drugs in special populations like children.
Learn more: https://t.co/EmIrLhQVq4
We would also like to thank the 84 organizations who joined NORD in urging Senate HELP leadership to incorporate the #RAREAct into the FDA Safety and Landmarks Advancement Act: https://t.co/BhVQFLnOdh
BREAKING NEWS: The HELP Committee advances S. 4348, the @US_FDA Safety and Landmark Advancements (#FDASLA) Act with @SenatorBaldwin’s #RAREAct amendment. Thank you Senator Baldwin for your amendment and commitment to the #RareDisease community!
Last Seen Hashtags on Sotwe
迷玩
Seen from Thailand
minichatt()()()+filter:native_video
Seen from Canada
mallu actress
Seen from India
snapchat teenageee ()*** filter:videos
Seen from Ecuador
LoHang
Seen from Netherlands
做爱
男高中生
aksaraytravesti
Seen from Germany
hermana con hermano
Seen from Mexico
PonchoDenigris
Seen from Mexico
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.5M followers
Barack Obama
@barackobama
118.8M followers
Cristiano Ronaldo
@cristiano
114.5M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.3M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
84M followers
Lady Gaga
@ladygaga
75.5M followers
Virat Kohli
@imvkohli
73.5M followers
Kim Kardashian
@kimkardashian
70.9M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.5M followers
Bill Gates
@billgates
65.3M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.2M followers
CNN
@cnn
61.7M followers
X
@x
60.7M followers