Top Tweets for #RareBleedingDisorders
Key Insights on Hemophilia Care at WFH 2026 Pre-Congress Workshop - Wolfgang Miesbach (@miesbach)
@wfhemophilia
https://t.co/ouS8ifHIc8
#Health #Hematology #Hemophilia #Hemostasis #HemostasisNews #HemostasisToday #Medicine #RareBleedingDisorders #WFH2026 #MedEd #MedX
I Have Successfully Defended My PhD on Rare Bleeding and Coagulation - @Samin_Mohsenian
@LaStatale
https://t.co/dsXdRS8urA
#CoagulationDisorders #Health #Hematology #Hemostasis #HemostasisNews #HemostasisToday #Medicine #PhD #RareBleedingDisorders #MedEd #MedX
ERIN Summit Brought Together Patients and Their Families, Offering a Space to Learn, Connect, Feel Supported
@EHC_Haemophilia
https://t.co/wNsRzC7kyR
#EHC #ERIN #ERINCommittee #ERIN2025 #Health #Hematology #Hemostasis #HemostasisToday #Medicine #RareBleedingDisorders #MedEd #MedX #MedNews
Dea Rojus Reflects on 4th International Conference on Hemophilia and Rare Bleeding Disorders
@nr_pedhemonc
https://t.co/sR1mDzoZAz
#BleedingDisorders #Health #Hematology #Hemophilia #Hemostasis #HemostasisToday #Medicine #RareBleedingDisorders #WBDR #MedEd #MedX
This Conference Provided an Exceptional Opportunity to Share Knowledge and Exchange Best Practices - Khalid Habaybia
https://t.co/kEyz9ya6F9
#BleedingDisorder #Health #Hematology #Medicine #Hemophilia #HemostasisToday #MedEd #MedX #MultidisciplinaryCare #RareBleedingDisorders #Nursing #PatientManagement
During Day 2 of the Annual EHC Conference We Discussed Very Rare Bleeding Disorders! - Maria Elisa Mancuso
@miesbach | @paul_batty1
https://t.co/3mcDGUEuXu
#AAVGeneTherapy #BDUC #EHC #EHC2025 #MedX #Hemophilia #ITI #NonAAVMediatedGeneTherapies #PUPs #RareBleedingDisorders #MedEd
Understanding the Diagnosis, Symptoms and Treatment of Rare Bleeding Disorders - Stacey McGeown
@NurseStandard
https://t.co/LBy2jCP4B8
#Health #Hematology #Hemostasis #Medicine #HemostasisToday #RareBleedingDisorders #MedX #RCNiNursingStandard #MedEd
Review on Diagnosing Coagulopathies - Rabab Al Dawood
https://t.co/OcDJOiMXoS
#Coagulopathies #Health #Hematology #Hemostasis #HemostasisToday #KFSHD #LaboratoryDiagnosis #Medicine #RareBleedingDisorders #MedEd #MedX
Viscoelastic Assays to Detect Severe Factor Deficiencies – Bruno Pougault Shares A Novel Study on Rare Bleeding Disorders
https://t.co/0UA8acxniF
#Health #Hematology #Hemostasis #MedEd #MedX #ViscoelasticAssays #HemostasisToday #Medicine #RareBleedingDisorders #SevereFactorDeficiencies #Thrombosis
Kerry Bozza Funkhouser at BIC 2025 Roundtable on Heavy Menstrual Bleeding and Rare Bleeding Disorders
https://t.co/jZSGEYY0lM
#13thBICInternationalConference #BleedingDisorders #HeavyMenstrualBleeding #Hematology #Hemorare #Hemostasis #RareBleedingDisorders #MedEd #WomenAndGirlsWithBleedingDisorders #MedX #HemostasisToday
Thanks to Prof. @flora_peyvandi for presenting our work on “Gender differences in clinical manifestations and severity of FVII deficiency”.
I couldn’t attend in person due to visa issues, but glad to see it shared.
@isth
#ISTH2025 #RBD #FVIIdeficiency #Rarebleedingdisorders
Prof @flora_peyvandi presents data on Gender differences in clinical manifestations and severity of FVII deficiency #ISTH2025 @Samin_Mohsenian
Excited to share our latest paper: "The Genetic Spectrum of Rare Bleeding Disorders" 🧬🩸
This is one of the largest study to date, comprehensively investigating the genetics of all RBDs.
#Genetics #Hematology #RBD #Rarebleedingdisorders
@flora_peyvandi @ciukolotta @OmidSeidi
The genetic spectrum of -#rare bleeding disorders - glad to share the paper of my PhD @Samin_Mohsenian with you https://t.co/L5aqzcAL1q
📣 We’re looking for 3 volunteers to join the #ERINCommittee until Feb 2026! 🔹 Up to 2 people with rare bleeding disorders 🔹 1 multidisciplinary care professional
🗓️ Apply by 11 April!
🔗 https://t.co/ZmHRiBfSFn
#RareBleedingDisorders
Last minute talk with my supervisor just before the presentation
🙂, @flora_peyvandi @IsthPresident @isth #ISTH2024 #rarebleedingdisorders
I am pleased to share that our manuscript on Rare Inherited Coagulation Disorders has been released!
@mannucci_p
@flora_peyvandi
@RPTHjournal
#rarebleedingdisorders https://t.co/lxl1zrhQ2C
I am delighted to have contibuted to this wonderful @EHC_Haemophilia initiative. I hope this could make significant strides in advancing innovative strategies for system change in #healthcare for individuals with #rarebleedingdisorders
Many thanks to Zita Gacser and @NajaSkouw
Exciting announcement! 💡Our open-access paper, "System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency", is now published in The Journal of Haemophilia Practice.
Read the full paper: https://t.co/BXrAJH5wH2
@haemnet
Today is #RareDiseaseDay
Do you know that #RareBleedingDisorders prevent blood from clotting properly due to the inherited deficiencies of the key coagulation factors.
#Hemophilia
#VonWillebrandDisease
Read more here: @nbd_foundation
https://t.co/DAF6HPYdvQ
@ELShematology
It was our privilege to interact with you Prof Young @GuyYoungMD and discuss cases in hemostasis and thrombosis at @HemOncPGICH @ssphpgti. Looking forward to more discussions in future #hemophilia #thrombosis #rarebleedingdisorders @MeUPGovt @Archit10000
With so many treatment options, it is easy to forget how far the #rarebleedingdisorders community has come.
Delighted to see this touching work to keep the memory alive and thrilled to see your inclusive work on #women and bleeding disorders. 🙌
Excellent thread on trial design when the number of subjects available is small. #hemophilia #RBD #rarebleedingdisorders
One of the challenges of trials is how best to design them in #SmallPopulations (when the total available n is small). 1/8
#MethodologyMonday
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