Top Tweets for #RareButNOTInvisible

over 4 years ago

Please Educate yourself about #RenalMedullaryCarcinoma (#RMC)! Read the Tweet below from Cora Connor at @RMCAwareness & learn more at the 🔗. https://t.co/1w3HuM7ier #ENDRMC #SickleCell #RareDisease #KidneyCancer #KnowYourStatus #RareButNOTInvisible #KidneyCancerAwarenessmonth

over 5 years ago

Renal medullary carcinoma is a #RareKidneyCancer associated with sickle cell trait, that affects young individuals. Today is #RareDiseaseDay and I’m sure many of you like us, never heard of RMC until a friend or loved one was diagnosed. #EndRMC #RareButNotInvisible

RMCAwareness's tweet photo. Renal medullary carcinoma is a #RareKidneyCancer associated with sickle cell trait, that affects young individuals. Today is #RareDiseaseDay and I’m sure many of you like us, never heard of RMC until a friend or loved one was diagnosed. #EndRMC #RareButNotInvisible https://t.co/GMEbYZGIo1

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over 4 years ago

My heart is filled with sadness over the loss of Armia. The world is now undoubtedly without one of its brightest lights. Her life held so much promise. We must do more for those diagnosed with #RenalMedullaryCarcinoma #HealthDisparity #RareButNotInvisible

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almost 5 years ago

Great, informative video about #RenalMedullaryCarcinoma! Thx 4 sharing this @RMCAwareness & @chubbyemu 4 putting this 2gether & those involved in Advocating 4 #RMC. Herman's story continues 2 educate us All & teach new people about #RMC #RMC #SickleCellTrait #RareButNotInvisible

almost 5 years ago

Thank you @chubbyemu for your time & dedication in putting together Herman’s story! We are thankful for Dr. Tannir & @MDAndersonNews for taking charge of his care. @DHealthhub @power4patients @PavlosMsaouel @chubbyemu @Memej99 @KimrynRathmell @apolo_andrea @AndyHongMD

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about 5 years ago

I continue to stress how important it is to learn about #RMC! It's a #rare form of #kidneycancer affecting those w/#SickleCellTrait and in some cases, #SickleCellDisease. Know Your Status, #GetScreened & Stay In The Know! #ENDRMC #SeeRMC #InvisibleNoMore #RareButNOTInvisible

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about 5 years ago

Please follow @RMCAwareness and visit https://t.co/bRd2daYKnd to learn much more about #RenalMedullaryCarcinoma, the link between #RMC and #SCT/#SCD and the campaign to make #RMC #InvisibleNoMore. #SeeRMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible

about 5 years ago

Making Renal Medullary Carcinoma (#RMC) Invisible No More https://t.co/VD9x1d6dJv

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about 5 years ago

Please READ! It's IMPORTANT that those of us w/#SickleCellTrait, #SickleCellDisease who are of African descent are at risk for #RenalMedullaryCarcinoma, or #RMC. Please LEARN about #RMC. Know Your Status, Get SCREENED, Stay In The Know. #SeeRMC #ENDRMC #RareButNOTInvisible

over 11 years ago

Did you know if you have the sickle cell trait your at risk for a specific kidney cancer? ---> http://t.co/7U2aWdNZJw

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over 5 years ago

#RMC patient Armia Austin was diagnosed at age 21. Watch as she shares details about her diagnosis and treatment journey, advice to others for sickle cell trait testing, and hopes and goals for the future. https://t.co/JhQ1DydqGp #RMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible

power4patients's tweet photo. #RMC patient Armia Austin was diagnosed at age 21. Watch as she shares details about her diagnosis and treatment journey, advice to others for sickle cell trait testing, and hopes and goals for the future. https://t.co/JhQ1DydqGp
#RMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible https://t.co/tBqXri4S8j

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over 5 years ago

Network Manager, Cora Connor, shares her story and what led her to start RMC Support to raise awareness for people diagnosed with #RMC. https://t.co/VD9x1d6dJv #RareButNotInvisible #ENDRMC

power4patients's tweet photo. Network Manager, Cora Connor, shares her story and what led her to start RMC Support to raise awareness for people diagnosed with #RMC. https://t.co/VD9x1d6dJv #RareButNotInvisible #ENDRMC https://t.co/ELzIv4c2LO

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over 5 years ago

Friday, April 16th, 10PM PT/1PM ET, Join the #patientchat with RMC Network Manager, Cora, "Rare But Not Invisible, Finding Your Community". Details below! @RMCAwareness #patientchat #RMCAwareness #EmpoweredPatient #RareButNOTInvisible

over 5 years ago

Join us for an Empowered #patient "Rare but Not Invisible: Finding Your Community" with our RMC Network Manager Cora, @RMCAwareness on Friday 04/16 10 AM PT | 1 PM ET https://t.co/wW0HLx7WjE

power4patients's tweet photo. Join us for an Empowered #patient "Rare but Not Invisible: Finding Your Community" with our RMC Network Manager Cora, @RMCAwareness on Friday 04/16 10 AM PT | 1 PM ET https://t.co/wW0HLx7WjE https://t.co/DSlIjalGxH

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over 5 years ago

#SeeRMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible

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over 5 years ago

There is little to NO #RMCAwareness in our #Blackcommunity, yet 1 in 13 Black Americans carry the #sicklecelltrait & are @ risk for #renalmedullarycarcinoma. PLEASE, Educate yourself & others about #RMC & #KnowYourStatus!! #SeeRMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible

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over 5 years ago

#SeeRMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible

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over 5 years ago

PLEASE take the time to learn about #RMC & Know Your Status. These #RMC tweets deserve More attention. #RMC is an aggressive rare form of #kidneycancer. If you have #SickleCellTrait or #SickleCellDisease, you're at risk. #SeeRMC #ENDRMC #InvisibleNoMore #RareButNOTInvisible

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#SeeRMC #ENDRMC #RMCAwareness #RareButNOTInvisible #RenalMedullaryCarcinoma

over 5 years ago

The Ricky Casey Trust @rickycaseytrust

over 5 years ago

3 days to go ! Good luck Ellis !! Raising awareness @PavlosMsaouel @kidneycanceruk @THEJamesWhale @CharlesSwanton @anthonyjoshua @SugarRayLeonard @ACANU_Geneva @MENnewsdesk @SaddIndependent @TheOldhamTimes @GranadaReports @itvnews @kidneycancers @DavidMay04

rickycaseytrust's tweet photo. 3 days to go ! Good luck Ellis !! Raising awareness @PavlosMsaouel @kidneycanceruk @THEJamesWhale @CharlesSwanton @anthonyjoshua @SugarRayLeonard @ACANU_Geneva @MENnewsdesk @SaddIndependent @TheOldhamTimes @GranadaReports @itvnews @kidneycancers @DavidMay04 https://t.co/q3UnEioUrK

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