#RareDis - Twitter Hashtag

about 21 hours ago

Synthetic control arms are gaining traction in rare disease trials, using historical patient data to stand in for a placebo group. It is a genuine lifeline when enrolling enough patients is nearly impossible. But the quality of that historical data determines everything. #RareDis

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SeoulSource 🇮🇩 @kpopdankdramaid

3 days ago

Pria 25 tahun tinggi 66cm, hanya 114 kasus di dunia. Adiknya viralin di medsos, 163K followers, dan bawa dia ke rumah sakit. Keluarga nggak mampu biaya pengobatan bertahun-tahun #MedicalStory #RareDis Read More: https://t.co/BdtiPKEcui -Seola

kpopdankdramaid's tweet photo. Pria 25 tahun tinggi 66cm, hanya 114 kasus di dunia. Adiknya viralin di medsos, 163K followers, dan bawa dia ke rumah sakit. Keluarga nggak mampu biaya pengobatan bertahun-tahun #MedicalStory #RareDis

Read More: https://t.co/BdtiPKEcui
-Seola https://t.co/xNQv0ql9XK

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SeqComplete @SeqComplete

almost 4 years ago

#RareDisease @GameForCures: 'Let's give a huge shoutout to @mightyteapot who is part of the #GameForCures Livestream Gaming Marathon this weekend! Tune in today from 1-6PM EST and help support @CureRareDisease! #raredis…, see more https://t.co/8JJSArJY7K

SeqComplete's tweet photo. #RareDisease @GameForCures: 'Let's give a huge shoutout to @mightyteapot who is part of the #GameForCures Livestream Gaming Marathon this weekend! Tune in today from 1-6PM EST and help support @CureRareDisease! #raredis… https://t.co/P8HTxPUzWl, see more https://t.co/8JJSArJY7K

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CLINUVEL

@ClinuvelNews

over 5 years ago

On average, children with a rare disease must wait six to eight years before being diagnosed. For EPP, it takes 13. Delayed diagnosis is one of the greatest challenges affecting patients; preventing them from accessing treatment. This is why we #RaiseAwareness for #RareDis ...

ClinuvelNews's tweet photo. On average, children with a rare disease must wait six to eight years before being diagnosed. For EPP, it takes 13.

Delayed diagnosis is one of the greatest challenges affecting patients; preventing them from accessing treatment.

This is why we #RaiseAwareness for #RareDis ... https://t.co/MLDAcAKw4l

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eos @eo_services

over 6 years ago

retweet @ EU_H2020: #H2020, under its Work Programme 2020, has launched a call for proposals on coordination of clinical research activities of the #ERN with a budget of €2M. 🗓️Check out & apply by 7 April 2020! 👉 https://t.co/yOfsBTgoVb #RareDis…

eo_services's tweet photo. retweet @ EU_H2020: #H2020, under its Work Programme 2020, has launched a call for proposals on coordination of clinical research activities of the #ERN with a budget of €2M.
🗓️Check out & apply by 7 April 2020! 👉 https://t.co/yOfsBTgoVb

#RareDis… https://t.co/G4ckVFMDBm

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Susanne Baars @baars_susanne

over 7 years ago

Looking back to an inspiring journey with Sandoz at SXSW in #austin. Falco Wienberg and I have learned a lot from working closely together with Sandoz global #SandozHack and the other teams. We are super proud to announce that coming back home, 2 #raredis…https://t.co/cyibwScX4n

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Ixchel De La Luz 🧬 @IxchelDeLaLuz

over 8 years ago

Para saber más sobre #EnfermedadesRaras sigue a: @FEMEXER @AMFQMX @rarediseaseday @raredis @NoticiasPKU @eerr_es #ShowYourRare #ShowYouCare #Raredis

IxchelDeLaLuz's tweet photo. Para saber más sobre #EnfermedadesRaras sigue a:
@FEMEXER
@AMFQMX
@rarediseaseday
@raredis
@NoticiasPKU
@eerr_es
#ShowYourRare #ShowYouCare #Raredis https://t.co/w66YFbKxrV

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Atypical HUS India @ahusindia

over 8 years ago

RT aHUSAllianceAct #MedEd conferences benefits when there are #patientsincluded. Insights from the #PatientExperience add dimension & depth to #clinical presentations. At #IPNABucharest in Romania 17 & 18 Nov 2017, photos of SHUaRomania. #aHUS #raredis…