#RareIsNotSoRare - Twitter Hashtag

over 6 years ago

All of this. 👇👇 So eloquently stated. We must #UniteToConquer, not just cancer but all diseases, especially #RareDiseases. Collaboration (including w patients, caregivers, & advocates) is the key to success. #ASCO2020 #RareIsNotSoRare @OutrunRare

Mark Lewis, MD, FASCO

@marklewismd

over 6 years ago

A RARE DISEASE NARRATIVE TWEETORIAL Today, during an #ASCO20 clinical science symposium, I'm honored to comment as a patient-physician on the meaning of drug development for rare diseases Inspired by @DavidFajgenbaum (but not half the man he is) I am going to share my own story

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Reanne Booker @Rea_Booker

over 7 years ago

Rare is only rare until it affects you or someone close to you. Thanks @sloan_kettering for your work and for spreading the word. #rareisnotsorare

Memorial Sloan Kettering Cancer Center

@MSKCancerCenter

over 7 years ago

Did you know 50% of people with cancers have a rare cancer. MSK's Make-an-IMPACT initiative provides individuals with rare cancers the opportunity to receive genomic testing. #AACR19 https://t.co/SHhYApBs86

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MovementSportsClinic @MoveSportClinic

about 8 years ago

We were so excited to cheer @runproctor during his stop/run through in @yyc! What an amazing man. Thank you for your heart and strength! #1in12 #rareisnotsorare #outrunrare2018… https://t.co/AL2SHJe6jD

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Take Roots PR 🛡️ @take_roots

over 8 years ago · Edmonton

@runproctor While everyone else was sleeping 💤 this guy was training. You amaze me @runproctor. Every. Single. Day. Need inspiration? Learn more about Dave Proctor and his reason for running across 🇨🇦 to raise awareness & $$$$ For @rarediseasefdn #outrunrare #raredisease #rareisnotsorare

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Natasha Phillips @natasha_siren

over 8 years ago

Hey Yukoners! Spread the word! Rare Disease Day is Feb 28! Come celebrate and learn with us! #rareisnotsorare https://t.co/ADOG8TlfpE

RareDiseaseFdn @rarediseasefdn

over 8 years ago

Check out what is happening in the #Yukon for #RareDiseaseDay Feb 28! Our second Parent2Parent Resource Network meeting will feature guest speaker - Yukon's new permanent Pediatrician - Dr. Katherine Smart. https://t.co/3t18qv4p79 #ShowYourRare @rarediseaseday