Top Tweets for #RareRevMembersMonth
Merry Christmas to all of our #RareRevolutionaries and the hard working #raredisease advocates that we all count on.
Today on our final day of #RareRevMembersMonth we are thrilled to shine a light on our... https://t.co/0rRNUKQRna
Day 22 of #RareRevMembersMonth and we would like to share @Ring20UK and encourage you to find out more in particular do please visit their online knowledge centre for a wealth of information https://t.co/yBXAKm8iwu
Happy Friday - Day 21 of #RareRevMembersMonth and this afternoon we are talking about @ChildhoodTT who are driving change across the board for patients with #NeurofibromatosisType1 #NF1 #RedBook Please visit their website to learn more https://t.co/H6v8vQjVCO
Day 20 of #RareRevMembersMonth and today it's the turn of @Tay_Sachs who support families affected by #TaySachs and #SandhoffSyndrome Please visit their website to learn more. https://t.co/iHmsetmnDh
Day 18 #RareRevMembersMonth-time to celebrate the huge contribution of @GeneticDisUK @JeansforGenes in #raredisease & #geneticdisorders - supporting families and charities to create better lives for those living with genetic conditions. Pls find out more https://t.co/qibo1Ts67t
Day 17 and time to celebrate the work of @DravetUK for #RareRevMembersMonth - Pls visit their website to see how they give hope to those affected with life-limiting epilepsy https://t.co/e9GP8uvLAC #DravetSyndrome #epilepsy #RareDisease
Day 15 of #RareRevMembersMonth and on the last day of double digits till Christmas we wanted to shine a light of TWO #raredisease charities making their mark. @Findacure and @ALDLife Please take a few minutes to learn more about their work and share! Have a great weekend
Treat yourself to an early Xmas present and pop over to https://t.co/zYI6WQkwXg and book your Early Bird tickets for our Annual Symposium at @RoySocMed on 20 Feb '19: "The Unusual Suspects: Rare Diseases in everyday Medical Care" #DareToThinkRare
Day 13 and please say hello to @AngelmanUK for #RareRevMembersMonth Read about the amazing work they do in giving their patients a voice to be heard, in `The Art of Communication` https://t.co/XE3c1PH2WG #AngelmanSyndrome
Happy Wednesday everyone and welcome to Day 12 of #RareRevMembersMonth. Today we shine a light on the @AlbinismUK and their amazing work for those living with #Albinism Pls check out their video series here https://t.co/IAD3gkYrQE #RareRevolution
Thank you @RareRevolutionM for including us in your #RareRevMembersMonth
#Gaucherdisease #RareRevolution
Please take some time to find out more about @GauchersA as we open day 7 of our #RareRevMembersMonth - Promoting awareness, research and providing patient information for those living with #GauchersDisease. Join the #RareRareRevolution
Meet our newest #RareRevolutionaries - #RareRevMembersMonth - @aPODDfoundation @PBCFoundation @JeuneSynFound @CharityDEBRA - Find out more about how your charity can join the #RareRevolution here https://t.co/od0FOdZizM
Door No 8 in our awareness calendar for #RareRevMembersMonth and it's the turn of @LipodystrophyUk - Please visit https://t.co/sjN7U4d29y to learn more - Join the #RareRevolution
Please take some time to find out more about @GauchersA as we open day 7 of our #RareRevMembersMonth - Promoting awareness, research and providing patient information for those living with #GauchersDisease. Join the #RareRareRevolution
@SArduimBrasil ICYMI
To mark our comitment to #InternationalVolunteersDay
Welcome, James, our new #media coordinator. His first #health event
@UKHealthTech
Via @ataxiaandme
#RareRevMembersMonth
#rarerevrovingreporter @RareRevolutionM
#UKHT18
Did you see how we marked #InternationalVolunteerDay
A #Volunteer #Media Coordinator via @ExpWorksCU #Cardiff
#TeamAtaxia #Wales
#TîmAtaxia #Cymru
👏👏👏👏👏👏👏👏
#RareRevMembersMonth
#rarerevrovingreporter @RareRevolutionM
#DHEWdata
ICYMI
To mark our comitment to #InternationalVolunteersDay
Welcome, James, our new #media coordinator. His first event
@UKHealthTech
Via @ataxiaandme
#RareRevMembersMonth
#rarerevrovingreporter @RareRevolutionM
#UKHT18
@CCPembs @VolPembs
@WCVACymru
@OxPharmaGenesis
Sarah Wright @patientsknowbes speaks
@DHEWales #DHEWdata
Via @ataxiaandme
#RareRevMembersMonth
#rarerevrovingreporter @RareRevolutionM
@helennorthmore #DHEWdata
@hamish_laing opens second session Break time @DHEWales #DHEWdata
Via @ataxiaandme
#RareRevMembersMonth
#rarerevrovingreporter @RareRevolutionM
@helennorthmore #DHEWdata
ICYMI
To mark our comitment to #InternationalVolunteersDay
Welcome, James, our new #media coordinator. His first event
@UKHealthTech
Via @ataxiaandme
#RareRevMembersMonth
#rarerevrovingreporter @RareRevolutionM
#UKHT18
@CCPembs @VolPembs
@WCVACymru
@OxPharmaGenesis
Tonight we open door no 4 during our awareness advent for #RareRevMembersMonth to reveal @musclewarrior - providing #muscledreams for muscular dystrophy #Poweerof657 Please visit them to find out more https://t.co/BQ0gSL6Mw9
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