Top Tweets for #RareYouthProject
Our Friend Georgia has written an awesome blog post for Rare Revoultion Magazine on their #RareYouthProject. Rare Revolution Youth Project. Check her blog post out here https://t.co/p1Wb4DZmqM
#RareYouthProject blogger Georgia Hart talks about people's perceptions of her disability: https://t.co/YC2pRmj30A #RareDisease #FreidreichsAtaxia #Disability
Volunteer social media youth internship
We're looking for a young person to run our facebook youth page this summer! Does this sound like you? Send a letter or short video saying why you'd like to be involved! Contact [email protected] #RAREyouthproject
Nicola Miller (she has a child with a rare condition) and Cameron (a patient with a rare condition) spoke about the #RareYouthProject at the #rarediseaseteaparty last week in the UK, hosted by @BPSUtweet #myraredisease
Here’s Nicola Miller introducing .@RareRevolutionM and their #RAREYouthProject - empowering children and young people with Rare Diseases.
.@BPSUtweet
What an incredible and emotional speech Cameron gave about his experience working on the .@RareRevolutionM #RAREYouthProject Very well done to you young man! My eyes were definitely watering at the end 🥰
Nicola & Cameron talk to us about empowering young people & children with the #RareYouthProject Its difficult to get work experience as a young person with a RD & Rare Rev wanted to do something about it #myraredisease #daretothinkrare @RareRevolutionM @BPSUtweet @RCPCHtweets
Looking forward to talking about our #RareYouthProject at the @BPSUtweet tea party. Look forward to seeing you there.
Register now for @BPSUtweet annual #raredisease tea party on Wednesday, 10 July from 1pm to 5 pm in London. Find out more at https://t.co/co39MSRgca
Hear young people and patient advocates speak about their experience of living with childhood rare disease.
A big thank you to @NaidexShow for helping to raise awareness for our #RareYouthProject. If you would like to find out more about this annual programme reach out to one of our team
https://t.co/aZmDAPIBF4
#RareYouthProject logo design competition is an exciting opportunity for our young community to show off their art and design skills to create a magnificent new logo for our #RareYouthProject and magazine. The competition closes on 26 April https://t.co/pQFSu2ev7x
Calling the #rare youth community! @RareRevolutionM are looking for a budding young artist to design the new logo for their #RareYouthProject and magazine. The competition closes on April 26th - more info here 👉 https://t.co/tprC2K3PbO
Call to our Rare Youth Community! Could you be the winning designer of our #RareYouthProject logo design competition? https://t.co/0ZTiMaHzpT https://t.co/aRAsOHA957
Fancy yourself as a bit of a designer! Why not get involved in the #RareYouthProject and design their new logo - competition closes 26th April so be QUICK... @RareRevolutionM @rarediseaseuk @camraredisease @eurordis @LMBBS1 @WolframSyndUK @AKUSociety https://t.co/H6vQWTLxEU
Very sad to learn of the passing of the warm & talented @AndrewFairlie1 He gave so generously of his time to our #RareYouthProject Please take a few minutes to read his story as told by @RowanWallace1 https://t.co/vuHtvDkgOe
In yesterday's feature we spoke to teenager Cameron Dixon who quizzed politicians Nicola Sturgeon and Andrew Bowie on their knowledge of #rarediseases for @RareRevolutionM magazine’s Rare Youth Project https://t.co/yppxzNXrsg #RareYouthProject
The #RareYouthProject gives a powerful platform to children and young people and we are looking for project partners to help us make our 2019 programme bigger and better allowing us to reach more https://t.co/Ew0MmgNFQ9 @pharmaphorum - Please get in touch to find out more.
We talk to Rare Revolution magazine about the #RareYouthProject, where a group of young aspiring journalists living with #raredisease take on a year-long programme of mentorship and training. Find out more about this rewarding project https://t.co/HsjXBxv4yy @RareRevolutionM
The next generation of #raredisease advocates need some support in getting their voices heard. We talk to Nicola Miller editor at Rare Revolution magazine about how #pharma can help https://t.co/HsjXBxv4yy #rareyouthproject @RareRevolutionM
We are proud to sponsor the #RareYouthProject - organised by NRG Collective to give young people affected by #raredisease a voice. Learn more here https://t.co/UJ1ejU2CAd
After a wonderful success of last years programme the 2018/19 is on hold while we work to secure funding. #RareYouthProject is a work experience & mentoring scheme giving our rare youth community a powerful voice! We would love to hear from anyone interesting in supporting this!
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