Top Tweets for #RilP
@LiceMovono And a former Vice President of @worldywca #RILP Taufa Vakatale for inspiring my #YWCA journey....
@LesleyLesleys Good article. Would have been great to see plexopathy as a result of radiation to the lumbosacral area included and not just “chest wall or neck”#RadiationInducedLumbosacralPlexopathy #RILP #PelvicRadiationDisease #PRD @PRDA_uk
Hazel LL @cavoceredigion describes the achievements of #RILP in facilitating #UserInvolvement in service development @PGGCWWCP #WWRPBawards2022
With the launch of the @PRDA_uk Best Practice Pathway re. #PelvicRadiationDisease at the annual conference on 1st Oct, I thought I would share an article I wrote for @JMIRS1 on my experiences of #PelvicRadiotherapy #RTLateEffects #RILP #LivedExperience
https://t.co/yVgzFdwxGO
Looking forward to presenting at 2 events tomorrow: first supporting the amazing @jarmain_sally at the #NMP #Pain conference @HCUK_Clare @UWE_NMP and then presenting my planned research into the lived experience of #RILP @HeidiProbst @ndhtclinicaltr @RoyalDevonNHS @PDHealthBath
Thanks for sharing this @RheaCrighton1. #RILP can have a profound impact on people's quality of life. #PelvicRadiationDisease
#RILP is a rare condition experienced post abdominal or pelvic radiation #RTLateEffect with symptoms ranging from mild to disabling inc. pain, weakness, foot drop, altered sensation, fasciculations etc. #RareDiseaseDay @PRDA_uk @UKONSmember @SCoRMembers
https://t.co/FSlSeCnahJ
#RILP is a rare condition experienced post abdominal or pelvic radiation #RTLateEffect with symptoms ranging from mild to disabling inc. pain, weakness, foot drop, altered sensation, fasciculations etc. #RareDiseaseDay @PRDA_uk @UKONSmember @SCoRMembers
https://t.co/FSlSeCnahJ
@ilenealizah @ThanksCancer I thought I was the only one this happens too 😱 if I’m sat down on the loo for too long, which happens a lot thanks to #PRD my whole left leg goes numb #RILP #RTLateEffects
There are so many mechanisms behind neuropathic pain in cancer. Not just disease and treatment related; preexisting conditions may worsen.
#PAINNET21
#CervicalCancerAwarenessMonth
#RTLateEffects #PelvicRadiation #LivingWithAndBeyondCancer #RILP
@JoTrust @eveappeal @ActionRTherapy @PRDA_uk
https://t.co/zfyOD7kA1c
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1, Unpack my new home
2, Continue to raise awareness of #GynaeCancer & #RTLateEffects
3, Start a professional doctorate focusing on late effects of pelvic radiation, specifically the lived experience of individuals with radiation induced lumbosacral plexopathy #RILP
#2021goals
although things are much better now they still have a way to go, people living with #LongAndLateEffects of cancer treatment are still experiencing similar issues re. lack of recognition/support/funding/research as discussed in the recent report by @JoTrust & @PRDA_uk #PRD #RILP
1970s - 2020 every U.K. radiation oncologist ( and perhaps beyond ) should read the story of how a multi factorial set of issues led to radiation damage & failure to manage outcome #125yrsRadOnc @SorenBentzen @Rad_Nation https://t.co/Z4Fqhvcqho
@DesAzizoddin @BehavioralMed #RILP is classed as a rare consequence of radiotherapy for pelvic cancer with the risk increased when radiotherapy is combined with certain chemotherapeutic medications such as platinum based 1/2 #BehavioralMedChat
@BehavioralMed A2. There is little research regarding radiation induced lumbar plexopathy #RILP and no research regarding the lived experience of those individuals living with RILP or what support is needed in order for them to thrive and not just survive #BehavioralMedChat
Can anyone help? #RILP #RadiationInducedLumbarPlexopathy @TheNeuroPhysios @NeuPsig @RNPainNet @RCNPainPall @UKONSmember @ActionRTherapy @JMIRS1 @RadProWebsite @BJR_Radiology @RadiographyJour @RadiotherapyUK @DrLisaDurrant
Hi Twiends, am looking for experts in radiation-induced lumbar plexopathy - could you help? DM me? Thank you! #ConsequencesOfTreatment #LateEffects #Plexopathy #Neurology #MedTwitter
@RTherapy4Life Wish this was used for everyone! Imagine the change in people’s lives after cancer if they lived with less #lateeffects 🙏🏻 #PRD #BAD #proctitis #cystitis #RILP #pelvicfractures #persistentpain #sexualdysfunction to name a few possible consequences of pelvic radiation 😞@PRDA_uk
https://t.co/pXaoBCzIMP
More about Reading International Logistics Park above
#RILP
@athenalamnisos1 @JimmyC3181 @karen_hobbs I think I will need some ski pole things to help me do the hills 😱 I am fine on flat but I struggle with stairs and hills since treatment #RILP will be worth it though for the experience and to help raise funds and awareness for @eveappeal 🥰🥰🥰
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