Top Tweets for #SPAEN19
It's our mission to improve the situation of those affected by sarcomas. To achieve this, we #standtogether and work hand in hand. Not only on #WorldCancerDay, but every single day!
Thanks to all those fighting #sarcomas!
#SPAEN19 #sarcoma #GIST #desmoid
Photo: @UliDeck

Always ready to work together to improve the knowledge!
#df #desmoidfoundation #associazioneitalianatumoredesmoide #tumoredesmoide #tumorirari #desmoid #SPAEN19 #sarcoma #GIST
It's our mission to improve the situation of those affected by sarcomas. To achieve this, we #standtogether and work hand in hand. Not only on #WorldCancerDay, but every single day!
Thanks to all those fighting #sarcomas!
#SPAEN19 #sarcoma #GIST #desmoid
Photo: @UliDeck

It was fantastic to have Professor #Timmermann with us - she is such a knowable and committed expert and we are proud and thankful that she shared her #knowledge and #experiences with us at our conference! #SPAEN19 #sarcoma #GIST #desmoid #protonbeam #radiotherapy @WPE_Essen
Beim jΓ€hrlichen Treffen der @sarcomapatients, dem internationalen Netzwerk von #Sarkom-Selbsthilfegruppen in Athen war Prof. Timmermann als Expertin zum Thema Protonentherapie eingeladen. Die internationale Vernetzung ist besonders wichtig bei dieser seltenen Erkrankung.
It's our mission to improve the situation of those affected by sarcomas. To achieve this, we #standtogether and work hand in hand. Not only on #WorldCancerDay, but every single day!
Thanks to all those fighting #sarcomas!
#SPAEN19 #sarcoma #GIST #desmoid
Photo: @UliDeck

We want to thank @Barbaratamagni1 for all the help and support they are giving us. It's a pleasure to work together!
#df #desmoidfoundation #associazioneitalianatumoredesmoide #tumoredesmoide #tumorirari #desmoid #SPAEN19 #sarcoma #GIST

We want to thank @Barbaratamagni1 for all the help and support they are giving us. It's a pleasure to work together!
#df #desmoidfoundation #associazioneitalianatumoredesmoide #tumoredesmoide #tumorirari #desmoid #SPAEN19 #sarcoma #GIST

DF members with @sarcomapatients members! We are really glad to meet you and to work together!
#df #desmoidfoundation #associazioneitalianatumoredesmoide #tumoredesmoide #tumorirari #desmoid #SPAEN19 #sarcoma #GIST

Very happy to congratulate the winners of the Sarcoma Advocacy in Action Award 2018:
1. Das Lebenshaus, GER
2. GIST Support UK/PAWS GIST, UK
3. Patientenplatform Sarcomen, NL
Thanks to all the groups that entered their fantastic work!
#SPAEN19 #AdvocacyinAction
Photos: Uli Deck

Very happy to congratulate the winners of the Sarcoma Advocacy in Action Award 2018:
1. Das Lebenshaus, GER
2. GIST Support UK/PAWS GIST, UK
3. Patientenplatform Sarcomen, NL
Thanks to all the groups that entered their fantastic work!
#SPAEN19 #AdvocacyinAction
Photos: Uli Deck

Really interesting discussion
#df #desmoidfoundation #associazioneitalianatumoredesmoide #tumoredesmoide #tumorirari #desmoid #SPAEN19 #sarcoma #GIST
Members of Desmoid Foundation with @desmoide member; we are glad to meet you at @sarcomapatients annual meeting and to collaborate with you.
#df #desmoidfoundation #associazioneitalianatumoredesmoide #tumoredesmoide #tumorirari #desmoid #SPAEN19 #sarcoma #GIST

Day2 at 9th @sarcomapatients Annual Conference in Athens!
Dr. Colombo Chiara during her speech:
"Can we wait for the standard of care for the initial sporadic desmoid tumor?"
#DF #desmoidfoundation #desmoid #SPAEN19 #sarcoma #GIST

Day2 at 9th @sarcomapatients Annual Conference in Athens!
We are now following Dr. Palassini Elena from @IstTumori about "Low dose chemotherapy: experience in sporadic and FAP-related desmoid tumor"
#DF #desmoidfoundation #desmoid #SPAEN19 #sarcoma #GIST

Inspiring listening to Ana Martins from UCL talking about the @Sarcoma_UK funded work to develop a Quality of Life questionnaire for sarcoma patients

"As sarcomas can occur anywhere in the body, nearly all doctors can come across a sarcoma. So all doctors need to be aware about sarcomas."
Professor Eva Wardelmann, Germany
#SPAEN19 #sarcoma #desmoid #GIST #conference #patientadvocacy #pathology
Photo: Uli Deck

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