Top Tweets for #SPG56
(2/3) The brain organoids that have been grown from SPG56 patients have been dosed with the AAV9 gene therapy and we now wait to see the results π¦ π€
Our research will not only help children living with #SPG56 now and into the future.
Exciting news!
The first scientific publication about the #SPG56 research funded by @ourmoonsmission Genetic Cures for Kids is live, written by Dr Hannah Leeson & @Wolvejong from @AIBNatUQ Australian Institute for Bioengineering & Nanotechnology (1/3)
https://t.co/kS7OvAzBfY
As the supermoon rose in Australia last night, @ourmoonsmission has some incredible supermoon news to share with #TallulahsArmy & all children living with #SPG56.
We've been given a great sign of hope from the fighter in our tenacious & dedicated Tallulah Moon.
(Tweet 1/7)
(2/2) going towards #FindingTheCure for #SPG56.
Our family is so grateful we got to experience this event together & to feel the love of the Top End working with us on this goal.
This is no pipe dream.
This is happening.
This is Our Moon's Mission & we are getting there! π
Our #HikingWarriorQueen is now six days into the #LarapintaChallenge, with every step taken in this incredible 230km journey across the magestic red centre of #NTAustralia, making a difference by raising awareness of #SPG56 & @ourmoonsmission to find the cure.
(Tweet 1 of 2)
Thank you to @janellehmiles & @ABCnews for such a fantastic article about the incredible work being undertaken by the teams at @GRIDD_GU & @AIBNatUQ for @ourmoonsmission, in our efforts to #FindTheCure for #SPG56 π¨βπ¬ π§¬
#HopeInScience #GeneticCuresForKids
https://t.co/xm8vjmHPtx
Thank you to @abcnews for helping @ourmoonsmission raise awareness of the incredible #GeneticResearch being undertaken by @AIBNatUQ, @Griffith_Uni & @GRIDD_GU to find a treatment for #SPG56 π π§¬
#SPG56MeetUp #FirstTimeInHistory #HopeInScience #CureSPG56 #GeneticCuresForKids
It has truly been a remarkable few days with the Lim family visiting Australia from Singapore, for #FirstTimeInHistory #SPG56 meet up between Alissa Lim & Tallulah Moon!
A heartfelt thank you to @Griffith_Uni media team for capturing these incredible photos π (Tweet 1 of 2)
@ourmoonsmission is a mix of nerves & excitement as we descend on Brisbane in anticipation of what may be the FIRST #SPG56 UNION IN HISTORY!
Little Alissa, 2 years old & living with SPG56, is meeting Tallulah Moon our beautiful 3 year old, battling the same disease (Tweet 1/6)
This week on #MeetTheTeam, we are proud to introduce Professor Vicky Avery from Griffith Institute for Drug Discovery.
Prof. Avery is a world-recognised expert in drug discovery, an absolute asset to have on @ourmoonsmission team as we search for drug treatment for #SPG56 (1/7)
From all at @ourmoonsmission: Golden, Witty, Finn Atlas & Tallulah Moon, we wish you the warmest of seasons greetings π
The heartfelt support for our baby & mission since our launch is soaring us steadily towards #FindingACure for #SPG56 ππ
Stay safe everyone & #HappyHolidays
Meet the Whitrods; my best friends & chosen family!
Last week, they launched their charitable foundation Genetic Cures for Kids & fundraising campaign @ourmoonsmission
I've joined the GC4K board & together, we are on the mission to save Tallulah & #DevelopTheCure for #SPG56 π
To read the inspiring story behind how @ourmoonsmission to cure the "incurable disease" #SPG56 came to life & to share in this incredible #Moonshot journey of hope & pioneering #GeneticResearch Tallulah Moon & her family are on, please visit https://t.co/dPsXT4w1EI
"The shock, denial, and grief broke us a thousand times over before it transformed. First, there was acceptance. Now we have hope." How @ourmoonsmission to cure the "incurable disease" #SPG56 came to life https://t.co/l0Ne5X2hfa
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