Top Tweets for #STOPEB
Anna Mei no limit: vuole il Record del Mondo dei 1000 km su pista outdoor https://t.co/9MJbGo5mwQ
Un tentativo di record del mondo per i #bambinifarfalla #stopeb #eb #EpidermolysisBullosa #worldrecordattempt #1000k #1000kafarfalla
A truly #cofferide ristretto one’s !!! #balohcoaching #ultracycling #cycling recovery is more important than pushing !!! #1000k one record attempt 4 #eb #stopeb #epidermolysisbullosa @ Belvedere - Lago Maggiore _… https://t.co/q9lb1Gl3N4
#STOPEB! SPRED RYGTET
Great to play outside in the snow when you have EB, at least for Natalie. Thick clothes and the “padding” from the snow itself makes it possible to tumble around! #epidermolysisbullosa #butterflychildren #fragile #skincondition #stopeb #healeb #cureeb
#iociprovo ancora in sella per i #bambinifarfalla oggi su #donnamoderna perché non abbiamo bisogno di eroi, ma della voglia di #aiutare che ha bisogno!!
#stopeb #epidermiolisibollosa @debra
Ho qualcosa in #testa....
Ci sto lavorando su.
Non ho sempre il bisogno di farlo sapere al mondo, ma sappiate che #cistolavorandosu !!
#stopeb
#everesting19
#sanmarinoromasanmarino @… https://t.co/z4AhWAZeKl
Oggi è per voi #bambinifarfalla #eb #debrast #stopeb ed è sempre una grande #responsabilita un #onore una #strada che ho intrapreso anni fa e mi sta regalando tantissimo. Ma ancora tanto… https://t.co/1OKiuits4x
Grazie ad AZ salute per l'attenzione dimostrata verso il Registro EB. #fondazionereb #epidermolisibollosa #stopeb @DEBRAItalia
#EBawarenessweek is coming Oct 25-31. How will you be creating awareness for #DEBRACANADA? Post or share this ribbon & tell us what you plan to do. #fightEB #cureEB #stopEB #healEB
#HappyBirthday to the bravest 13 years old I know!!! On her #birthday please watch the #documentary about this #talented #butterflychild. #MaisyandtheMakingofDaisy #eb #fighteb #stopeb @charitydebra #cureeb @daisythefilm https://t.co/8vpcXQDIps
#RareDiseaseDay #Ebawareness #EBawareness #epidermolysisbullosa #showyourrare #wefighteb #stopeb
For all the Molly's still fighting
@GWR I really love my new certification! #ultracycling for my #butterflychildren #stopeb . 12h and 24h are now #guinnessworldrecords !!!
https://t.co/t8fDEhafoN
#debracanada #ebawareness #cyclingformore #rideforEB #AlbertatoOntario #support #donate #fightEB #stopEB #cureEB
Financieel misbruik ouderen bestrijden https://t.co/GXnFegGzuc Overheid maakt zelf grootste misbruik fin uitmelken ouderen. #StopEB
Looking forward to what I know will be an amazing night!! #StopEB @Chevening_IFA @CharityDEBRA @JumeirahCT @ChefTomKerridge
Ecco il link per scaricare le nuove linee guida per la gestione delle ferite nell'EB: https://t.co/JnNJQtF6pU
#StopEB
#AwarenessEB
Apienses, fíjense la perla que me acabo de encontrar. No tiene desperdicio. #APIA #apiasemperfidelis #StopEB
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