Top Tweets for #SclerodermaConference2022
A beautiful blue coloured Niagara Falls to increase #Scleroderma awareness! #SclerodermaConference2022 @SclerodermaCAN @SclerodermaATL @SaketkooMD @Rheum_Doc @mcgill_mh
"It is -so- important that you share your stories." - Dr. Lee Shapiro.
#SclerodermaConference2022

In Dr. Shapiro's closing Keynote he touches on something salient he's learned. When delivering a diagnosis, those first words are so important; They may be the only words the patient remembers.
#SclerodermaConference2022

Colin Magee introduces our final Keynote of #SclerodermaConference2022 👉 Dr. Lee Shapiro, founder and Chief Medical Officer of the Steffens Scleroderma Foundation.

Dr Maggie Larché teaches #Scleroderma 101 for those newly diagnosed. Good news: early diagnosis allows for improved monitoring of complications. #sclerodermaconference2022

Dr JoAnna Harper, also a Scleroderma patient joins us virtually today to share about promising medication. #SclerodermaConference2022

Dr Lesley Ann Saketkoo on exercise as medicine for #scleroderma: a strong diaphragm (a core muscle) increases balance and prevents back pain. Singing & humming exercises your diaphragm! #SclerodermaConference2022

Dr Marie Hudson talks about exciting new research that is targeting the fibrosis aspect of blood vessel narrowing for #scleroderma patients with PAH, a potential new drug that's looking very promising, Sotatercept. #SclerodermaConference2022

Dr Danielle Rice on #scleroderma caregivers: 2/3 don't feel supported by healthcare system. @spinsclero-CARE objectives include understanding challenges and finding ways of making things easier for caregivers, like this session at #sclerodermaconference2022

High self-efficacy is important for management of scleroderma. Patients can join SPIN-SELF online to maintain better Quality of Life. - Alyssa Choi @spinsclero
#SclerodermaConference2022

Dr Janet Pope speaks on GI involvement in #scleroderma. Questions on esophageal stretching treatment - does it have to be done regularly? A: No, only as needed. Some patients have it done annually for years and then eventually don't need it done again. #sclerodermaconference2022

Fibroblast cells contribute to formation of connective tissue via collagen. Part of Dr. Fei Geng's research is to develop a drug that can control or immobilize fibroblast cells.
#SclerodermaConference2022

Dr Sindhu Johnson discusses Black & Indigenous #scleroderma patients having higher risk of lung scarring, but chance of survival is the same for all ethnicities in Canada due to our universal healthcare access. #sclerodermaconference2022

Dr Cohen Tervaert does not recommend medical cannabis use as sleep aid in Canada, as the cannabis isn't pure like it is in The Netherlands. He prescribes Low Dose Naltrexone (LDN) in Canada instead. #sclerodermaconference2022

If your worry is hypothetical or there is nothing you can do about it, let it go.
#SclerodermaConference2022
SPIN study showed scleroderma patients experienced major depression at approximately 2x higher rates than the general Canadian population. Dr. Brett Thombs presenting on mental health. #SclerodermaConference2022

Dr Janet Pope recommends Covid vaccine updates for #scleroderma patients - in Ontario those over 60 on immune suppression are eligible every 3 months. #sclerodermaconference2022

Scott and Tracy start off the day with their #Scleroderma fundraising story of their pizza business. They present a cheque for $5000! #sclerodermaconference2022

The talented #TorontoSclerodermaTeam at #SclerodermaConference2022. You are never too young to join our team! @KholoudH5 @Fatimah26714180 @HanaRheum @AboabatAos @mjtwitaj @BangertElvira @SchroederInst @SinaiHealth


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