Have you read this 2009 Article that found that nearly half of those living with scleroderma were work-disabled early in their disease course? Read the article here: https://t.co/dzpHJqyYef
Only a few Make a Move events left! Thank you for helping us Make this Make a Move unforgettable. Register for the final walks today: https://t.co/FAWvWW1dQM
Scleroderma is more than what you see on the outside.
That’s why we’re highlighting the invisible battles behind this disease.
70% of respondents felt that there are many misconceptions about scleroderma.
Read the full report: https://t.co/HWz9rv48Q6
June is Scleroderma Awareness Month - Help us raise awareness by sharing this post.
Scleroderma is a RARE disease with no known cause or cure.
Learn More: https://t.co/ZTHyPcZsiT
These words are more than quotes, they’re calls to action.
Those living with scleroderma face daily battles you can’t always see.
Listen to their voices. Share their stories. Help make the invisible visible.
#invisiblebattles#scleroderma#raredisease#advocacy#awareness
Around every familiar symptom are countless other struggles: digestive issues, fatigue, anxiety, sleep disruption, and more.
77% of respondents reported a significant increase in medical expenses since their diagnosis.
Patient Impact Survey Results: https://t.co/qyZUFbVaBF
What you see is just the tip of the iceberg.
76% of respondents reported they were not receiving any financial support from the government
This June, we're sharing the full picture.
Read the full Patient Impact Survey results at https://t.co/ZTHyPcZsiT
Our Executive Director, John Malcolmson, is making a move across Portugal, virtually walking and cycling 900 km in honour of Jennifer Botelho the dedicated Board President of Scleroderma Ontario, who passed away on May 16th.
Show your support: https://t.co/UXyNgFhtbb
World Scleroderma Day is just 1 month away!
Looking for a way to get involved? Join us at one of our Make a Move events and be part of something powerful. Find your walk: https://t.co/5izfsFbpPE