Top Tweets for #ScrewALS
I’m using my extra rollator as a shower chair until I get my real shower chair. Works pretty good when you are scared to stand up. #screwALS
For Mother’s Day all I want is PrimeC and CNM-Au8 and @nurown PLEASE!!!
@ApproveNurown #screwALS
🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
While it’s great to read about all the agencies getting money for ALS research… Can we please please please get some news about a drug that is coming to us?? I’m fighting as hard as I can but I feel like I’m losing ground every day. #screwALS
3 weeks of traveling with ALS is definitely difficult. My biggest fear is low toilets. I don’t get the low toilets in handicapped bathrooms. Definitely humbling when you have to use the family bathroom with your husband so he can help get you off the toilet. Not sexy. #screwALS
@ObispoSouth @limpbroozkit I got the chair too because of Brooke @limpbroozkit
It’s awesome! Already used it twice.
#screwALS
Taking a shower last night and accidentally saw my self in the mirror. What has #ALS done to my chest?? What happened to my boobs? No one told me! It’s not just me…right?!?!! 😭#thanksALS #screwALS
PRE-ALS The holidays were my https://t.co/W6Y4tCID7P & decorating alone was my happy time.Everyone could enjoy without the work.
POST-ALS My babies are coming by on Sunday to decorate the Christmas tree to enjoy thanksgiving day.Just emotional 😭 😭#ScrewALS
The Trilogy Evo ventilator arrived yesterday. How sobering is that sitting beside your bed?? I know it’s reality but so scary. I just keep thinking if someone in my family had to get this disease I’m glad it’s me. I can’t imagine seeing my loved ones go through this. 😭#screwALS
😪😥😢🙏🏻 #ScrewALS
Today we hugged Chris for the last time and said goodbye as he went to give four people the gift of life by donating his kidneys, liver and lungs. We are deeply broken and deeply proud. In life and in death, Chris never stopped giving. We walk forward with his light guiding us.
PRE-ALS I saved all my expensive perfume for special occasions.
POST-ALS I wear my Chanel Coco Mademoiselle every fricken day!! No more saving for that important event. Every day I am on the wake up list is a special day!! #suckitALS #screwALS #nurown @CHANEL
So if I went and got some viagra do you think it would make my floppy noodle legs firm and stiff for at least 4 hours? Asking for a friend. #suckitALS #screwALS #NurOwnWorks
@sarahkarpar I know how you feel. Taking showers are so stressful now. Especially if washing my hair. It’s exhausting. Looking to remodel shower with bench and handicap shit. I hate how I am or rather not able to just do normal things. #screwALS #ihateALS #nurown
Happy #LouGehrigDay @LiveLikeLou4
In celebration of #ALSAwarenessMonth and more…a little @WoodfordReserve to help the Relyvrio go down. Happy Friday! #screwALS #ihateALS #blessed4life
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