Top Tweets for #ShareGoodScience
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#politicalsupportME #MECVS #MECFS #pwME #MillionsMissing #ForAmendmentDrost #VoorAmendmentDrost #MyalgicE #ShareGoodScience #ScienceNotStigma #ZonMw
@zonMW @PutrinoLab @NMCB_studie @davidtuller1 @AnilvanderZee @NicoDrost @MEcvsVereniging @SteungroepME
De komende dagen posten wij over acties waar je aan mee kunt doen (mocht je dat nog niet hebben gedaan).
#politieksteunME #SharegoodScience #SciencenotStigma #ME #pwME #MillionsMissing #MillionsMore #PAIS #postviral #MECVS
De stemming over de amendementen zal naar verwachting in de middag van 15 februari te volgen zijn:
https://t.co/OAU40jOL6a
https://t.co/LPME0HfMqD
#politieksteunME #SharegoodScience #SciencenotStigma #ME #pwME #MillionsMissing #MillionsMore #PAIS #postviral #MECVS #LongCovid #lyme #qkoorts
@mirjambikker @groenlinks @PvdA @christenunie @JulianBushoff
#Solidarity from the #MECFS community with our #LongCovid colleagues, especially @LongCovidItalia
& @MartaEsperti who has written this powerful thread
We understand the disbelief, we have been there too
Keep head held high but, Marta, look after yourself too
#ShareGoodScience
๐งตDear friends, I am still incredibly weak & sick after 3rd infection. I spent more then 2 years of my life struggling against this disease and offering my blood & my body to bio-medical research, sometimes with some good results that helped science & patients community 1/8๐
Remember the 1 hour chat #MEAwarenessHour
every Weds/Mercredi/Mittwoch at
20:00 BST
21:00 CEST or
21.00 MEZ
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
Remember the 1 hour chat #MEAwarenessHour
every Weds/Mercredi/Mittwoch at
20:00 BST
21:00 CEST (๐ @CyruxiME)
21.00 MEZ (๐ @LohMatt)
Hope thatโs right this week!
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
One of the ME charities is seeking a ยฃ1000 grant but needs MORE votes ๐
@Invest_in_ME are only 700 votes behind 10th place -which would give ยฃ1K
No donation necessary, use โskipโ to voting ๐
#MyalgicEncephalomyelitis #MEcfs #MyalgicE #PwME #CFS #MEeps
https://t.co/stQ7LnHjQr
Bigger studies needed and โpeople who live with ME should be at the heart of ME studies because their experience will always improve scientific quality and delivery.โ
Thank you Simon and @CGATist
#MECFS
#ShareGoodScience
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 BST
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
Share/RT Foggyโs Campaign to record harms from โtreatmentsโ nationally (uk) please
#ShareGoodScience
๐ @AertbyLisa for the fabulous posters!
Reminder - #ShakeItUP 'Next Steps'
https://t.co/aCMoYIdQV2
Please get in touch if you have a M.E, CFS, or ME/CFS dx, live in England, and have been recommended GET (under any name) or CBT as a 'treatment' since 29th Oct 2021
email - [email protected]
#PwME #MEcfs #NEISvoid
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 BST
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
Tonight at 20:00 (BST) #meawarenesshour
It is not just 'malaise'.
Let's talk
all things relating to #MyalgicEncephalomyelitis
#pwME
All Welcome
#longhaulers
#twitterMed
#shareGoodScience
#ShakeItUp @sajidjavid
#StopRestPace
๐จ @AertbyLisa
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 BST
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
#LearnFromME
#MyalgicEncephalomyelitis
โExercise should never be undertaken where M.E. is suspected as this worsens all symptomsโ
1986 - Known 36 years ago ๐คฆโโ๏ธ
Thanks @RFH1955 for publishing this
NB #LongCovid โmystery virusโ
#StopGET
@MEFoggyDog @DressFor_ME @StripyLightCIC You are very welcome.
I am a big believer in working together and we all need to
#ShareGoodScience ๐
Remember 1 hour chat #MEAwarenessHour
every Weds at
20:00BST
21:00CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
Feat @AertbyLisa artwork๐
#ShareGoodScience
#TimeForChange
#CPD training for HCPs/Education/Employers
โPay what you can affordโ
https://t.co/LfWqYRxjDH
Nicolaโs tweet ๐ญ
This perception of #MyalgicEncephalomyelitis as โonly fatigueโ must stop
Major re-education programmes of all HCPs - especially Carers, Social Workers, Education, Employers, Politicians and the General Public.
The #TimeForChange is well overdue
#NotJustTired
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 BST
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
Please try to use the same hashtags?
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
18 & 25 May
It would be good for #MyalgicEncephalomyelitis to trend on twitter in May-please share and try to use
** #MEAwarenessHour in #MEAwarenessMonth
Raising awareness of #MyalgicEncephalomyelitis #MECFS **
Poss add:
#LearnFromME for #PostViral/#EnergyLimitingConditions
#LearnFromME for post viral or #EnergyLimitingConditions
#ShareGoodScience
#MEAwarenessHour in #MEAwarenessMonth, raising awareness of #MyalgicEncephalomyelitis #MECFS
#LearnFromME
How many other conditions are there where loss of 50% functionality is only considered โmoderateโ?
#MEAwarenessHour
4. @MEAssociation historically has worked w #PostViral conditions
https://t.co/iRePyp69DE
5. @PhysiosForME #COVID19 resources
https://t.co/z3dHofsISp
6. @s4me_info to follow research #ShareGoodScience
7. @actionforme resources HCP/education/work
https://t.co/vH6Tegu9VF
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 BST
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 BST
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
#ShakeItUp
#LearnFromME
https://t.co/BSPRBZKTA8
#MEAwarenessMonth
Anniversary- 26June2001
I caught a Virus
#PostViral
#ChronicFatigueSyndrome
I am one of the lucky ones who improved after #PVFS
Shame #sepsis interfered 30Aug2013
#PostSepsis
#MyalgicEncephalomyelitis
20 years experience
8 yrs managing new normal
https://t.co/pdd8XIUv8xโฆ
Thank you CureME @mecfsbiobank (& the charities that fund your work) - wish you could get so much more funding to expand the Biobank and biomedical research for #MyalgicEncephalomyelitis ๐
#MEAwarenessMonth
#ShareGoodScience
#LearnFromME
Remember the 1 hour chat #MEAwarenessHour
every Weds at
20:00 GMT
21:00 CET
to talk all things #MyalgicEncephalomyelitis
#MECFS
๐ @AertbyLisa for the fabulous posters!
#ShareGoodScience
#ShakeItUp
#LearnFromME
https://t.co/BSPRBZKTA8
"There is currently no UK mechanism for recording or monitoring harms from these types of interventions, or for challenging the assumption that they are an appropriate first-line treatment options for ME...."
https://t.co/1YhZRrzKgd
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