Top Tweets for #SiennaGenomics
The SIENNA project will develop ethical frameworks for human #genomics research. Supporting the development of treatment for rare #genetic disorders. Help us raise awareness today for people living with rare disease! #RareDiseaseDay #SiennaGenomics
Today is #RareDiseaseDay 2020, the rarest day if the year!
How will you raise awareness today for people living with a rare disease and their families?
https://t.co/9dbpVgvcS7
Europe eyes new rules for ‘Wild West’ of #DNA testing: Read what SIENNA's @SASlokenberga has to say about European regulation of #DCT #genetic testing in @politico 👉https://t.co/Q3zRCMImbg #SiennaGenomics
The Ethics Blog writes about a recent paper by SIENNA's @AlSoulier, who delivers an in-depth critique of #DynamicConsent for #biobank research. #SiennaGenomics #Genetics #ELSI #InformedConsent. Read it! 👉 https://t.co/bXTc1wex9q
Bored at the beach? Perhaps you want to know how consent forms for diagnostic high‐throughput sequencing address unsolicited and secondary findings? We recommend 👉 https://t.co/kP6wIhwaR0 #SiennaGenomics #Genetics #Genomics #ELSI
The SIENNA workshop on human #genomics kicks off this morning in connection with the #ESHG2019. Looking forward to inspiring and constructive discussions! #Ethicsofgenomics #genetics #SiennaGenomics
Starting Friday, @PascalBorry, @thinkDNA, @emi_niemiec, @JaneMTiller, @DanyaVears, more #eshg19 attendees and others will give expert and stakeholder input to our ethical analysis of human #genomics and our work to inlcude public opinion. #EthicsofGenomics #SiennaGenomics
Our research on the legal developments, issues and human rights challenges in #HumanGenomics is completed - covering international, regional and national legal developments in 12 countries. Read about it 👉 https://t.co/zjXnkK1UbO #SiennaGenomics
New paper by @SASlokenberga and @thinkDNA on the right to science and human germline editing looking at the Swedish Genetic Integrity Act 👉 https://t.co/IK4OpXeKe1 #GeneEditing #GeneticIntegrity #law #SiennaGenomics
Where do we go next? This afternoon, coordinator Philip Brey will lead discussions on how we can translate @SiennaEthics results to ethical frameworks, guidelines and policy proposals. #SiennaEthics #SiennaEnhancement #SiennaGenomics #SiennaRoboticsAI
Right now in Athens 👉Philip Brey, Philip Jansen, Saskia Nagel, Sean Jensen and @AlSoulier presents our ethical analysis for #genomics, #enhancement, #AI & #robotics. #SiennaEthics #ethics #SiennaGenomics #SiennaEnhancement #SiennaRoboticsAI
Looking forward to the weekend? Why not start it off with some philosophical musings from the #Ethics Blog 👉https://t.co/O0But3EHWX #SiennaGenomics
How can we benefit from knowing our DNA information? What are the risks of sharing genetic #data? As part of @SiennaEthics, @Trilateral_UK is addressing these and other #ethical, #legal & #social aspects of #genomic #technologies Read more: https://t.co/v820SnujKi #SiennaGenomics
Want to know more about how SIENNA views the applications, benefits and concerns of human genomics? Look below 👇or download pdf from https://t.co/SIDFF5bYGo #SiennaGenomics #genetics #genomics #ethics
How can we benefit from knowing our DNA information? What are the risks of sharing genetic #data? As part of @SiennaEthics, @Trilateral_UK is addressing these and other #ethical, #legal & #social aspects of #genomic #technologies Read more: https://t.co/v820SnujKi #SiennaGenomics
Who should take a DNA test? Adults or infants? How do we hand handle genetic information responsibly? And what about gene editing? It is time for stakeholder-informed ethics @SiennaEthics #SiennaGenomics
SIENNA could help develop policies that help us benefit from human #genetics and #genomics. We work with experts and stakeholders. Because people's ethical, legal & social concerns should be addressed by sound research! Watch this #SiennaGenomics clip https://t.co/GX3gsGXChC
SIENNA could help develop policies that help us benefit from human #genetics and #genomics. We work with experts and stakeholders. Because people's ethical, legal & social concerns should be addressed by sound research! Watch this #SiennaGenomics clip https://t.co/GX3gsGXChC
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