Top Tweets for #DynamicConsent
#TriallAMA - Did you catch our last session? ๐บ๐ฌ
In our last community AMA, Triall co-founder Ray talks about the promises of #DynamicConsent in clinical research and the enabling role of #blockchain and #SSI technologies.
๐ Check the full recording: https://t.co/bL37G2y43E
My post in the #EthicsBlog of @crb_uu on #dynamicconsent and #communication is out. Inspired by observations and experience with #CHRISstudy reported in our paper https://t.co/QlluzgIv2k published in @ejhg_journal. @Dmascalzoni @EuracBiomed https://t.co/DT4q1DhSmy
Super excited that our paper "Scalable genomic data exchange and analytics with sBeacon" has been published.
My first time in a Nature journal, so proud to be a @TBioinf member
https://t.co/UWrHYNvQmQ
#Genomics #DynamicConsent #Ontoserver #FHIR #Research #NatureBiotechnology
๐ข Job opportunity! Join the team as Software Engineer/Bioinformatician based at @GarvanInstitute.
A great opportunity to contribute to open-source tools for massive-scale #genomics #research.
Apply online ๐ https://t.co/BaWQ5vIgcu
#hiring #nowhiring #CTRL #DynamicConsent
ESRs @TCrepax & Christian Lepore will talk about #DynamicConsent on SoBigData++ and LeADS joint Awareness Panel held by @SantAnnaPisa Istituto di Diritto, Politica e Sviluppo - 18th Jan! Join us! https://t.co/wot766wBrH
A lively conversation following @SAlagaratnam's presentation on the fantastic work @DNV_Group is doing around #DynamicConsent
๐ฃ๏ธ#EHTEL_Symposium participants had their say! What would convince You to share your personal #HealthData? Let us know below!
Then hear from Australian Genomics' @mariejobrion on 'A national approach to #genomic information management', followed by @MatildaHaas speaking about online portals & #DynamicConsent.
#GenomicsTechSummit #NAGIM
In #biobanking and #genomics research, #data and samples are stored for long time. Learn how the CHRIS study works with #DynamicConsent to allow for continuous communication and for nuanced choices to be changed over time! By @Dmascalzoni et al!
https://t.co/3F1JCmI8Us
#CHRIS, a long-term population study, presents challenges related to disclosure of genetic info, data and samples. From #ELSIgroup, 2 publications on ethical & legal challenges, explaining the informed consent model: #dynamicconsent
https://t.co/nknOXQuaf0
https://t.co/Z2GHsriYRC
Consent is so important for patients, including #DynamicConsent. Patients want control over how their data is shared, who has access to it and for what purpose. @AusGenomics @AIDH_healthdata @TheInstituteDH #InGeNA
[#DigitalHealthObservatory article๐]
@DNV_Group has mapped and identified six underlying categories of implementation barriers for #DynamicConsent applications and discusses examples of approaches for overcoming these challenges.
Discover more here ๐https://t.co/kVGYtdIi2Z
![ECHAlliance's tweet photo. [#DigitalHealthObservatory article๐]
@DNV_Group has mapped and identified six underlying categories of implementation barriers for #DynamicConsent applications and discusses examples of approaches for overcoming these challenges.
Discover more here ๐https://t.co/kVGYtdIi2Z https://t.co/mPvC9vJOgk](https://pbs.twimg.com/media/Ey3kmEmWgAApgdc.png)
Today I had the great opportunity to discuss with the team working on @specialprivacy about #dynamicconsent, the topic of my PhD research, as part of @knowgraphs. Thank you @SabrinaKirrane for arranging this.
#GDPR #consent #dataprotection #healthdata
Just off a call with old friends @specialprivacy & @trapeze_eu and new friends @knowgraphs.
It's the second time today I've felt nostalgic :)
Thanks again @rigow and @h_zwingelb. It was a wonderful trip down memory lane #gdpr #dataprotection #consent #bigdata #knowledgegraphs
Key suggestion ... advisory group needs an appropriate rep with deep #healthIT #informatics skills that is across contemporary approaches to #health data collection and sharing. Am sure @louise_schaper @dhansen35 @TheInstituteDH could advise #interoperability #dynamicconsent
@monashdigital Perhaps you could join the webinar and pose the question to the presenters. Or offer your views on what could be done better.
Fantastic work @MatildaHaas! It has been fantastic to see CTRL grow and develop through the work with @AusGenomics. A fantastic platform for #dynamicconsent.
THANK U @MatildaHaas , we appreciated you dropping in today to talk on behalf of @AusGenomics about CTRL 4 dynamic consent. CTRL has made massive progress since 2017 - such a great tool for research! We'll also keep an eye out for the paper just accepted๐#researchimpact
SPECIAL SEMINAR: Monday 23 Nov 12:30pm AEDT Dr @MatildaHaas @MCRI_for_kids will present on a potential web app solution (CTRL) to issues relating to participant consent in genomic & other research programs. @monashdigital @Alfred_RA_EMCR #dynamicconsent
https://t.co/hGn56o5yii
The Ethics Blog writes about a recent paper by SIENNA's @AlSoulier, who delivers an in-depth critique of #DynamicConsent for #biobank research. #SiennaGenomics #Genetics #ELSI #InformedConsent. Read it! ๐ https://t.co/bXTc1wex9q
Worth a conversation about #DynamicConsent? @HeLEXOxford @HeLEXJK @HTeare @habaldwin @RPAuburn @NHSDigital
.@NHSDigital is working on the design and development of a central mechanism for collecting and managing patient consents for the sharing of their healthcare data for secondary use purposes, including medical research and regulated clinical trials.
Can #DynamicConsent facilitate the protection of biomedical #BigData in #Biobanking in #Malaysia?
Mohammad Firdaus Abdul Aziz, Aimi Nadia Mohd Yusof.
11(2) Junโ19.
https://t.co/iFPgnPWRV7
@SpringerEthics @SpringerSocSci #ethics
@FirdausAbdAziz provided reasons why #dynamicconsent should be considered for #biobanking in #Malaysia at @UniMalaya_Law ; also a preview to his paper to be published in June in @AsianBioethics .
A new #dynamicconsent tool called #CTRL has just been released by @AusGenomics a research participant engagement and online consent tool, striving for better patient experience in #genomics research. Itโs a demo version so please try it and share. Research needs these initiatives
@AusGenomics & partners have developed a new #dynamicconsent tool, set to be piloted with our HIDDEN & chILDRANZ flagships from 2019. A demo version of the platform has just been released for collaborators to view. Go to: https://t.co/uynQcx9Cp2
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