Top Tweets for #SmashSmard
Help the @BATigersBBall show support for former BA player, coach and teacher @trentonc32 and his family! Story is in the link provided below!
https://t.co/NOGt1epXDn
#smashSMARD #smASHER
Don’t forget our #BrooksTheChamp !! @Bengals #WHODEYNATION #RoarTogether Together we #smashsmard Harder! @RareDiseases #KentuckyKids
Second annual #SmashSMARD Virtual 5K
“Resilience: The ability to withstand adversity and bounce back from difficult life events”
#SmashSMARDVirtual5K
We are on the way to Chicago for #SmashSMARD
Great work by my colleague and our students in putting this event together for today! Everyone getting involved and contributing kilometres!
#edutwitter #FE
Join the Rare Disease Bootcamp Event on “The Diagnostic Odyssey” July 14th at 12pm CT/1pm ET on LinkedIn LIVE
RSVP: https://t.co/Gb6EsUh6kU
#rarediseases #rarediseaseawareness #rarediseaseresearch #rarediseasetrials #MilestonesforMaxwell #SmashSmard #SLC6A1
Brooks’ story -
The wonderful team at @UofLPedsCCM & @UofLPeds pulmonology w/@ScottGBickel took such great care of Brooks to get him home!
#SmashSMARD
A ‘different cry’ begins a Louisville family’s journey with a rare diagnosis of spinal muscular atrophy with respiratory distress, Type 1 (SMARD1). https://t.co/SjyjI0Z8Lg
The work the Howell family has done and continues to do to support SMARD1 education/research is amazing. Such an inspiring family! https://t.co/J2DLgK5YWm #SmashSMARD
Child with SMARD1 thriving with new home ventilator https://t.co/JVZ3MKYuTW
Came back home after having given up on the day. Found a package in the mail w/this awesome t-shirt.
Just the pick me up that was needed today!
Biking, instead of running to fundraise for @smashSMARD & some of my amazing patients.
Impossible is temporary. #smashSMARD
I just signed up for the Virtual 5k Run/Walk for #smashSMARD on Nov 25, 2020! #Breakthrough4Brooks
https://t.co/z2YFMx540M
A non-seizure and non-metabolic but neuro cause of BRUE? Yes, they exist.
Neuromuscular disorders form a very very small subset of neuro BRUEs, but something to think about!
@UofLPeds @NortonChildrens #CNSMeeting2020 #SmashSMARD #pediatrics #peds
#UofLatCNS Pediatricians often see BRUE. <10% are neurological, most of which are seizure related
Dr. Kshama Ojha, now an epilepsy fellow, discusses an unusual case of BRUE, found to be secondary to SMARD1, a rare neuromuscular condition
#SmashSMARD #CNSMeeting2020 @UofLPedsCCM
#UofLatCNS Pediatricians often see BRUE. <10% are neurological, most of which are seizure related
Dr. Kshama Ojha, now an epilepsy fellow, discusses an unusual case of BRUE, found to be secondary to SMARD1, a rare neuromuscular condition
#SmashSMARD #CNSMeeting2020 @UofLPedsCCM
Edina Firefighters Local 1275 were excited to have Finley Robinson come by with an awesome big check for $7000 to Smash SMARD! We were able to raise these funds through our St Pattys Day shirt sales! We are very happy to be able to donate! #smashsmard
Thank you to everyone who bought a shirt to help donate to Smash SMARD. We feel very fortunate and proud to help out. Watch this amazing video done by the City of Edina to learn more about Finley and her family! #smashsmard #mda https://t.co/iIg7cBcz8Q
Hear how 3-year-old Nash’s parents made it their mission to #smashSMARD after learning their child was diagnosed with spinal muscular atrophy with respiratory distress type 1 (SMARD1). #RAREis @smashSMARD.
Rolling’ into 2020 like 😎. Here is to already accomplishing new things in 2020! Here’s to a new #ighmbp2 gene in 2020 🧬
#smashsmard #smard #smard1 #savebabynash #nashneedsellen #genetherapy #cmt2s #ellendegeneres @theellenshow @ellentube
An excerpt from one of the best articles I’ve seen talking about my nephew, Nash. Thank you @DeseretNews. It’s absolutely beautiful. @TheEllenShow @ellentube @andylassner @smashSMARD @ananavarro @DangeRussWilson @RobbyMook @KimKardashian #smashsmard #savebabynash
Happy 3rd Birthday Nash from all your friends at Horizon! #smashSMARD
Brittany Stineman was told her son wouldn't make it to see his second birthday, but little Nash turned 3. Because of his weakened immune system, Nash cannot be around many people for a typical birthday party, so the community decided to throw him a parade. https://t.co/4RPv74ScMU
@KyleBrandt sharing a feel good story about your hometown and how fellow @stevensonhs alum worked together to celebrate this little boy’s life. #lincolnshireunites #smashsmard ❤️https://t.co/6OjahvZEoy
Nash’s mom said it was a magical day and... “It just made me feel so much more hopeful about what the next year could bring."
#SmashSMARD #savebabynash @smashSMARD
https://t.co/GTP4xZina1
Lincolnshire, what an amazing community!
Happy happy birthday, Nash 🥳
#smashSMARD
https://t.co/tzc8sDvyVY
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