Top Tweets for #SpinalMusularAtrophy
Egyptians raise $2.1m to buy world’s most expensive drug for toddler's treatment.
#EgyptianChild #Ruqayyah #SpinalMusularAtrophy #TheGlobalInsider
https://t.co/1w28neJZwT
RT A great cycle event in aid of Spinal Muscular Atrophy research. I'd welcome your kind sponsorship, thank you https://t.co/4kmUqdMKB5 #spinalmusularatrophy #research #funding #ridescorpion #charityride
Ride Scorpion in aid of SMA UK is taking place on 21st May and is ending with a celebration at The Howard Arms in Ilmington, Warwickshire. All are welcome to join a fun social event from 3pm so do come along and say hello!
Please help! Baby Shrishti needs most expensive drug in the world ZolgenSMA ($2.1 million / Rs. 16 crore) urgently. Donate and/or spread the word wide. #sos #sma #spinalmusularatrophy #ZolgenSMA #health #healthcare #novartis @timesofindia @htTweets @the_hindu @IndianExpress
@SonuSood Our daughter, Srishti Rani is fighting a rare disease, Spinal Muscular Atrophy (SMA) type 1. need Zolgensma drug (USD 2.1 million) to give life to her. She doesn't have much time
Plz help us raise funds: https://t.co/9JtfIXAZXw
https://t.co/3OrK1hDz6D
Thanks!
#ICTD2019 @NHPINDIA patient suffering from #SpinalMusularAtrophy are Indian Citizen and National Asset. Battling against all the health challenges and terminal illness, SMA patient are achiever's. bring #Spinraza and #clinicaltrials @biogen @Roche @WHO @MoHFW_INDIA @AyushmanNHA
@IN_gov @narendramodi @NHPINDIA @MoHFW_INDIA @JPNadda patient suffering from #SpinalMusularAtrophy are Indian Citizen and National Asset. Battling against all the health challenges and terminal illness, SMA patient are achiever's. Please bring #Spinraza , #Savelives @AyushmanNHA
There is a promising treatment that can save children dying with #SpinalMusularAtrophy. Please bring #Spinraza to India @PMOIndia @JPNadda @MoHFW_INDIA
@the_hindu,@IndianExpress,@IndiaToday,@timesofindia, @fsmaindia, Our little kids are dying with #SPINALMUSCULARATROPY and no one helping us, we SMA families request to brg #Spinraza or Novartis #Avxs-101, i request media to help us to spread the voice for the sake of little kids
Jadon's Hope BUG RUN -#SpinalMusularAtrophy #RunToEndSMA 5k & 10K - Olathe KS OR Virtual run - Register TODAY: https://t.co/7r5HLcjRpQ
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