Top Tweets for #Stand4SCD
We recognize #WorldSickleCellDay in honor of the many children, like Madison, with Sickle Cell Disease who have been granted a wish. #Stand4SCD
This is why I will always advocate & #stand4scd. A person in #NYC had to wait for bld, not an organ, from #Boston. Perfect ex of why more ppl of diverse groups must #donateblood #GiveLife. Also why more medical optns needed @SCDAAorg @RedCross @redcrossny @GBT_news
#sicklecell
Love... Love... Love this #SickleCell warrior illustration. We need this in every pedi #hematology clinic so our young warriors can reclaim their power over #scd @ASH_hematology @sos_sicklecell @GBT_news #stand4scd
Meet Alfie the protagonist in a project I'm working on called The Sickle-Cell Warrior. #sicklecellwarrior #SickleCell @SickleCellUK @Sicklecell_RM
Very important and often overlooked issue. In @TexasChildrens study, our kiddos with #SickleCell missed 12 school days on average and parents 11 days from work. Important to incorporate the medical and social for quality of care and quality of life. #stand4scd #RareDiseaseDay
I love how @GBT_news
brings the community to the table to collaborate and inform their work. Some companies do it in theory to mark a check box but it's embedded in their company's culture. #sicklecell #stand4scd
So proud of the bipartisan support for #SickleCell Treatment Act of 2018 in @congressdotgov @SenateDems @SenateGOP . Thanks to TX own @michaelcburgess for co-sponsoring bill and everyone that voted to #stand4scd.
The Sickle Cell Treatment Act of 2018 passed! The bill represents a significant win and step forward for the sickle cell community. Thank you for your support! @ASH_hematology @SickCells @sicklecell101 @SCDForum @boldlips4SCD @EveryLifeOrg Read more below! https://t.co/1nASpI3lkB
So sad to read about another young life lost to #sicklecell. We need more hands working to advance funding, research, & policies that impact life expectancy & quality of life. #stand4scd @JacksonLeeTX18 @BorrisLMiles @RepAlGreen @FourPriceTX @GFColeman @moodyforelpaso
Killeen father offers heartfelt goodbye after son dies following battle with sickle cell anemia https://t.co/OGSgKT0Tzz via @kdhnews
I know Houston Rep @JacksonLeeTX18 has supported #sicklecell in the past. Hopefully will repeat with @RepAlGreen to #stand4scd
HELP! Remember the #SickleCell Bill that just passed the U.S. Senate in October?
We have only weeks left to get this bill passed by the House in 2018, or else everything resets in 2019. For more details on how to help visit: https://t.co/3JJ6CKNmdX
#votesicklecell #s2465
I hope the @TexasHouse Opioids & Substance Abuse, Select Committee is considering carve outs for those who have chronic conditions & are dependent (not addicted) upon certain meds for the management of their pain. @FourPriceTX @moodyforelpaso #SickleCellAwareness #stand4scd
Some pain warriors are not able to live without powerful pain meds because nothing else works. Being told that pain meds may not be prescribed in the future is like walking in a long line of pain warriors waiting to be slaughtered. We have to keep fighting for our lives!
#MagicalMonday We recognize Sickle Cell Awareness Month in honor of the strong πͺ wish children like Trip who are fighting sickle cell disease. #Stand4SCD #SickleCellAwarenessMonth
To raise awareness for #SickleCell & #ChildhoodCancer, our SPP #HemOncBMTSIG will be sharing stories of our SIG membersβ work all month starting tomorrow!
#SickleCellAwarenessMonth
#ChildhoodCancerAwarenessMonth #cancer #BMT #SCD #gogold #Stand4SCD
#thisispedpsych #Div54 @APA
So excited to see @TexasChildrens own hematology social worker and @UTexasSPH doctoral candidate honored to receive the first Sherma Fellowship. She is passionate and compassionate and does amazing work in and out of the clinic. https://t.co/un7YIXRXuy #stand4scd #ingoodhands
Nice to see @CityofHouston lit up for #WorldSickleCellDay2018. It's a step towards recognizing the scd community & their needs.
@HoustonHealth @SylvesterTurner @BorrisLMiles @DwightBoykins @SCDAAorg @sos_sicklecell @RepThierry146 @Wandaful1913
#SickleCellAwareness #stand4scd
Lift your voice: July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain #sicklecell #chronicpain #advocacy #stand4scd https://t.co/Y5pJoLon5J
Warriors - We need to show up and speak up at this meeting. If you are in Maryland, or have the ability to travel to Maryland on June 9th, please consider registering to attend this meeting in person. Apply to... https://t.co/KkueGxTKlH
Thank you for supporting #sicklecell and team @sos_sicklecell! #sicklecellawareness #stand4scd #conquerscd
https://t.co/rqn9XHYn4O
My @reason2race #charity is @sos_sicklecell. Thanks to your generous support we earned a bonus $400 for the organization. #sicklecell #conquerscd #stand4scd
On my way to raise #sicklecellawareness @MinuteMaidParks. @sos_sicklecell is my @Reason2Race charity.
#stand4scd #conquerscd
Getting ready for 7am @reason2race 5k run. Excited to shine spotlight and bring awareness to #SickleCell
You can support the cause. Donate here: https://t.co/rqn9XHYn4O
#conquerscd #stand4scd
We want to thank everyone that gave! We could not do our work in the #sicklecell community without you. Although we qualified for the bonus we are roughly $1200 from reaching our goal. Can you help get us over the top? https://t.co/v8g9NXagg2
#stand4scd #conquerscd https://t.co/E5uYpv14Zk
Wow! Thank you for supporting #sicklecell! We raised over $1k in <2hrs to secure 2nd place finish & qualify for $400 bonus from race organizer.
The money raised plus bonus will help provide parking for over 200 families Thank you!
Not too late to give
https://t.co/rqn9XHYn4O
We recognize Sickle Cell Disease Awareness Month in honor of the many children like Ike who have been granted a wish. #Stand4SCD
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